Psychological challenges and quality of life in Pakistani parents of children living with thalassemia.

PURPOSE: Children living with thalassemia experience psychological challenges, but despite significant psychosocial burdens, caregivers' psychological wellbeing and quality of life remain understudied, particularly in lower-and-middle-income countries. DESIGN AND METHOD: The current study evaluated these relationships in 100 male and female Pakistani caregivers (23-45 years; 61% female) using Ryff's Psychological Well-Being Scale and the Singapore Caregiver Quality of Life Scale. Caregivers completed questionnaires during regularly scheduled clinic visits for their child. RESULTS: We found that Pakistani caregivers in our sample generally had significantly lower (30-40 points) quality of life than a referent sample of caregivers of older adults (ps < 0.001). Self-acceptance and personal growth were consistently significant predictors across quality of life domains. Further, significant interactions were observed. Female caregivers with less self-acceptance had worse mental health and wellbeing and impact on daily life (p < .05). Male caregivers with less personal growth had worse physical health wellbeing (p < .05). CONCLUSIONS: Our results demonstrate the importance of considering how distinct aspects of psychological wellbeing, rather than just the overall score, relate to the specific quality of life domains among male and female caregivers. PRACTICE IMPLICATIONS: Pediatric nurses are at the frontline of service delivery for children and are in a prime position to observe caregivers who could be at high risk for psychological challenges. Given our findings, future clinical interventions should prioritize support services promoting personal growth and self-acceptance for Pakistani caregivers of children living with thalassemia.

Neuropsychological functioning in children with and without specific learning disorder.

OBJECTIVE: To investigate neuropsychological functioning in children with and without Specific Learning Disorder. METHODS: The comparative cross-sectional study was conducted in schools affiliated with Punjab Education Foundation, Gujrat, Pakistan, from January -to June 2019, and comprised children diagnosed with Specific Learning Disorder and age-matched and class matched high achievers as controls. Bender Gestalt Test II with copy test, recall test, perceptual test and motor test subscales was administered on both the groups for the assessment of neuropsychological functioning. Data was analysed using SPSS 21. RESULTS: Of 116 subjects, 64(55.2%) were cases and 52(44.8%) controls. Overall, there were 64(55.2%) girls and 52(44.8%) boys with a mean age of 10.41±1.14. There was significant difference on recall test (p<0.01) between the groups which had 100% predictive power. CONCLUSIONS: Memory function was significantly impaired in children with Specific Learning Disorder.