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1.
Adapt Phys Activ Q ; 38(2): 307-328, 2021 04 01.
Artigo em Inglês | MEDLINE | ID: mdl-33596544

RESUMO

The purpose of this study was to examine the experiences of people with Parkinson's (PwP) and their care partners (CPs) who participated in a Parkinson's-focused community dance class in a northeastern state of the United States. In this qualitative inquiry, participants included five PwP and their respective CPs (n = 5). Three major, recurrent, and interrelated themes emerged from the data. These themes were (a) keep moving, (b) compassion in action, and (c) acceptance and freedom in dance. These themes captured personal and environmental factors that influenced the participation of PwP and their CPs in a dance class and how they perceived that dance influenced their quality of life. The themes described the obstacles, motives, and perceived outcomes of participating in dance. The findings emphasize the need for future dance interventions and programs that consider the CPs' role in promoting participation for PwP in dance classes.


Assuntos
Dança , Doença de Parkinson , Cuidadores , Humanos , Doença de Parkinson/terapia , Pesquisa Qualitativa , Qualidade de Vida
2.
Disabil Rehabil ; 41(3): 357-365, 2019 02.
Artigo em Inglês | MEDLINE | ID: mdl-29069992

RESUMO

PURPOSE: Physical activity (PA) provides multiple benefits to children with visual impairments (VI) and their families. However, the empirical literature base is underdeveloped on how family PA experiences impact participation for children with VI. The purpose of this study was two-fold; that is: (a) to explore why families with children with VI seek out and participate in PA, and (b) to describe the strategies and supports needed by families of children with VI to improve PA participation. METHOD: The research method was descriptive-qualitative positioned in the theoretical framework of the theory of planned behavior. Participants were parents of children with VI (n = 10) who took part in one-on-one semi-structured telephone interviews. Interview recordings were transcribed and analyzed using a thematic line-by-line analysis. RESULTS: Three salient, recurrent, and interrelated themes emerged from the data analyses. These themes were: (a) committed, (b) challenged, and (c) access. CONCLUSIONS: Findings revealed that parents valued PA, but they lacked the skills to teach and advocate for their children regarding PA. As a consequence, parents voiced the need for a support system that would allow their families to be more physically active. Implications for Rehabilitation Results of this study demonstrated that parents valued physical activity, but they lacked the skills necessary to confidently engage their children in physical activity. Physical activity interventions are needed to enhance the quality of life of children with visual impairments and their families. Physical activity programs and interventions are most likely to enhance intentions to engage in physical activity among children with visual impairments and their parents. Results demonstrated that parents of children with visual impairments were interested to work side-by-side with physical activity professionals to enhance recreational physical activity opportunities available to their children.


Assuntos
Cegueira , Crianças com Deficiência , Exercício Físico , Saúde da Família , Participação do Paciente , Qualidade de Vida , Adulto , Cegueira/psicologia , Cegueira/reabilitação , Criança , Crianças com Deficiência/psicologia , Crianças com Deficiência/reabilitação , Feminino , Humanos , Intenção , Masculino , Avaliação das Necessidades , Pais/psicologia , Participação do Paciente/métodos , Participação do Paciente/estatística & dados numéricos
3.
Adapt Phys Activ Q ; 35(4): 361-380, 2018 Oct 01.
Artigo em Inglês | MEDLINE | ID: mdl-30369246

RESUMO

Despite having the desire to become physically active as a family, parents of children with visual impairments often lack the skills and resources needed to provide appropriate physical activities (PAs) for their children. The purpose of this study was to explore the intentions of parents of children with visual impairments toward including their children in PAs after participating in a PA program. In this descriptive qualitative study, the participants were 10 parents of children with visual impairments. A series of workshops were designed to provide parents with the skills and resources needed to promote PA for their family. Upon completion of the workshops, parents took part in one-on-one semistructured interviews that were subsequently transcribed and analyzed using a thematic line-by-line process. Two interdependent themes emerged from the data analyses: (a) eye-opening experiences and (b) transformed, more hopeful, and optimistic outlook. The results revealed that through the PA intervention, parents learned teaching strategies that were intended to increase their PA opportunities and garnered resources that allowed them to teach their children to participate in PA.


Assuntos
Crianças com Deficiência/psicologia , Exercício Físico , Conhecimentos, Atitudes e Prática em Saúde , Intenção , Pais/psicologia , Pessoas com Deficiência Visual/psicologia , Adulto , Criança , Pré-Escolar , Humanos , Pessoa de Meia-Idade , Pesquisa Qualitativa
4.
J Autism Dev Disord ; 48(2): 625-631, 2018 02.
Artigo em Inglês | MEDLINE | ID: mdl-29119519

RESUMO

We examined the association between physical activity (PA), body mass index (BMI) and novel measures of subclinical cardiovascular disease (CVD) in 15 children with autism spectrum disorder (ASD) (mean age 7 ± 2 years, 2 girls). PA was objectively assessed using accelerometry as time spent in moderate-vigorous physical activity (MVPA). Arterial stiffness was measured via aortic pulse wave velocity (PWV) and taken as a marker of subclinical CVD risk. MVPA was inversely associated with aortic PWV (r = - 0.46, p < 0.05). BMI percentile was positively associated with aortic PWV (r = 0.61, p < 0.05). Overall findings suggest that reduced PA and higher body mass in children with ASD are associated with increased arterial stiffness which may have a detrimental impact on overall cardiovascular health.


Assuntos
Transtorno do Espectro Autista/fisiopatologia , Índice de Massa Corporal , Exercício Físico/fisiologia , Rigidez Vascular/fisiologia , Acelerometria , Criança , Pré-Escolar , Estudos Transversais , Feminino , Humanos , Masculino , Análise de Onda de Pulso
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