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1.
Nurse Educ Today ; 139: 106240, 2024 May 08.
Artigo em Inglês | MEDLINE | ID: mdl-38761466

RESUMO

BACKGROUND: Capability in nursing education is an emerging concept that includes various requisites, which can be applied in complex or unfamiliar clinical settings. Despite growing research for practising nurses, the requisites of capability for pre-registration nursing students entering the workforce remain unclear. OBJECTIVE: The objective was to identify the requisites that constitute capability for practice among pre-registration nursing students as well as the enablers to develop capabilities. DESIGN: A scoping review was performed using the Joanna Briggs Institute methodology. DATA SOURCES: Records published without date restriction were searched using MEDLINE, Embase, Emcare, CINAHL, and Scopus databases. Grey literature and reference list searching was conducted. REVIEW METHODS: Sources explicitly reporting requisites of capability or enablers of capability development in pre-registration nursing education were eligible. All global sources written in English and available in full text were included. Data were extracted and synthesised using a specifically designed extraction tool. RESULTS: The number of records reviewed totalled 896. Twenty-three studies met the criteria for inclusion in the synthesis. Nineteen capability requisites for practice were reported. Whilst various enablers to support development of capability requisites were reported, some challenges were also identified. CONCLUSION: This study identified requisites of capability for practice and enablers that may support development of capability in pre-registration nursing education. This holistic set of capabilities has previously not been reported. Given the emerging nature of the concept, this collective set of requisites may not be indicative of all required capabilities of nursing students upon graduation. Efforts to develop a definitive set of requisites and explore strategies to support and enable capability development are needed to advance this concept in the pre-registration nursing education context.

2.
Artigo em Inglês | MEDLINE | ID: mdl-38556962

RESUMO

INTRODUCTION: Secondary data analysis is a cost-effective, accessible, and efficient means of utilizing existing data to answer new research questions. METHOD: The manuscript provides an overview of the secondary data analysis process, as well as benefits and limitations inherent in the research method. RESULTS: An exemplar of pediatric focused research using a publicly available dataset is presented to facilitate understanding of the process. DISCUSSION: Novice and experienced researchers benefit from exploring the quantitative and qualitative secondary data analysis options available.

4.
J Am Med Inform Assoc ; 31(5): 1151-1162, 2024 Apr 19.
Artigo em Inglês | MEDLINE | ID: mdl-38427845

RESUMO

OBJECTIVE: The study aimed to characterize the experiences of primary caregivers of children with medical complexity (CMC) in engaging with other members of the child's caregiving network, thereby informing the design of health information technology (IT) for the caregiving network. Caregiving networks include friends, family, community members, and other trusted individuals who provide resources, information, health, or childcare. MATERIALS AND METHODS: We performed a secondary analysis of two qualitative studies. Primary studies conducted semi-structured interviews (n = 50) with family caregivers of CMC. Interviews were held in the Midwest (n = 30) and the mid-Atlantic region (n = 20). Interviews were transcribed verbatim for thematic analysis. Emergent themes were mapped to implications for the design of future health IT. RESULTS: Thematic analysis identified 8 themes characterizing a wide range of primary caregivers' experiences in constructing, managing, and ensuring high-quality care delivery across the caregiving network. DISCUSSION: Findings evidence a critical need to create flexible and customizable tools designed to support hiring/training processes, coordinating daily care across the caregiving network, communicating changing needs and care updates across the caregiving network, and creating contingency plans for instances where caregivers are unavailable to provide care to the CMC. Informaticists should additionally design accessible platforms that allow primary caregivers to connect with and learn from other caregivers while minimizing exposure to sensitive or emotional content as indicated by the user. CONCLUSION: This article contributes to the design of health IT for CMC caregiving networks by uncovering previously underrecognized needs and experiences of CMC primary caregivers and drawing direct connections to design implications.


Assuntos
Cuidadores , Informática Médica , Criança , Humanos , Cuidadores/psicologia , Pesquisa Qualitativa , Mid-Atlantic Region , Emoções
5.
J Pediatr Nurs ; 77: 53-62, 2024 Mar 12.
Artigo em Inglês | MEDLINE | ID: mdl-38479063

RESUMO

PURPOSE: Parents, who were working as essential frontline healthcare workers experienced unique stressors during the COVID-19 pandemic including disruption of regular routines, long lapses away from family, extreme work stress and subsequent difficulty in compartmentalizing work-related concerns when at home. The purpose of this study was to assess COVID-19 exposure and impact of frontline healthcare workers who are parents. DESIGN & METHODS: This study quantitatively assessed the COVID-19 exposure and impact and qualitatively explored perceptions of parents of children 9 to 17 years of age, who were also frontline healthcare workers. RESULTS: Participants (N = 79) using the COVID-19 Exposure and Family Impact Survey (CEFIS) reported exposure mean scores of 10.03 (SD = 2.63); and impact scores mean scores of 3.18 (SD = 0.46). Thematic analysis identified four themes, each with 2 subthemes: 1) family stressors increased (e.g., concerns about health and safety, losses of lifestyle patterns); 2) changes in children's health and well-being (e.g., isolation from family and friends, mental health problems); 3) virtual school difficulties (e.g., parent and student challenges, home school option); 4) skill building opportunities (e.g., enhanced emotional connections, increased family activities). CONCLUSION: The CHAMPS Family Health Study suggests that families of essential workers are especially vulnerable to the effect of COVID-19, as are those families of essential workers who include child/ren with special health care needs. PRACTICE IMPLICATIONS: Preparation for future emergencies requires strategies to mitigate consequences and promote well-being. These results highlight the need for supportive approaches to decrease the negative consequences of stress and to augment skills for family connection and cooperation.

6.
J Health Psychol ; : 13591053241235846, 2024 Mar 04.
Artigo em Inglês | MEDLINE | ID: mdl-38439512

RESUMO

Befriending services are often delivered to older adults with a view to improving social connectedness, but they may also lead to improved health. The objective of the current study was to explore potential mechanisms through which befriending services might impact the health of older adults. Data were collected from 13 befriendee-befriender dyads (n = 26), using a constructivist grounded theory and dyadic analytic approach. Potential mechanisms were described, using a realist evaluative framework of mechanistic processes in a complex intervention context. Five mechanisms of action triggered by the intervention were identified: supporting health behaviours; providing emotional support; improving mood; getting cognitive stimulation and novelty; and providing opportunities for socialising. We identified five potential mechanisms through which befriending services might impact health for older people. Our results suggest potential mechanisms through which befriending might positively impact the health of older people, and which should be evaluated empirically in future research.

7.
Hosp Pediatr ; 14(2): 108-115, 2024 Feb 01.
Artigo em Inglês | MEDLINE | ID: mdl-38173406

RESUMO

OBJECTIVES: To explore the benefits and challenges of accessing physicians' notes during pediatric hospitalization across parents of different health literacy levels. METHODS: For this secondary analysis, we used semi-structured interviews conducted with 28 parents on their impressions of having access to their child's care team notes on a bedside table. Three researchers used thematic analysis to develop a codebook, coded interview data, and identified themes. Parent interviews and respective themes were then dichotomized into proficient or limited health literacy groups and compared. RESULTS: Nine themes were identified in this secondary analysis: 6 benefits and 3 challenges. All parents identified more benefits than challenges, including that the notes served as a recap of information and memory aid and increased autonomy, empowerment, and advocacy for their child. Both groups disliked receiving bad news in notes before face-to-face communication. Parents with proficient literacy reported that notes allowed them to check information accuracy, but that notes may not be as beneficial for parents with lower health literacy. Parents with limited literacy uniquely identified limited comprehension of medical terms but indicated that notes facilitated their understanding of their child's condition, increased their appreciation for their health care team, and decreased their anxiety, stress, and worry. CONCLUSIONS: Parents with limited health literacy uniquely reported that notes improved their understanding of their child's care and decreased (rather than increased) worry. Reducing medical terminology may be one equitable way to increase note accessibility for parents across the health literacy spectrum.


Assuntos
Letramento em Saúde , Médicos , Humanos , Criança , Pais , Comunicação , Percepção
8.
Aging Ment Health ; 28(1): 23-35, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-37485984

RESUMO

Objective: This systematic review and meta-analysis aimed to investigate the effect of mindfulness-based intervention (MBI) on cognitively unimpaired older adults' cognitive function and sleep quality.Method: Studies published in English since 2010 were considered for inclusion. Databases searched were PubMed, Embase, Web of Science, and PsycInfo. We included randomized controlled trials (RCTs) with adults over 55 with no known cognitive impairment, that recorded cognitive outcomes and/or sleep quality pre- and post-intervention, and that implemented Mindfulness-Based Stress Reduction (MBSR), or an MBI closely based on MBSR protocol.Results: Seven RCTs fit the inclusion criteria, with 276 participants in MBI groups and 287 in controls. Four studies investigated mindfulness and cognitive function, two investigated mindfulness and sleep quality, and one investigated mindfulness, cognitive function, and sleep quality. Some studies were not reported in sufficient detail to be included in meta-analyses. Results of meta-analyses showed no significant differences between MBI groups vs controls on cognitive measures of executive function, free recall, and delayed recall. Meta-analysis revealed that MBI significantly improved sleep quality compared to controls.Conclusion: Given that poor sleep quality is strongly linked to increased risk of cognitive decline, further research investigating sleep quality's role in the mindfulness-cognitive function relationship in cognitively unimpaired older adults is recommended.


Assuntos
Disfunção Cognitiva , Atenção Plena , Distúrbios do Início e da Manutenção do Sono , Idoso , Humanos , Cognição , Disfunção Cognitiva/terapia , Atenção Plena/métodos , Qualidade do Sono
9.
Plant Dis ; 108(2): 291-295, 2024 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-37755419

RESUMO

Tomato (Solanum lycopersicum L., family Solanaceae) represents one of the most economically valuable horticultural crops worldwide. Tomato production is affected by numerous emerging plant viruses. We identified, for the first time in New Zealand (NZ), Pepino mosaic virus (PepMV) in greenhouse grown tomato crops using a combination of methods from electron microscopy and herbaceous indexing to RT-qPCR and high-throughput sequencing. Phylogenetic and genomic analysis of a near-complete PepMV genome determined that the detected strain belonged to the mild form of the CH2 lineage of the virus. Subsequently, a delimiting survey of PepMV was conducted, and PepMV was detected at four additional locations. PCR-derived sequences obtained from samples collected from different greenhouses and from herbaceous indicator plants were identical to the original sequence. Since PepMV has never been reported in NZ before, seed pathways are speculated to be the most likely source of entry into the country.


Assuntos
Potexvirus , Solanum lycopersicum , Filogenia , Nova Zelândia , Doenças das Plantas
10.
Acad Med ; 99(3): 331-339, 2024 Mar 01.
Artigo em Inglês | MEDLINE | ID: mdl-38039978

RESUMO

PURPOSE: A substantial body of evidence describes the multidimensional relationship between the intersection of physicians' work and personal lives and health care quality and costs, workforce sustainability, and workplace safety culture. However, there is no clear consensus on the terms, definitions, or measures used in physician work-personal intersection (WPI) research. In this scoping review, the authors aimed to describe the terms and definitions used by researchers to describe physician WPI, summarize the measurement tools used, and formulate a conceptual model of WPI that can inform future research. METHOD: The authors searched PubMed, CINAHL, Scopus, and Web of Science for studies that investigated U.S. practicing physicians' WPI and measured WPI as an outcome from January 1990 to March 2022. The authors applied thematic analysis to all WPI terms, definitions, and survey questions or prompts in the included studies to create a conceptual model of physician WPI. RESULTS: Ultimately, 102 studies were included in the final analysis. The most commonly used WPI terms were work-life balance, work-life integration, and work-home or work-life conflict(s). There was no consistency in the definition of any terms across studies. There was heterogeneity in the way WPI was measured, and only 8 (7.8%) studies used a validated measurement tool. The authors identified 6 key driver domains of WPI: work and personal demands; colleague and institutional support and resources; personal identity, roles, health, and values; work schedule and flexibility; partner and family support; and personal and professional strategies. CONCLUSIONS: The authors found significant variability in the terms, definitions, and measures used to study physician WPI. They offer a conceptual model of the WPI construct that can be used to more consistently study physician WPI in the future. Future work should further investigate the validity of this model and generate consensus around WPI terms, definitions, and measures.


Assuntos
Médicos , Humanos , Local de Trabalho , Inquéritos e Questionários , Consenso , Qualidade da Assistência à Saúde
11.
J Adolesc Health ; 74(1): 155-160, 2024 01.
Artigo em Inglês | MEDLINE | ID: mdl-37831050

RESUMO

PURPOSE: In 2021, federal guidelines mandated that health-care organizations share clinicians' notes with patients to increase information transparency. While findings indicate advantages for adult patients, less is known about note-sharing from the viewpoint of adolescents. This study aims to identify adolescent, parent, and clinician perspectives on the anticipated benefits and concerns of giving adolescents access to clinicians' notes and strategies to support note-sharing in this population. METHODS: We conducted six focus groups with adolescents, parents, and clinicians at a children's hospital from May to October 2021. A semistructured facilitator guide captured participant perspectives of note-sharing benefits, concerns, and strategies. Two researchers independently coded and analyzed transcript data using thematic analysis; a third researcher reconciled discrepancies. RESULTS: 38 stakeholders (17 adolescents, 10 parents, and 11 clinicians) described four benefits, three concerns, and four implementation strategies regarding adolescent note-sharing. Potential benefits included adolescents using notes to remember and reinforce the visit, gaining knowledge about their health, strengthening the adolescent-clinician relationship, and increasing agency in health care decisions. Concerns included notes leading to a breach in confidentiality, causing negative emotions, and becoming less useful for clinicians. Strategies included making note-sharing more secure, optimizing note layout and content, setting clear expectations, and having a portion of the note for clinician use only. DISCUSSION: Stakeholders suggest multiple strategies to optimize the implementation of note-sharing to support adolescent patients, parents, and clinicians as hospitals work to comply with federal regulations. These strategies may reinforce the potential benefits and mitigate the challenges of sharing notes with adolescent patients.


Assuntos
Registros Eletrônicos de Saúde , Pais , Adulto , Criança , Humanos , Adolescente , Comunicação , Confidencialidade , Grupos Focais
12.
Hosp Pediatr ; 13(11): e365-e370, 2023 11 01.
Artigo em Inglês | MEDLINE | ID: mdl-37885421

RESUMO

As pediatrics hospitalists, we care for a diverse population of hospitalized children with increasing acuity and complexity in large, multidisciplinary medical teams. In this Method/ology paper, we summarize how human factors engineering (HFE) can provide a framework and tools to help us understand and improve our complex care processes and resulting outcomes. First, we define and discuss the 3 domains of HFE (ie, physical, cognitive, and organizational) and offer examples of HFE's application to pediatric hospital medicine. Next, we highlight an HFE-based framework, the Systems Engineering for Patient Safety model, which conceptualizes how our work system shapes health care processes and outcomes. We provide tools for leveraging this model to better understand the context in which our work is done, which, consequently, informs how we design our systems and processes to improve the quality and safety of care. Finally, we outline the basics of human-centered design and highlight a case study of a project completed in a pediatric hospital setting focused on making rounds more family-centered. In addition, we provide resources for those interested in learning more about HFE.


Assuntos
Medicina Hospitalar , Médicos Hospitalares , Humanos , Criança , Atenção à Saúde , Ergonomia , Hospitais Pediátricos
14.
Appl Ergon ; 113: 104105, 2023 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-37541103

RESUMO

Designing health IT aimed at supporting team-based care and improving patient safety is difficult. This requires a work system (i.e., SEIPS) evaluation of the technology by care team members. This study aimed to identify work system barriers and facilitators to the use of a team health IT that supports care transitions for pediatric trauma patients. We conducted an analysis on 36 interviews - representing 12 roles - collected from a scenario-based evaluation of T3. We identified eight dimensions with both barriers and facilitators in all five work system elements: person (experience), task (task performance, workload/efficiency), technology (usability, specific features of T3), environment (space, location), and organization (communication/coordination). Designing technology that meets every role's needs is challenging; in particular, when trade-offs need to be managed, e.g., additional workload for one role or divergent perspectives regarding specific features. Our results confirm the usefulness of a continuous work system approach to technology design and implementation.


Assuntos
Comunicação , Informática Médica , Humanos , Criança , Segurança do Paciente , Análise e Desempenho de Tarefas , Tecnologia
15.
J Hosp Med ; 18(9): 777-786, 2023 09.
Artigo em Inglês | MEDLINE | ID: mdl-37559415

RESUMO

BACKGROUND: Children with medical complexity (CMC) experience adverse events due to multiorgan impairment, frequent hospitalizations, subspecialty care, and dependence on multiple medications/equipment. Their families are well-versed in care and can help identify safety/quality gaps to inform improvements. Although previous studies have shown families identify important safety/quality gaps in hospitals, studies of inpatient safety/quality experience of CMC and their families are limited. To address this gap and identify otherwise unrecognized, family-prioritized areas for improving safety/quality of CMC, we conducted a secondary qualitative analysis of safety reporting surveys among families of CMC. OBJECTIVE: Explore safety reports from families of hospitalized CMC to identify areas to improve safety/quality. DESIGNS, SETTINGS AND PARTICIPANTS: We analyzed free-text responses from predischarge safety reporting surveys administered to families of CMC at a quaternary children's hospital from April 2018 to November 2020. Using a qualitative descriptive approach, we categorized responses into standard clinical categories. Three team members inductively generated an initial codebook to apply iteratively to responses. Reviewers coded responses collaboratively, resolved discrepancies through consensus, and generated themes. MAIN OUTCOME AND MEASURES: Outcomes: family-reported areas of safety/quality improvement. MEASURES: pre-discharge family surveys. RESULTS: Two hundred and eight/two hundred and thirty-seven (88%) families completed surveys; 83 families offered 138 free-text safety responses about medications, feeds, cares, and other categories. Themes included unmet expectations of hospital care/environment, lack of consistency, provider-patient communication lapses, families' expertise about care, and the value of transparency. CONCLUSION: To improve care of CMC and their families, hospitals can manage expectations about hospital limitations, improve consistency of care/communication, acknowledge family expertise, and recognize that family-observed quality concerns can have safety implications. Soliciting family input can help hospitals improve care in meaningful, otherwise unrecognized ways.


Assuntos
Criança Hospitalizada , Hospitalização , Criança , Humanos , Alta do Paciente , Comunicação , Hospitais Pediátricos
16.
Pediatrics ; 152(Suppl 1)2023 07 01.
Artigo em Inglês | MEDLINE | ID: mdl-37394510

RESUMO

OBJECTIVE: School attendance by children with medical complexity (CMC) may be influenced by parent perceptions of their child's risk for coronavirus disease 2019 (COVID-19). The authors of this study aimed to quantify in-person school attendance and identify attendance predictors. METHODS: From June to August 2021, surveys were collected from English- and Spanish-speaking parents of children aged 5 to 17 years with ≥1 complex chronic condition who received care at an academic tertiary children's hospital in the Midwestern United States and who attended school prepandemic. The outcome, in-person attendance, was defined dichotomously as any in-person attendance versus none. We evaluated parent-perceived school attendance benefits, barriers, motivation, and cues, COVID-19 severity and susceptibility using survey items derived from the health belief model (HBM). Latent HBM constructs were estimated with exploratory factor analysis. Associations between the outcome and the HBM were evaluated with multivariable logistic regression and structural equation models. RESULTS: Among 1330 families (response rate 45%), 19% of CMC were not attending in-person school. Few demographic and clinical variables predicted school attendance. In adjusted models, family-perceived barriers, motivation, and cues predicted in-person attendance, whereas benefits, susceptibility, and severity did not. The predicted probability (95% confidence interval) of attendance ranged from 80% (70% to 87%) for high perceived barriers to 99% (95% to 99%) for low perceived barriers. Younger age (P <.01) and previous COVID-19 infection (P = .02) also predicted school attendance. CONCLUSIONS: Overall, 1 in 5 CMC did not attend school at the end of the 2020 to 2021 academic year. Family perceptions of schools' mitigation policies and encouragement of attendance may be promising avenues to address this disparity.


Assuntos
COVID-19 , Humanos , Criança , Instituições Acadêmicas , Pais , Inquéritos e Questionários , Meio-Oeste dos Estados Unidos
17.
Nurs Educ Perspect ; 44(6): E18-E24, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37404060

RESUMO

AIM: The aim of this study was to examine the effect of structured reflection used during a simulated patient's diagnostic workup on diagnostic reasoning competency and accuracy and explore participants' cognitive bias experience and perceived utility of structured reflection. BACKGROUND: Reasoning flaws may lead to diagnostic errors. Medical learners who used structured reflection demonstrated improved diagnosis accuracy. METHOD: Embedded mixed-methods experiment examined diagnostic reasoning competency and accuracy of nurse practitioner students who did and did not use structured reflection. Cognitive bias experience and perceptions of structured reflection's utility were explored. RESULTS: Diagnostic Reasoning Assessment mean competency scores and categories were not changed. Accuracy trended toward improvement with structured reflection. The theme, diagnostic verification, prompted diagnosis change by both structured reflection users and control participants. CONCLUSION: Despite no changes in quantitative outcomes, explicit users of structured reflection believed that this strategy is helpful to their reasoning, and control participants used the strategy's components with the same noted benefits.

18.
Zootaxa ; 5270(1): 1-47, 2023 Apr 19.
Artigo em Inglês | MEDLINE | ID: mdl-37518179

RESUMO

Seamounts on subantarctic New Zealand's Macquarie Ridge, including parts of Australia's Exclusive Economic Zone surrounding Macquarie Island, have been demonstrated to be a rich source of new species of carnivorous sponges (Demospongiae Sollas, Poecilosclerida Topsent, Cladorhizidae Dendy). Four new species of Abyssocladia Lévi, 1964, are described from Macquarie Ridge seamounts and at other disparate locations: Abyssocladia lanceola sp. nov. from Seamounts 7, 8, and 9 (Australia EEZ), Seamount 10 (International Waters), and the South Tasman Rise; Abyssocladia rowdeni sp. nov., first collected from diffuse hydrothermal vent sites at Brothers Seamount on the Southern Kermadec Ridge and recorded here from the non-venting seamounts on Chatham Rise to the east of the South Island of New Zealand; Abyssocladia tumulorum sp. nov., found exclusively on the Chatham Rise; and Abyssocladia sonnae sp. nov. from Monowai Seamount on the Tonga-Kermadec Ridge in International Waters, also found, surprisingly, on Macquarie Ridge's Seamount 8 (Australia EEZ). Patriciacladia gen. nov. has been established for a new species of Cladorhizidae discovered on Macquarie Ridge and Chatham Rise. Patriciacladia enigmatica gen. et sp. nov. is highly unusual in that it possesses palmate isochelae not typically found in Cladorhizidae and has a long branch in phylogenetic analysis of the family, supporting the establishment of a new genus and species for Abyssocladia n. sp. B (QM G339872, was NIWA 41033): 28S rDNA: LN870583, COI: LN870445, Macquarie Ridge) in Hestetun et al. (2016a: table 1; 2017: fig. 15). The discovery of two new species, again from the Macquarie Ridge and other New Zealand locations, expands support for the establishment of a new genus, Australocladia gen. nov., which contains several additional species nested as a monophyletic clade within the large, heterogenous, and paraphyletic Abyssocladia clade in molecular phylogenetic analyses. Australocladia sphaerichela gen. et sp. nov. and Au. alopecura gen. et sp. nov. both possess spherical abyssochelae, funnel-shaped expansions which may contain spermatophores on the body, substrongyles in the attachment base, and a generally southern hemisphere distribution.


Assuntos
Carnivoridade , Poríferos , Animais , Filogenia , Nova Zelândia , Austrália
19.
Zootaxa ; 5277(1): 182-192, 2023 May 01.
Artigo em Inglês | MEDLINE | ID: mdl-37518324

RESUMO

In the present study, we describe two new species of Corallistidae from Brazil, comparing them to all valid species of the respective genera. Both are notable Porifera records, with the first specimen of Neophrissospongia Pisera and Lévi, 2002 registered for the Brazilian coast and the first specimen of Awhiowhio Kelly, 2007 registered for the Atlantic Ocean. The specimens were preserved in 80% ethanol and analyzed following classical procedure for Demospongiae, with dissociated spicule mounts, skeletal sections and Scanning Electron Microscopy. Neophrissospongia jorgeorum sp. nov. is differentiated from its congeners by the categories of spicules present, especially the lack of streptasters/amphiasters. Awhiowhio saci sp. nov. is characterized especially by the presence of spiraster-shaped microrhabds and microxeas.


Assuntos
Poríferos , Animais , Estrelas-do-Mar
20.
Acad Pediatr ; 23(8): 1535-1541, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37302701

RESUMO

OBJECTIVE: To describe the process of identifying and reporting inpatient safety concerns from the perspective of parents of children with medical complexity (CMC). METHODS: We conducted a secondary analysis of qualitative data from semi-structured interviews with 31 English and Spanish-speaking parents of CMC at two tertiary children's hospitals. Interviews lasted 45-60 minutes and were audio-recorded, translated, and transcribed. Three researchers inductively and deductively coded transcripts using an iteratively refined codebook with validation by a fourth researcher. Thematic analysis was used to develop a conceptual model of the process of inpatient parent safety reporting. RESULTS: We identified four steps illustrating the process of inpatient parent safety concern reporting 1) parent recognizing concern, 2) parent reporting concern, 3) staff/hospital response continuum, and 4) parent feelings of validation/invalidation. Many parents endorsed that they were the first to catch a safety concern and were identified as unique reporters of safety information. Parents typically described reporting their concerns verbally and in real-time to the person they felt could quickly remedy the situation. There was a spectrum of validation. Some parents reported their concerns were not acknowledged and addressed, which led them to feel overlooked, disregarded, or judged. Others reported their concerns were acknowledged and addressed, resulting in parents feeling heard and seen and often leading to changes in clinical care. CONCLUSIONS: Parents described a multi-step process of reporting safety concerns during hospitalization and a spectrum of staff response and validation. These findings can inform family-centered interventions that support safety concern reporting in the inpatient setting.


Assuntos
Hospitalização , Pacientes Internados , Humanos , Criança , Pais , Hospitais Pediátricos , Atitude Frente a Saúde
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