RESUMO
RESUMO Objetivo: avaliar a usabilidade do carrega-bebê para o transporte seguro do recém-nascido junto à mãe e a satisfação das puérperas e da equipe de enfermagem. Método: estudo transversal, desenvolvido no Centro Obstétrico e na Internação Obstétrica, na região sul do Brasil, com 99 puérperas e 66 técnicos/auxiliares de enfermagem, no período de julho a setembro de 2018. Utilizou-se três questionários semiestruturados. Realizada análise descritiva. Resultados: dos técnicos/auxiliares de enfermagem, 40 eram do Centro Obstétrico e 23 da Internação Obstétrica. 95 puérperas consideraram o dispositivo uma medida de segurança para o recém-nascido. Quanto à satisfação, a nota média da equipe de enfermagem do Centro Obstétrico foi 8,9; na Internação Obstétrica, 9,6; e, para as puérperas, 9,6. Conclusão: a utilização do carrega-bebê foi bem avaliada pelos profissionais e pelas puérperas, considerando-se que preveniu quedas do recém-nascido durante o transporte. Devem-se considerar as sugestões de melhorias para que o dispositivo seja aprimorado.
RESUMEN: Objetivo: evaluar la usabilidad de las sillitas portátiles para el transporte seguro del recién nacido con su madre y la satisfacción de las puérperas y del equipo de enfermería. Método: estudio transversal, que se desarrolló en el Centro Obstétrico y en la Internación Obstétrica, en región sur de Brasil, con 99 puérperas y 66 técnicos/auxiliares de enfermería, em el período de julio a septiembre de 2018. Se utilizaron tres cuestionarios semi estructurados. Se hizo análisis descriptivo. Resultados: de los técnicos/auxiliares de enfermería, 40 eran del Centro Obstétrico y 23 de la Internación Obstétrica. 95 puérperas consideraron el dispositivo una medida de seguridad para el recién nacido. Acerca de la satisfacción, la nota promedio del equipo de enfermería del Centro Obstétrico fue 8,9; en la Internación Obstétrica, 9,6 y, para las puérperas, 9,6. Conclusión: la utilización de la sillita portátil fue bien evaluada por los profesionales y por las puérperas, considerándose que previne caídas del recién nacido durante el transporte. Se necesita tener en cuenta las sugerencias de mejorías para que el dispositivo sea perfeccionado.
ABSTRACT Objective: To evaluate the usability of the baby carrier for the safe transport of newborn infants with their mothers and the satisfaction of the mothers and the nursing team. Method: Cross-sectional study conducted at the Obstetric Center and Inpatient Obstetric Units, in the southern region of Brazil, with 99 postpartum women and 66 nursing technicians/assistants from July to September 2018. Three semi-structured questionnaires were applied. Descriptive analysis was performed. Results: Of the total number of nursing technicians/assistants, 40 were from the Obstetric Center and 23 from the Inpatient Obstetric Units. Ninety-five (95) postpartum women 95 perceived the device as a safety measure for the newborns. As for satisfaction, the average score of the nursing team at the Obstetric Center was 8.9; in Obstetric Admission, 9.6; and, the postpartum women obtained 9.6. Conclusion: The use of the baby carrier obtained high ratings from the professionals and the mothers, because it prevented falls of newborns during transport. Suggestions for improvements of the device should be considered.
RESUMO
Since polyglutamine diseases have been related to a reduced risk of cancer, we aimed to study the 15 years cumulative incidence of cancer (CIC) (arm 1) and the proportion of cancer as a cause of death (arm 2) in symptomatic carriers of spinocerebellar ataxia type 3/Machado-Joseph disease (SCA3/MJD). SCA3/MJD and control individuals from our state were invited to participate. A structured interview was performed. CIC as published by the Brazilian National Institute of Cancer, was used as populational control. Causes of death were obtained from the Public Information System on Mortality. We interviewed 154 SCA3/MJD patients and 80 unrelated controls: CIC was 7/154 (4.5%) and 5/80 (6.3%), respectively. The interim analysis for futility showed that the number of individuals required to detect a significant difference between groups (1938) would be three times larger than the existing local SCA3/MJD population (625), for an absolute risk reduction of 1.8%. Then this study arm was discontinued due to lack of power. In the same period, cancer was a cause of death in 9/101 (8.9%) SCA3/MJD and in 52/202 (26.2%) controls, with an absolute reduction risk of 17.3% (OR 0.27, 95%CI 0.13 to 0.58, p = 0.01). A significant reduction of cancer as cause of death was observed in SCA3/MJD, suggesting a common effect to all polyglutamine diseases.
