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1.
Stud Health Technol Inform ; 316: 1547-1548, 2024 Aug 22.
Artigo em Inglês | MEDLINE | ID: mdl-39176501

RESUMO

The increasing percentage of elderly in our society is challenging the health care system. To meet the challenge, we have implemented an experience-based master's programme in digital health care. The 3-yrs 90 ECTS programme consists of physical sessions of three days duration and weekly 2-3-hour digital lectures and bi-weekly supervisions. A main goal of the program has been to involve the students in relevant local and regional health problems as well as inviting health care personnel to participate in the planning of the study program, present relevant health problems and challenges and follow our open digital health workshops. In this way we have managed to create a stimulating learning environment for both students on further education and local and regional health care personnel.


Assuntos
Currículo , Humanos , Saúde Digital
2.
Stud Health Technol Inform ; 316: 1094-1095, 2024 Aug 22.
Artigo em Inglês | MEDLINE | ID: mdl-39176571

RESUMO

This paper explores the significance of physical activity for individuals with intellectual disabilities and proposes an innovative approach using augmented reality exergames to promote adherence. An augmented reality-based app for sorting elements while walking was specifically designed and implemented. Exergames hold promise as effective interventions for promoting physical activity and improving the overall well-being of individuals with intellectual disabilities.


Assuntos
Realidade Aumentada , Terapia por Exercício , Deficiência Intelectual , Aplicativos Móveis , Jogos de Vídeo , Humanos , Deficiência Intelectual/reabilitação , Deficiência Intelectual/terapia , Terapia por Exercício/métodos , Exercício Físico
3.
Stud Health Technol Inform ; 316: 247-251, 2024 Aug 22.
Artigo em Inglês | MEDLINE | ID: mdl-39176720

RESUMO

This paper presents the design, implementation and early tests of an app that collects a comprehensive set of health-related data, as part of the EU-project WARIFA. To achieve the main aim of the project - using AI to prevent chronic conditions - a wide range of data needs to be collected and stored at a backend server for processing. The methods and elements for creating this system are presented, as well as results from the co-creation process and early user-tests. Challenges regarding complexity, security, and privacy are discussed, as well as the needs and prospectives for easier ways of collecting health-related data.


Assuntos
Aplicativos Móveis , Doença Crônica/prevenção & controle , Humanos , Inteligência Artificial , Segurança Computacional , Coleta de Dados
4.
Stud Health Technol Inform ; 316: 523-524, 2024 Aug 22.
Artigo em Inglês | MEDLINE | ID: mdl-39176793

RESUMO

Epilepsy is a prevalent neurological disorder characterized by unpredictable seizures despite some known risk factors. Using an mHealth system and Empatica EmbracePlus, we aim to examine if biometric sensor data can detect and predict epileptic seizures. Five participants with epilepsy will be followed for a minimum of 15 seizures. Expected results and possible implications are presented. This study may provide new insights into biological indicators for seizure forecasting.


Assuntos
Epilepsia , Humanos , Projetos Piloto , Epilepsia/diagnóstico , Biometria/métodos , Convulsões/diagnóstico , Telemedicina , Diagnóstico por Computador/métodos
5.
Artigo em Inglês | MEDLINE | ID: mdl-39027413

RESUMO

Background: Digital solutions have been reported to provide positive psychological and social outcomes to childhood critical illness survivors, a group with an increased risk for long-term adverse psychosocial effects. Objective: To explore health professionals' perspectives on the potential of digital psychosocial follow-up for childhood critical illness survivors. Methods: Using a qualitative approach, expert interviews with six health professionals working at a Norwegian hospital were conducted. Transcribed interviews were analyzed using Braun and Clarke's six-phase thematic analysis framework. Concurrent data collection and analysis using inductive coding was also employed, and a model of codes was constructed. Results: The interview yielded thirteen unique codes regarding the health professionals' perspectives on the potential for digital psychosocial follow-up for childhood critical illness survivors, organized in a model comprising the two main themes: Affecting Factors and Digital Usage. Demographic factors (the child's medical condition, age, gender, and residence) and environmental factors (the child's family and health professionals) tended to affect the current psychosocial follow-up. Hospital limitations concerning a lack of digital solutions, worse relationship building with video communication, and children's already high screen time reflected the current state of digital usage. However, ongoing digitalization, existing successful digital solutions, children's good digital skills, and an ongoing process of creating an artifact are also seen as opportunities for digital usage in future psychosocial follow-up for childhood critical illness survivors. Conclusions: Researchers can build further on these findings to investigate the potential of digital psychosocial follow-up for childhood critical illness survivors, and clinicians can use it as a starting point for improving psychosocial follow-up.

7.
Scand Cardiovasc J ; 58(1): 2353069, 2024 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-38794854

RESUMO

OBJECTIVES: Atrial fibrillation (AF) is a common early arrhythmia after heart valve surgery that limits physical activity. We aimed to evaluate the criterion validity of the Apple Watch Series 5 single-lead electrocardiogram (ECG) for detecting AF in patients after heart valve surgery. DESIGN: We enrolled 105 patients from the University Hospital of North Norway, of whom 93 completed the study. All patients underwent single-lead ECG using the smartwatch three times or more daily on the second to third or third to fourth postoperative day. These results were compared with continuous 2-4 days ECG telemetry monitoring and a 12-lead ECG on the third postoperative day. RESULTS: On comparing the Apple Watch ECGs with the ECG monitoring, the sensitivity and specificity to detect AF were 91% (75, 100) and 96% (91, 99), respectively. The accuracy was 95% (91, 99). On comparing Apple Watch ECG with a 12-lead ECG, the sensitivity was 71% (62, 100) and the specificity was 92% (92, 100). CONCLUSION: The Apple smartwatch single-lead ECG has high sensitivity and specificity, and might be a useful tool for detecting AF in patients after heart valve surgery.


Assuntos
Fibrilação Atrial , Frequência Cardíaca , Valor Preditivo dos Testes , Humanos , Fibrilação Atrial/diagnóstico , Fibrilação Atrial/fisiopatologia , Masculino , Estudos Prospectivos , Feminino , Idoso , Pessoa de Meia-Idade , Reprodutibilidade dos Testes , Noruega , Fatores de Tempo , Aplicativos Móveis , Resultado do Tratamento , Eletrocardiografia Ambulatorial/instrumentação , Telemetria/instrumentação , Procedimentos Cirúrgicos Cardíacos/efeitos adversos , Dispositivos Eletrônicos Vestíveis , Eletrocardiografia , Valvas Cardíacas/cirurgia , Valvas Cardíacas/fisiopatologia
8.
Front Rehabil Sci ; 4: 1225641, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37691911

RESUMO

Background: Many individuals with intellectual disability (ID) have a sedentary lifestyle. Few interventions aimed at increasing their level of physical activity (PA) have shown lasting effects. Aim: To assess the feasibility and acceptability of a pilot intervention study using innovative mobile health (mHealth) support systems to encourage PA in individuals with ID. Methods: Nine individuals with ID and a low level of PA, aged 16-36 years, were included in the present convergent triangulation mixed method design. Two mHealth support systems (apps) were developed and tested. PA was measured with a Fitbit smartwatch, accelerometer, the International Physical Activity Questionnaire-Short Form (IPAQ-S), and Goal attainment scaling. Data were collected through online pre-, mid- (4 weeks), and post-intervention (12 weeks) questionnaires and activity trackers. Semi-structured qualitative interviews with participants and/or a family or staff member were held after the 12-week follow-up. Data were analyzed using conventional nonparametric statistics and thematic analyses. Results: The response rate and retention to the trial were 16% and 100%, respectively. Data quality was high, except for missing data from Fitbit activity trackers of approximately 30% from the 4- and 12-week follow-up stages. The feasibility challenges with activity trackers include rashes, size, non-acceptance, and loss of motivation. Participants and family members/staff reported interest in the study theme and were pleased with the data collection method. All but one participant achieved their PA goals. Most participants reported being satisfied with the apps as they were enjoyable or provided a reminder for performing physical and other activities. Social support for PA among family members also increased. However, app support from staff and family members was needed, and apps were not used regularly. Two of nine participants (22%) had increased their PA measured as steps per day with Fitbit at the 12-week follow-up. Conclusions: The acceptability and feasibility of using tailored mobile applications in natural settings to increase PA among adults with ID are promising. This study aligns with previous studies in showing the challenges to increasing PA, which requires the inclusion of family members, staff, and stakeholders. The intervention requires modifications before a randomized controlled trial can be conducted.

9.
Data Brief ; 50: 109589, 2023 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-37767132

RESUMO

We created and carried out a cross-sectional anonymous structured questionnaire on what motivates users of mobile health applications and wearables to share their collected health related data. The questionnaire was distributed online in English, French, and Norwegian. In addition, a flyer with information of where to locate the online questionnaire was distributed during a Swiss health conference. We used snowball sampling and encouraged participants to forward the questionnaires to friends, family, and others. Data were collected between October 2018 and March 2020. 58.1 % (n = 473) responded to the English survey, 34.3 % (n = 279) responded to the French survey, and 7.6 % (n = 62) responded to the Norwegian survey. The questionnaire contained 38 questions divided into seven themes: Background and health goals, Wearables and sensors, Mobile applications, Logging of health data, Data sharing- and integration, Social media and entertainment, and Demographics (age, gender, country of origin, chronic disease status, and chronic disease caretaker status). Answer options were single answer, multiple-choice, open-ended, or on a 4-point Likert scale. Questions were defined based on 16 in-person interviews with people without any chronic disorder, people with diabetes, and people with sickle cell disease. All questions were optional. Data were collected from 814 participants. All answers to the open-ended questions have been translated into English. This dataset is especially interesting for researchers interesting in what motivates people with and without chronic disease across countries to use mHealth tools and share their collected health data. Only a subset of variables has been analyzed so far and new research questions on motivation can potentially be answered using this dataset.

10.
Stud Health Technol Inform ; 302: 841-845, 2023 May 18.
Artigo em Inglês | MEDLINE | ID: mdl-37203514

RESUMO

Data from consumer-based devices for collecting personal health-related data could be useful in diagnostics and treatment. This requires a flexible and scalable software and system architecture to handle the data. This study examines the existing mSpider platform, addresses shortcomings in security and development, and suggests a full risk analysis, a more loosely coupled component- based system for long term stability, better scalability, and maintainability. The goal is to create a human digital twin platform for an operational production environment.


Assuntos
Software , Humanos , Coleta de Dados
11.
Int J Med Inform ; 173: 105043, 2023 05.
Artigo em Inglês | MEDLINE | ID: mdl-36934610

RESUMO

BACKGROUND: Serious public-health concerns such as overweight and obesity are in many cases caused by excess intake of food combined with decreases in physical activity. Smart scales with wireless data transfer can, together with smart watches and trackers, observe changes in the population's health. They can present us with a picture of our metabolism, body health, and disease risks. Combining body composition data with physical activity measurements from devices such as smart watches could contribute to building a human digital twin. OBJECTIVE: The objectives of this study were to (1) investigate the evolution of smart scales in the last decade, (2) map status and supported sensors of smart scales, (3) get an overview of how smart scales have been used in research, and (4) identify smart scales for current and future research. METHOD: We searched for devices through web shops and smart scale tests/reviews, extracting data from the manufacturer's official website, user manuals when available, and data from web shops. We also searched scientific literature databases for smart scale usage in scientific papers. RESULT: We identified 165 smart scales with a wireless connection from 72 different manufacturers, released between 2009 and end of 2021. Of these devices, 49 (28%) had been discontinued by end of 2021. We found that the use of major variables such as fat and muscle mass have been as good as constant over the years, and that minor variables such as visceral fat and protein mass have increased since 2015. The main contribution is a representative overview of consumer grade smart scales between 2009 and 2021. CONCLUSION: The last six years have seen a distinct increase of these devices in the marketplace, measuring body composition with bone mass, muscle mass, fat mass, and water mass, in addition to weight. Still, the number of research projects featuring connected smart scales are few. One reason could be the lack of professionally accurate measurements, though trend analysis might be a more feasible usage scenario.


Assuntos
Exercício Físico , Obesidade , Humanos
12.
Int J Med Inform ; 170: 104964, 2023 02.
Artigo em Inglês | MEDLINE | ID: mdl-36565547

RESUMO

INTRODUCTION: Exploitation of telehealth in prenatal care has the potential to reduce the access barrier to care and empower women to participate in their own care. This review aims to assess the practical implications of virtual prenatal care and identify the needs and experiences associated with it. METHODS: A systematic literature review was conducted in four electronic databases: PubMed, Web of Science, Scopus, and Cochrane. The keywords used were "pregnancy", "virtual visit", "prenatal", and others. The search included all relevant studies published from 2011 to 2021 written in English. Articles mentioning virtual prenatal care incorporating synchronous communication between pregnant women and health care professionals were included. Those unrelated to prenatal care or employing asynchronous means of virtual care were excluded. The review was structured following the PRISMA guidelines. Different quality appraisal methods such as JBI, CASP, NOS, and Cochrane were used to assess the methodological quality of the literature. The data were then analyzed based on the categorization of the studies. RESULTS: Overall, 2863 articles were identified, of which 19 met the inclusion criteria after removing duplicates, screening of abstracts, and full text-four articles identified from hand-searching were incorporated, making a total of 23 eligible articles for the review. The studies' findings revealed the preference for implementing cost-effective virtual care based on the resource set, technological literacy, and consistent accessibility. Further, no significant differences in clinical outcomes were observed between two modes of care, virtual and in-person. The higher satisfaction by pregnant women and healthcare professionals indicated the continuity of the care. In addition, the hybrid model of virtual prenatal care integrated with traditional in-person care was acceptable to both low-risk and high-risk pregnant women. Virtual prenatal care substantially reduced travel time and absences from work, drops in clinic wait time and no-show rate, limited the risk of exposure during a pandemic, and increased self-accountability. CONCLUSION: Virtual prenatal care offers predominant advantages over in-person when it is carefully designed with the inclusion of pregnant women and healthcare professionals' needs. Evidence showed that providing adequate technology training, proper instruction, and guidelines for initial setup and assurance of a reliable and accessible system is vital in increasing access to care.


Assuntos
Gestantes , Cuidado Pré-Natal , Gravidez , Humanos , Feminino , Cuidado Pré-Natal/métodos , Qualidade da Assistência à Saúde , Pessoal de Saúde , Atenção à Saúde
13.
JMIR Res Protoc ; 11(9): e37849, 2022 Sep 15.
Artigo em Inglês | MEDLINE | ID: mdl-36107473

RESUMO

BACKGROUND: Several studies have shown that individuals with intellectual disabilities (IDs) have low levels of physical activity (PA), and intervention studies on PA suggest inconsistent evidence. The use of technology as a means of motivation for PA has yet to be extensively explored and needs to be further investigated. OBJECTIVE: We aim to assess the feasibility and acceptability of procedures for an intervention arm in a future trial on mobile health (mHealth) to support PA for individuals with IDs. In addition, we aim to examine how the use of technology can influence motivation for PA among participants, their caregivers, and staff members. METHODS: A mixed methods pilot study of an intervention arm will be carried out in a planned randomized controlled trial (RCT). Ten participants with ID and their caregivers or a staff member will be included. Information will always be provided by a caregiver or a staff member, or participants with ID if possible. Assessments will be carried out at baseline, follow-up after 4 weeks, and 12 weeks, and include questionnaires on PA, social support, self-efficacy, and challenging behavior. PA will be measured with 2 different activity trackers (Fitbit and Axivity) for 1 week at all assessments. Feasibility will be assessed as recruitment and adherence rate, missing data, usability of the motivational mHealth tool, and estimates of effectiveness. Acceptability of study procedures, activity measures, and motivation for participation in PA will be additionally assessed with qualitative methods at the end of the intervention. RESULTS: Enrollment commenced in May 2021. Data collection was completed in March 2022. CONCLUSIONS: This pilot study will evaluate the feasibility and acceptability of study procedures of the intervention arm of a planned RCT to address feasibility issues, improve study procedures, and estimate effectiveness of the study measures. How the use of technology can influence motivation for PA will also be examined, which can help guide and improve future PA interventions involving the use of technology. TRIAL REGISTRATION: ClinicalTrials.gov NCT04929106; https://clinicaltrials.gov/ct2/show/NCT04929106. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/37849.

14.
BMC Res Notes ; 15(1): 258, 2022 Jul 16.
Artigo em Inglês | MEDLINE | ID: mdl-35842728

RESUMO

OBJECTIVES: Accelerometer-based wrist-worn fitness trackers and smartwatches (wearables) appeared on the consumer market in 2011. Many wearable devices have been released since. The objective of this data paper is to describe a dataset of 423 wearables released before July 2017. DATA DESCRIPTION: We identified wearables and extracted information from six online and offline databases. We also visited websites for all identified companies/brands to identify additional wearables, as well as obtained additional information for each identified device. Twelve attributes were collected: wearable name, company/brand name, release year, country of origin, whether the wearable was crowd funded, form factor (fitness tracker or smartwatch), and sensors supported. Support for the following sensors were mapped: accelerometer, magnetometer, gyroscope, altimeter or barometer, global-positioning-system, and optical pulse sensor (i.e., photoplethysmograph). The search was conducted between May 15th and July 1st, 2017. The included data gives an overview of most in-scope wearables released before July 2017 and allows researchers to conduct additional analysis not performed in the related article. Further insights can be achieved by complementing this list with wearable models released after July 2017.


Assuntos
Monitores de Aptidão Física , Dispositivos Eletrônicos Vestíveis , Exercício Físico , Frequência Cardíaca , Punho
15.
Int J Med Inform ; 163: 104784, 2022 07.
Artigo em Inglês | MEDLINE | ID: mdl-35525127

RESUMO

BACKGROUND: Medical consultations are often critical meetings between patients and health personnel to provide treatment, health-management advice, and exchange of information, especially for people living with chronic diseases. The adoption of patient-operated Information and Communication Technologies (ICTs) allows the patients to actively participate in their consultation and treatment. The consultation can be divided into three different phases: before, during, and after the meeting. The difference is identified by the activities in preparation (before), the meeting, conducted either physically or in other forms of non-face-to-face interaction (during), and the follow-up activities after the meeting (after). Consultations can be supported by various ICT-based interventions, often referred to as eHealth, mHealth, telehealth, or telemedicine. Nevertheless, the use of ICTs in healthcare settings is often accompanied by security and privacy challenges due to the sensitive nature of health information and the regulatory requirements associated with storing and processing sensitive information. OBJECTIVE: This scoping review aims to map the existing knowledge and identify gaps in research about ICT-based interventions for chronic diseases consultations. The review objective is guided by three research questions: (1) which ICTs are used by people with chronic diseases, health personnel, and others before, during, and after consultations; (2) which type of information is managed by these ICTs; and (3) how are security and privacy issues addressed? METHODS: We performed a literature search in ACM, IEEE, PubMed, Scopus, and Web of Science and included primary studies published between January 2015 and June 2020 that used ICT before, during, and/or after a consultation for chronic diseases. This review presents and discusses the findings from the included publications structured around the three research questions. RESULTS: Twenty-four studies met the inclusion criteria. Only five studies reported the use of ICTs in all three phases: before, during, and after consultations. The main ICTs identified were smartphone applications, web-based portals, cloud-based infrastructures, and electronic health record systems. Different devices like sensors and wearable devices were used in 23 studies to gather diverse information. Regarding the type of information managed by these ICTs, we identified nine categories: physiological data, treatment information, medical history, consultation media like images or videos, laboratory results, reminders, lifestyle parameters, symptoms, and patient identification. Security issues were addressed in 20 studies, while only eight of the included studies addressed privacy issues. CONCLUSIONS: This scoping review highlights the potential for a new model of consultation for patients with chronic diseases. Furthermore, it emphasizes the possibilities for consultations besides physical and remote meetings. The scoping review also revealed a narrow focus on security and privacy. Security issues were more likely to be mentioned in the included publications, although with limited details. Future research should focus more on security and privacy due to the increasing amount of sensitive information gathered and used for consultations.


Assuntos
Tecnologia da Informação , Telemedicina , Doença Crônica , Comunicação , Humanos , Encaminhamento e Consulta , Tecnologia , Telemedicina/métodos
16.
JMIR Form Res ; 6(5): e27248, 2022 May 27.
Artigo em Inglês | MEDLINE | ID: mdl-35622397

RESUMO

BACKGROUND: Consumer-based activity trackers are increasingly used in research, as they have the potential to promote increased physical activity and can be used for estimating physical activity among participants. However, the accuracy of newer consumer-based devices is mostly unknown, and validation studies are needed. OBJECTIVE: The objective of this study was to compare the Polar Vantage watch (Polar Electro Oy) and Oura ring (generation 2; Oura Health Oy) activity trackers to research-based instruments for measuring physical activity, total energy expenditure, resting heart rate, and sleep duration in free-living adults. METHODS: A total of 21 participants wore 2 consumer-based activity trackers (Polar watch and Oura ring), an ActiGraph accelerometer (ActiGraph LLC), and an Actiheart accelerometer and heart rate monitor (CamNtech Ltd) and completed a sleep diary for up to 7 days. We assessed Polar watch and Oura ring validity and comparability for measuring physical activity, total energy expenditure, resting heart rate (Oura), and sleep duration. We analyzed repeated measures correlations, Bland-Altman plots, and mean absolute percentage errors. RESULTS: The Polar watch and Oura ring values strongly correlated (P<.001) with the ActiGraph values for steps (Polar: r=0.75, 95% CI 0.54-0.92; Oura: r=0.77, 95% CI 0.62-0.87), moderate-to-vigorous physical activity (Polar: r=0.76, 95% CI 0.62-0.88; Oura: r=0.70, 95% CI 0.49-0.82), and total energy expenditure (Polar: r=0.69, 95% CI 0.48-0.88; Oura: r=0.70, 95% CI 0.51-0.83) and strongly or very strongly correlated (P<.001) with the sleep diary-derived sleep durations (Polar: r=0.74, 95% CI 0.56-0.88; Oura: r=0.82, 95% CI 0.68-0.91). Oura ring-derived resting heart rates had a very strong correlation (P<.001) with the Actiheart-derived resting heart rates (r=0.9, 95% CI 0.85-0.96). However, the mean absolute percentage error was high for all variables except Oura ring-derived sleep duration (10%) and resting heart rate (3%), which the Oura ring underreported on average by 1 beat per minute. CONCLUSIONS: The Oura ring can potentially be used as an alternative to the Actiheart to measure resting heart rate. As for sleep duration, the Polar watch and Oura ring can potentially be used as replacements for a manual sleep diary, depending on the acceptable error. Neither the Polar watch nor the Oura ring can replace the ActiGraph when it comes to measuring steps, moderate-to-vigorous physical activity, and total energy expenditure, but they may be used as additional sources of physical activity measures in some settings. On average, the Polar Vantage watch reported higher outputs compared to those reported by the Oura ring for steps, moderate-to-vigorous physical activity, and total energy expenditure.

17.
Artigo em Inglês | MEDLINE | ID: mdl-35270607

RESUMO

People with intellectual disabilities have more sedentary lifestyles than the general population. Regular physical activity is of both medical and social importance, reducing the risk of cardiovascular disease and promoting functioning in everyday life. Exergames have been envisioned for promoting physical activity; however, most of them are not user-friendly for individuals with intellectual disabilities. In this paper, we report the design, development, and user acceptance of a mobile health solution connected to sensors to motivate physical activity. The system is mounted on an indoor stationary bicycle and an ergometer bike tailored for people with intellectual disabilities. The development process involved the application of user-centered design principles to customize the system for this group. The system was pilot-tested in an institutional house involving six end-users (intervention group) and demonstrated/self-tested to relatives of persons with ID and staff (supervision group). A System Usability Scale and open-ended interview in the supervision group were used to assess the user acceptance and perceived usefulness. Results indicate that the users with an intellectual disability enjoyed using the system, and that respondents believed it was a useful tool to promote physical activity for the users at the institution. The results of this study provide valuable information on beneficial technological interventions to promote regular physical activity for individuals with intellectual disabilities.


Assuntos
Deficiência Intelectual , Ciclismo , Exercício Físico , Jogos Eletrônicos de Movimento , Humanos
18.
Data Brief ; 41: 108003, 2022 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-35274029

RESUMO

Physical activity (PA) data were downloaded from 113 participants who owned a Garmin or Fitbit activity tracker in 2019 and 2020. Upon participant authorization, data were automatically downloaded from the Garmin and Fitbit cloud storages. The mSpider tool, a solution for automatic and continuous data extraction from activity tracker providers, were used to download participant data. Available data are daily averages by year, as well as monthly averages between 2019 and 2020, for steps, activity energy expenditure (AEE), total energy expenditure (TEE), moderate-to-vigorous physical activity (MVPA), light PA (LPA), moderate PA (MPA), vigorous PA (VPA), and sedentary time. In addition, March 2020 was divided in two, giving the daily average before and after the Norwegian COVID-19 lockdown date. Raw daily values for these variables are also included in a separate file. In addition, daily values for non-wear time are also include as raw data. In a previous study, differences between months, i.e., comparing 2019 with 2020 for months between March to December, were analysed for steps, MVPA, and AEE [1]. Further insights may be achieved by exploring other variables. This includes: (1) monthly averages for TEE, LPA, MPA, VPA, and sedentary time, (2) yearly averages (2019 and 2020) for steps, MVPA, TEE, AEE, LPA, MPA, VPA, and sedentary time (3) monthly average for steps, MVPA, TEE, AEE, LPA, MPA, VPA, and sedentary time for January, February, and March 2019, as well as March 2020. Additional analysis can also be conducted on the raw data.

19.
Front Digit Health ; 3: 600333, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34713087

RESUMO

Sickle cell disease (SCD) is the most common genetic blood disorder in the world and affects millions of people. With aging, patients encounter an increasing number of comorbidities that can be acute, chronic, and potentially lethal (e.g., pain, multiple organ damages, lung disease). Comprehensive and preventive care for adults with SCD faces disparities (e.g., shortage of well-trained providers). Consequently, many patients do not receive adequate treatment, as outlined by evidence-based guidelines, and suffer from mistrust, stigmatization or neglect. Thus, adult patients often avoid necessary care, seek treatment only as a last resort, and rely on self-management to maintain control over the course of the disease. Hopefully, self-management positively impacts health outcomes. However, few patients possess the required skills (e.g., disease-specific knowledge, self-efficacy), and many lack motivation for effective self-care. Health coaching has emerged as a new approach to enhance patients' self-management and support health behavior changes. Recent studies have demonstrated that conversational agents (chatbots) could effectively support chronic patients' self-management needs, improve self-efficacy, encourage behavior changes, and reduce disease-severity. To date, the use of chatbots to support SCD self-management remains largely under-researched. Consequently, we developed a high-fidelity prototype of a fully automated health coaching chatbot, following patient-important requirements and preferences collected during our previous work. We recruited a small convenience sample of adults with SCD to examine the usability and perceived usefulness of the system. Participants completed a post-test survey using the System Usability Scale and the Usefulness Scale for Patient Information Material questionnaire. Thirty-three patients participated. The majority (64%) was affected by the most clinically severe SCD genotypes (Hb SS, HbSß0). Most participants (94%) rated the chatbots as easy and fun to use, while 88% perceived it as useful support for patient empowerment. In the qualitative phase, 72% of participants expressed their enthusiasm using the chatbot, and 82% emphasized its ability to improve their knowledge about self-management. Findings suggest that chatbots could be used to promote the acquisition of recommended health behaviors and self-care practices related to the prevention of the main symptoms of SCD. Further work is needed to refine the system, and to assess clinical validity.

20.
Stud Health Technol Inform ; 281: 885-890, 2021 May 27.
Artigo em Inglês | MEDLINE | ID: mdl-34042801

RESUMO

The health and well-being of informal caregivers often take a backseat to those that they care for. While systems, technologies, and services that provide care and support for those with chronic illnesses are established and continuously improved, those that support informal caregivers are less explored. An international survey about motivations to use mHealth technologies was posted to online platforms related to chronic illnesses. We focused on responses regarding the facilitators and challenges of achieving health goals, including the use of mHealth technologies, for the subgroup who identified as "Caregivers". Findings indicate that mHealth technology is not yet the most important motivational factor for achieving health goals in this group, but greater future potential is suggested.


Assuntos
Cuidadores , Telemedicina , Doença Crônica , Humanos , Inquéritos e Questionários , Tecnologia
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