Your browser doesn't support javascript.
loading
Mostrar: 20 | 50 | 100
Resultados 1 - 2 de 2
Filtrar
Mais filtros








Base de dados
Intervalo de ano de publicação
1.
Bioethics ; 6(4): 317-30, 1992 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-11652093

RESUMO

CONCLUSION: Genetic knowledge is now in the public domain and its interpretation by the media and the citizens brings the issues into the public forum of discussion for the necessary ethical, legal and socio-cultural evaluation of its application. Science is being perceived by some as dangerous and as requiring international regulation. Others feel that genetic knowledge will be the breakthrough that will permit medical progress and individual autonomy with regards to personal health and lifestyle choices. The mapping of the human genome has already yielded valuable information on an increasing number of diseases and their variants. Prevailing popular and journalistic archetypes ("imaginaires") used in the media are perceived by the producers as slowing down the possible application of genetic knowledge. The answers to these dilemmas are not readily apparent nor are they prescribed by classical philosophy of medicine. Since genetic knowledge eventually resides with the individual who carries the genes of disease and/or susceptibility, a logical approach to integration of this knowledge at a societal level would seem to reside with individual education and decision-making. The politics of the ensuing social debate could transform the current social contract since an individual's interests need to be balanced against those of his or her immediate family in the sharing of information. The ethical foundations of such a contract requires the genetic education of "Everyone" as a matter of urgent priority. Genetic education should not serve ideological power struggles between the medical establishment and the ethical-legal alliance. Instead, it should ensure the transfer of knowledge to physicians, to patients, to users, to planners, to social science and humanities researchers and to politicians, so that they may make "informed" and free decisions....


Assuntos
Epidemiologia , Doenças Genéticas Inatas , Testes Genéticos , Genética , Projeto Genoma Humano , Sequência de Bases , Confidencialidade , Análise Custo-Benefício , Bases de Dados Factuais , Eugenia (Ciência) , Liberdade , Pool Gênico , Aconselhamento Genético , Saúde , Educação em Saúde , Heterozigoto , Humanos , Disseminação de Informação , Serviços de Informação , Cooperação Internacional , Internacionalidade , Programas de Rastreamento , Autonomia Pessoal , Formulação de Políticas , Prevalência , Privacidade , Saúde Pública , Política Pública , Justiça Social , Bancos de Tecidos
2.
J Int Bioethique ; 2(1): 5-12, 1991.
Artigo em Inglês | MEDLINE | ID: mdl-11651052

RESUMO

As we head into the next decade, the impact of the use of genetic screening programs for immunological surveillance purposes (such as for HIV) and for possible DNA typing should not be underestimated. The authors present ten principles which seek to reaffirm the basic tenents of neonatal screening programs -- the benefit of newborns. These principles are both protective and yet open to the complex ethical and social considerations raised by such new uses of newborn genetic screening programs.


Assuntos
Testes Genéticos , Recém-Nascido , Programas de Rastreamento , Política Pública , Padrões de Referência , Coerção , Confidencialidade , Impressões Digitais de DNA , Bases de Dados Factuais , Bases de Dados de Ácidos Nucleicos , Atenção à Saúde , Epidemiologia , Humanos , Consentimento Livre e Esclarecido , Cooperação Internacional , Internacionalidade , Programas Obrigatórios , Consentimento dos Pais , Assistência ao Paciente , Medicina Preventiva , Saúde Pública , Risco , Medição de Risco , Justiça Social , Consentimento do Representante Legal , Bancos de Tecidos , Programas Voluntários
SELEÇÃO DE REFERÊNCIAS
DETALHE DA PESQUISA