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1.
Artigo em Inglês | MEDLINE | ID: mdl-36293782

RESUMO

The current study explored the process of change in Stepping Stones Triple P (SSTP) using a community-based sample of 891 families of children with developmental disabilities (DD) who participated in an SSTP intervention at a community level. A preliminary analysis of outcome data indicated that SSTP intervention was effective in reducing parental adjustment difficulties, coercive parenting, and children's behavioral and emotional difficulties immediately after the intervention. The effects were maintained at 12-month follow-up. The results also indicated that change in parental adjustment over the course of intervention was significantly associated with a change in parenting behaviors. However, change in parenting behaviors but not change in parental adjustment, predicted children's behavioral and emotional problems following the intervention. The results suggest that positive parenting skills are the most salient ingredient driving the change in child behaviors in SSTP interventions.


Assuntos
Transtornos do Comportamento Infantil , Poder Familiar , Criança , Humanos , Poder Familiar/psicologia , Transtornos do Comportamento Infantil/psicologia , Comportamento Infantil/psicologia
2.
Res Dev Disabil ; 128: 104304, 2022 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-35820264

RESUMO

BACKGROUND: Explores the validity of the five-item parental adjustment scale, a subscale of the previously validated Parenting and Family Adjustment Scales. AIM: The aim was to assess the factor structure and convergent validity of a measure of parental adjustment within parents of typically developing children and parents of childiren with developmental and/or intellectual disabilities. METHODS AND PROCEDURES: Cross-sectional survey data was analysed from Australian parents of children aged 2-12 years who were typically developing children (N = 683) and had developmental and/or intellectual disabilities (N = 756). Confirmatory factor analyses and multi-group structural equation modelling examined if the factor structure performed similarly across the two populations. Convergent validity was assessed. OUTCOMES AND RESULTS: The confirmatory factor analysis supported the hypothesised one-factor structure for the parental adjustment scale in both populations. Partial measurement invariance confirmed that the scale was structurally consistent within both parent groups. The convergent validity was supported by significant correlations with the DASS-21 in the disability population and the K10 in the typically developing population. CONCLUSIONS AND IMPLICATIONS: This brief, easily administered, five-item scale demonstrates strong potential in assessing parental adjustment, within both parents of typically developing children and parents of children with developmental and/or intellectual disabilities.


Assuntos
Deficiência Intelectual , Austrália , Criança , Estudos Transversais , Deficiências do Desenvolvimento/diagnóstico , Humanos , Poder Familiar , Pais , Psicometria/métodos , Inquéritos e Questionários
3.
J Autism Dev Disord ; 51(10): 3637-3650, 2021 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-33389304

RESUMO

Families often face financial and geographical barriers to services for children with autism. The current study explored the effectiveness of a parent-supported adaptation of the computer game-based social skills program Secret Agent Society (SAS). Seventy child-parent dyads were randomized to SAS (n = 35) or a caregiver-supported cognitive skills training game (CIA-control comparison; n = 35), both completed over 10 weeks. Child participants were on the autism spectrum and aged seven to 12 years (60 boys, 10 girls). SAS participants improved more than CIA participants on parent-rated social skills and problem behaviors and teacher-rated social skills. Findings suggest the intervention may be a convenient, cost-effective therapeutic approach, especially during times of restricted face-to-face service access, such as COVID-19.


Assuntos
Transtorno do Espectro Autista , Transtorno Autístico , COVID-19 , Jogos de Vídeo , Transtorno do Espectro Autista/terapia , Criança , Feminino , Humanos , Masculino , SARS-CoV-2 , Habilidades Sociais
4.
Autism ; 25(4): 995-1008, 2021 05.
Artigo em Inglês | MEDLINE | ID: mdl-33238718

RESUMO

LAY ABSTRACT: Children on the autism spectrum may experience difficulties with the regulation of attention, thoughts, emotions, and behavior, understanding, and expressing their emotions appropriately, as well as anxiety, and sleep. In autism research, contemplative practices that work through both body and mind have shown tentatively promising results. However, there are limited studies on this topic, and the use of yoga to facilitate executive control has not been researched yet. The Incredible Explorers (6-week program), a yoga-informed intervention program for children (8-12 years), was developed to understand whether, for children on the autism spectrum, the training could improve the ability to self-regulate, reduce anxiety and sleep problems, and increase awareness of emotions. In our sample, 61 children with one of their parents completed the program. Half of the group received the intervention, and the other half had to wait until the yoga group completed their trial. The participants were asked to give their feedback immediately after program completion and at 6-week follow-up. Compared to the group that was waiting to receive the intervention, parents in the yoga group reported significant gains for their children in regulating their overall executive control immediately after the session and again at follow-up. The parents reported a reduction in some of the sleep problems post-treatment. Children indicated an improved ability to communicate their feelings and willingness to analyze their emotions post-intervention. However, the study had several shortcomings and given that this was the first trial of the program, the results need to be interpreted with caution. Further research is recommended.


Assuntos
Transtorno do Espectro Autista , Transtorno Autístico , Terapia Cognitivo-Comportamental , Autocontrole , Yoga , Transtorno do Espectro Autista/terapia , Criança , Humanos , Projetos Piloto
5.
Exp Brain Res ; 238(2): 355-367, 2020 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-31925477

RESUMO

We investigated whether embodied ownership is evident in early childhood. To do so, we gifted a drinking bottle to children (aged 24-48 months) to use for 2 weeks. They returned to perform reach-grasp-lift-replace actions with their own or the experimenter's bottle while we recorded their movements using motion capture. There were differences in motor interactions with self- vs experimenter-owned bottles, such that children positioned self-owned bottles significantly closer to themselves compared with the experimenter's bottle. Age did not modulate the positioning of the self-owned bottle relative to the experimenter-owned bottle. In contrast, the pattern was not evident in children who selected one of the two bottles to keep only after the task was completed, and thus did not 'own' it during the task (Experiment 2). These results extend similar findings in adults, confirming the importance of ownership in determining self-other differences and provide novel evidence that object ownership influences sensorimotor processes from as early as 2 years of age.


Assuntos
Fatores Etários , Cognição/fisiologia , Propriedade , Adulto , Criança , Pré-Escolar , Retroalimentação Sensorial/fisiologia , Feminino , Humanos , Masculino
6.
Res Dev Disabil ; 76: 46-55, 2018 May.
Artigo em Inglês | MEDLINE | ID: mdl-29550648

RESUMO

BACKGROUND: Many parents of adolescents with autism spectrum disorder (ASD) report that they are ill-equipped to support their children's behaviour, and these youths are known to be at substantially greater risk of emotional or behavioural problems compared to their typically developing peers. There is a need for an efficient and tailored parenting program for parents of adolescents with ASD that includes guidance on how to best support these youths' development and well-being. AIMS: The current study examined the feasibility of Building Bridges Triple P (BBTP), an eight-week (11.5 h) parenting program specifically targeted to the needs of parents of adolescents with a developmental disability. METHODS: A pretest-posttest single group design was used to evaluate the feasibility and acceptability of BBTP, and the potential of the program to have desired intervention effects, with nine parents of adolescents with ASD. RESULTS: After participating in BBTP, parents reported significant reductions in their adolescent's behaviour problems, increased parenting confidence, decreased lax and overreactive responding, and decreased symptoms of depression and stress. These effects were mostly observed at post-test but were more pronounced at 3-month follow-up. Parents reported that they were satisfied with the content and format of BBTP. CONCLUSIONS: Results provide preliminary support for the feasibility and acceptability of BBTP, and that the program has a number of desired intervention effects.


Assuntos
Transtorno do Espectro Autista/psicologia , Depressão/prevenção & controle , Terapia Familiar/métodos , Poder Familiar/psicologia , Pais , Estresse Psicológico/prevenção & controle , Adolescente , Comportamento do Adolescente , Adulto , Depressão/etiologia , Educação não Profissionalizante/métodos , Estudos de Viabilidade , Feminino , Humanos , Masculino , Avaliação das Necessidades , Relações Pais-Filho , Pais/educação , Pais/psicologia , Projetos Piloto , Estresse Psicológico/etiologia
7.
Res Dev Disabil ; 72: 140-151, 2018 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-29145013

RESUMO

BACKGROUND: Children with a developmental disability are three to four times more likely than their typically developing peers of developing significant emotional and behavioural problems. There is strong evidence to suggest that individual biological and psychological factors interact with family functioning to precipitate and perpetuate these problems. AIMS: This study examined the psychometric properties of a brief measure, the Parent and Family Adjustment Scales (PAFAS) for use with parents of children with a developmental disability. METHODS: A sample of 914 parents of children (M=6.27years) with a developmental disability participated in the study. Disabilities included Autism Spectrum Disorder and Intellectual Disability RESULTS: A confirmatory factor analysis supported a 16-item, four factor model of PAFAS Parenting, and an 11-item, three factor model of PAFAS Family Adjustment. The Parenting Scale measures parental consistency, coercive practices, use of encouragement and the quality of parent-child relationship. The Family Adjustment Scale measures parental emotional adjustment and partner and family support in parenting. CONCLUSIONS: The current study indicated that the PAFAS demonstrates promise as a brief measure of multiple domains of family functioning important for families who have a child with a developmental disability.


Assuntos
Deficiências do Desenvolvimento/psicologia , Relações Pais-Filho , Poder Familiar/psicologia , Pais/psicologia , Adulto , Criança , Ajustamento Emocional , Saúde da Família , Feminino , Humanos , Masculino , Psicometria , Apoio Social
8.
Res Dev Disabil ; 65: 74-85, 2017 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-28458049

RESUMO

BACKGROUND: The quality of parenting a child receives has a major impact on development, wellbeing and future life opportunities. AIMS: This study examined the efficacy of Triple P Online - Disability (TPOL-D) a telehealth intervention for parents of children with a disability. METHODS: Ninety-eight parents and carers of children aged 2-12 years diagnosed with a range of developmental, intellectual and physical disabilities were randomly assigned to either the intervention (51) or treatment-as-usual (47) control group. RESULTS: At post-intervention parents receiving the TPOL-D intervention demonstrated significant improvements in parenting practices and parenting self-efficacy, however a significant change in parent-reported child behavioral and emotional problems was not detected. At 3-month follow up intervention gains were maintained and/or enhanced. A significant decrease in parent-reported child behavioral and emotional problems was also detected at this time. CONCLUSIONS: The results indicate that TPOL-D is a promising telehealth intervention for a mixed-disability group.


Assuntos
Sintomas Afetivos , Deficiências do Desenvolvimento/psicologia , Poder Familiar/psicologia , Comportamento Problema , Telemedicina , Adulto , Criança , Pré-Escolar , Crianças com Deficiência/psicologia , Educação não Profissionalizante/métodos , Feminino , Humanos , Masculino , Avaliação de Resultados em Cuidados de Saúde , Relações Pais-Filho , Pais/psicologia , Consulta Remota/métodos , Telemedicina/métodos , Telemedicina/organização & administração
9.
BMC Pediatr ; 16(1): 158, 2016 Sep 22.
Artigo em Inglês | MEDLINE | ID: mdl-27659518

RESUMO

BACKGROUND: Type 1 diabetes is a serious, life-long condition which causes major health, social and economic burden for children, their families and the community. Diabetes management involves strict adherence to a complex regimen, and poor management and non-adherence are a persistent problem among children. Parent-child interactions and parenting have been identified as crucial points of intervention to support children's health and emotional well-being, yet few parenting interventions have been developed or evaluated for parents of young children. This paper describes a randomised controlled trial of a brief, group-based parenting intervention for parents of young children (2-10 years) with type 1 diabetes compared against care as usual (CAU). METHODS/DESIGN: Families will be randomised to either Positive Parenting for Healthy Living Triple P or CAU. Positive Parenting for Healthy Living Triple P involves 2 × 2 h group sessions. Outcomes will be assessed via parent and child questionnaire, home observations and blood glucose monitoring at baseline, 1-month and 6-months post-intervention. Primary outcomes will be parent- and child-reported parenting behaviour, parent-reported child behaviour and adjustment, and parent-reported child quality-of-life. Secondary outcomes will include parental self-efficacy with diabetes management, illness-specific and general parenting stress, parent-reported child illness behaviour, family quality-of-life, observed parenting and child behaviour, and child's illness control. DISCUSSION: The theoretical background, study hypotheses, methods and planned analyses are discussed. TRIAL REGISTRATION: Australian New Zealand Clinical Trials Registry: ACTRN12613001281785 . Registered 20 November, 2013.

10.
J Autism Dev Disord ; 46(5): 1793-805, 2016 May.
Artigo em Inglês | MEDLINE | ID: mdl-26810436

RESUMO

Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant's values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants.


Assuntos
Transtorno do Espectro Autista/psicologia , Pesquisa Biomédica/métodos , Estudos Longitudinais , Seleção de Pacientes , Sujeitos da Pesquisa/psicologia , Adulto , Feminino , Humanos , Masculino
11.
J Autism Dev Disord ; 46(2): 572-88, 2016 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-26404701

RESUMO

Depression is a potentially life threatening affective disorder that is highly prevalent in individuals with autism spectrum disorders (ASD). This study aimed to evaluate the feasibility, acceptability and preliminary efficacy of a cognitive behavioural intervention for depression in adolescents with ASD. Participants were randomly assigned to the intervention group, or wait-list control group. Although recruitment was extremely difficult, attendance was favourable and attrition was low, and participants reported being satisfied with the programme. No significant treatment effect was revealed on the Beck Depression Inventory or Emotion Regulation Questionnaire. However despite the small sample size (n = 20), there was a trending treatment effect measured by the Depression Anxiety Stress Scale: Depression Subscale. Limitations and areas of future research are discussed.


Assuntos
Transtorno do Espectro Autista/complicações , Transtorno do Espectro Autista/terapia , Terapia Cognitivo-Comportamental , Depressão/complicações , Depressão/terapia , Psicoterapia de Grupo , Adolescente , Cognição , Emoções , Feminino , Humanos , Masculino , Projetos Piloto , Escalas de Graduação Psiquiátrica , Teoria da Mente , Resultado do Tratamento
12.
Behav Res Ther ; 73: 58-66, 2015 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-26255172

RESUMO

OBJECTIVE: To evaluate the efficacy of a behavioural family intervention, Stepping Stones Triple P (SSTP), combined with an Acceptance and Commitment Therapy (ACT) workshop in improving parent, family and couple outcomes following paediatric acquired brain injury (ABI). PARTICIPANTS AND SETTING: Fifty-nine parents (90% mothers) of children (mean age 7 years; 35 males, 24 females) with ABI. INTERVENTION: Participants were randomly assigned to a treatment (10-week group SSTP and ACT program) or a care-as-usual (CAU) control condition (10 weeks). Those in the CAU condition received the treatment after the waitlist period. OUTCOMES: Self-report measures of parent psychological distress, parent psychological flexibility, parenting confidence, family functioning, and couple relationship, assessed at: pre-intervention, post-intervention, and 6-months post-intervention. RESULTS: Post-intervention, the treatment group showed significant, small to medium improvements relative to the CAU group (at the p < .05 level) on parent psychological distress, parent psychological flexibility, parent confidence in managing behaviours, family adjustment,and number of disagreements between parents. Most improvements were maintained at 6-months. CONCLUSIONS: Parent skills training and ACT may be efficacious in improving parent, family, and couple outcomes in families of children with an ABI.


Assuntos
Terapia de Aceitação e Compromisso/métodos , Terapia Comportamental/métodos , Lesões Encefálicas/psicologia , Cuidadores/psicologia , Criança , Comportamento Infantil/psicologia , Pré-Escolar , Características da Família , Feminino , Humanos , Masculino , Relações Pais-Filho , Poder Familiar/psicologia , Pais/psicologia , Estresse Psicológico/terapia
13.
BMC Med ; 13: 25, 2015 Feb 04.
Artigo em Inglês | MEDLINE | ID: mdl-25649871

RESUMO

The Stepping Stones Triple P (SSTP) parenting program is an evidence-based program for parents of children with a disability. A trial of SSTP was recently published in BMC Medicine, which reported results of a randomized controlled trial comparing SSTP to care-as-usual. Although the paper described what should be an important replication trial of SSTP, there are significant shortcomings to the scientific approach of the reporting that need to be addressed. The paper initially cites only a few published SSTP studies and describes evidence for the efficacy of the program as "very scarce". A meta-analysis of studies evaluating SSTP published prior to submission of this paper was not cited. The results are inconsistent with previous evidence for SSTP, yet the authors provide scant interpretation for this inconsistency. Similarly, the unusually high dropout rate of 49% was not adequately explained. The claims that previous research has only been conducted by the developers, has not included children with intellectual disability, and has not used care-as-usual comparison groups, are inaccurate. This commentary explores these issues further in order to place the findings from the recent trial into context.


Assuntos
Crianças com Deficiência , Educação não Profissionalizante , Poder Familiar , Criança , Educação não Profissionalizante/métodos , Prática Clínica Baseada em Evidências , Humanos
14.
Child Psychiatry Hum Dev ; 46(5): 749-61, 2015 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-25335876

RESUMO

There are limited evaluations of an evidence-based parenting program for parents from large developing countries, such as Indonesia. This study aimed to test the efficacy and acceptability of an evidence-based parenting program, the Triple P seminar series, among Indonesian parents. The level of child emotional and behavioral problems was the primary outcome of this study. Participants were 143 parents of children aged 2-12 years in Indonesia that were randomly allocated into the intervention (n = 72) or waitlist control group (n = 71). Participants, investigators, and data collectors were not blinded to the group assignment. A randomized-controlled trial was conducted with 143 parents of children aged 2-12 years in Indonesia. Results showed that parents in the intervention group reported a greater decrease in child behavioral problems (d = 0.45), dysfunctional parenting practices (d = 0.69), parental stress (d = 0.44), and a greater increase in parenting confidence (d = 0.45) in comparison to parents in the waitlist control group at post intervention. The intervention effects were maintained at 6-month follow up for parents in the intervention group. The program was deemed to be culturally appropriate as parents indicated high levels of acceptability and satisfaction with the program content. It is suggested that future studies include families with lower income and employ a more stringent design (e.g., using validated measures, multiple facilitators, and blinding).


Assuntos
Educação Infantil , Poder Familiar , Pais/educação , Comportamento Problema , Adulto , Povo Asiático , Criança , Pré-Escolar , Prática Clínica Baseada em Evidências , Feminino , Humanos , Indonésia , Masculino , Pobreza
15.
J Pediatr Psychol ; 40(4): 464-74, 2015 May.
Artigo em Inglês | MEDLINE | ID: mdl-25535318

RESUMO

OBJECTIVE: To consider the relationship of parental experiential avoidance (EA) to psychological symptoms and problematic parenting strategies after pediatric acquired brain injury (ABI). METHODS: Using available data from a randomized controlled trial of a group-based Acceptance and Commitment Therapy (ACT) workshop plus a behavioral family intervention (BFI) for parents of children with ABI (n = 59), correlational and mediational analyses were conducted to consider the role of parental EA as a process of change for parent outcomes. RESULTS: Parent EA positively correlated with ineffective parenting behaviors and levels of psychological distress, both cross-sectionally and longitudinally. Reductions in EA mediated the treatment effect on reducing ineffective parenting behaviors and parent distress, but issues of temporality were present. CONCLUSIONS: EA is related to parent outcomes following pediatric ABI. A larger and methodologically rigorous study is called for to further elucidate this finding and specifically determine the benefits of targeting EA with interventions such as ACT, in conjunction with evidence-based BFIs.


Assuntos
Aprendizagem da Esquiva , Lesões Encefálicas/psicologia , Educação não Profissionalizante/métodos , Relações Pais-Filho , Poder Familiar/psicologia , Pais/psicologia , Estresse Psicológico , Criança , Pré-Escolar , Feminino , Seguimentos , Humanos , Masculino
16.
J Child Psychol Psychiatry ; 55(10): 1172-83, 2014 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-24635872

RESUMO

BACKGROUND: Persistent behavioural difficulties are common following paediatric acquired brain injury (ABI). Parents and families also experience heightened stress, psychological symptoms and burden, and there is evidence of a reciprocal relationship between parent and child functioning, which may be mediated by the adoption of maladaptive parenting practices. Despite this, there is currently a paucity of research in family interventions in this population. The aim of this study was to determine the efficacy of Stepping Stones Triple P: Positive Parenting Program (SSTP), with an Acceptance and Commitment Therapy (ACT) workshop, in improving child outcomes and parenting practices following paediatric ABI. METHODS: Fifty-nine parents of children (mean age 7 years, SD 3 years, 1 month; 35 males, 24 females) with ABI (Traumatic injuries 58%, Tumour 17%, Encephalitis or meningitis 15%, Cardiovascular accident 7%, Hypoxia 3%) who were evidencing at least mild behaviour problems were randomly assigned to treatment or care-as-usual conditions over 10 weeks. Mixed-model repeated-measures linear regression analyses were conducted to compare conditions from pre- to postintervention on child behavioural and emotional functioning (Eyberg Child Behavior Inventory, Strengths and Difficulties Questionnaire) and dysfunctional parenting style (Parenting Scale). Assessment of maintenance of change was conducted at a 6-month follow-up. The trial was registered on Australian New Zealand Clinical Trials Registry (ID: ACTRN12610001051033, www.anzctr.org.au). RESULTS: Significant time-by-condition interactions were identified on number and intensity of child behaviour problems, child emotional symptoms and parenting laxness and overreactivity, indicating significant improvements in the treatment condition, with medium-to-large effect sizes. Most improvements were maintained at 6 months. CONCLUSIONS: Group parenting interventions incorporating Triple P and ACT may be efficacious in improving child and parenting outcomes following paediatric ABI.


Assuntos
Lesões Encefálicas/psicologia , Terapia Familiar/métodos , Poder Familiar , Adulto , Criança , Comportamento Infantil/psicologia , Feminino , Humanos , Masculino , Relações Pais-Filho , Poder Familiar/psicologia , Resultado do Tratamento
17.
Autism ; 18(8): 903-13, 2014 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-24343335

RESUMO

Children with Asperger's syndrome are often reported by their parents as having difficulties communicating affection. This study aimed to develop a valid measure of affectionate behaviour that could be used to investigate and quantify these anecdotal reports and then be used in further intervention research. Using parent and expert focus groups, three measures (Affection for Others Questionnaire, Affection for You Questionnaire and General Affection Questionnaire) were developed with reference to the existing affection literature. The measures were completed by 131 parents of children with a clinician-confirmed diagnosis of Asperger's syndrome. Psychometric assessment of the measures revealed clear factor structures with high internal consistencies and significant concurrent validities. The findings suggest many children with Asperger's syndrome have difficulties with affectionate behaviour that significantly impact their daily functioning and relationships with others, signalling future research needs to develop interventions in this area. Limitations of the research are also discussed.


Assuntos
Síndrome de Asperger/psicologia , Comportamento Infantil/psicologia , Amor , Inquéritos e Questionários , Adulto , Criança , Feminino , Grupos Focais , Humanos , Masculino , Pessoa de Meia-Idade , Pais/psicologia , Psicometria
18.
J Autism Dev Disord ; 44(7): 1535-45, 2014 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-24337829

RESUMO

The current study aims to evaluate the psychometric properties of the Emotion Regulation and Social Skills Questionnaire (ERSSQ), a rating scale designed specifically to assess the social skills of young people with Autism Spectrum Disorder (ASD). The participants were 84 children and young adolescents with ASD, aged between 7.97 and 14.16 years with a mean IQ score of 90.21 (SD = 18.82). The results provide evidence for the concurrent and criterion validity of the ERSSQ Parent form, and the concurrent validity of the ERSSQ Teacher form. The clinical and theoretical implications are discussed, including the necessity of ratings across multiple contexts and the potential use of the ERSSQ in identifying individuals most in need of intervention and for planning and assessing the outcomes of social skills interventions.


Assuntos
Transtornos Globais do Desenvolvimento Infantil/psicologia , Emoções , Comportamento Social , Inquéritos e Questionários , Adolescente , Criança , Feminino , Humanos , Masculino , Pais , Psicometria
19.
Brain Inj ; 27(13-14): 1570-82, 2013.
Artigo em Inglês | MEDLINE | ID: mdl-24111604

RESUMO

OBJECTIVE: To qualitatively explore the experiences, challenges and needs of parents of children with traumatic brain injury (TBI) in order to inform future intervention research through incorporation of participant knowledge and experience. METHODS: Parents of children with TBI (n = 10) and experienced health professionals in paediatric rehabilitation (n = 5) took part in focus groups or individual interviews. Audio recordings were transcribed verbatim and an inductive thematic analysis performed. FINDINGS: Participants reported that, beyond the impact of the injury on the child, TBI affects the entire family. Parents need to adjust to and manage their child's difficulties and can also experience significant emotional distress, relationship discord and burden of care, further adding to the challenges of the parenting role. Parents can feel isolated and the importance of empowerment, support and information was emphasized. Coping styles of disengagement and avoidance were often reported, despite acknowledgement that these were not beneficial. CONCLUSIONS: Parenting interventions may provide essential support for parents in adjusting to and managing their child's difficulties and the efficacy of existing programmes needs evaluation. Addressing parent emotional adjustment and coping strategies is vital following paediatric TBI, given the impact on parent well-being and the potential negative effects on child outcomes through reduced parenting effectiveness. Group programmes may enable connection and support.


Assuntos
Adaptação Psicológica , Lesões Encefálicas/psicologia , Emoções , Poder Familiar/psicologia , Pais , Estresse Psicológico/etiologia , Adolescente , Adulto , Lesões Encefálicas/reabilitação , Criança , Pré-Escolar , Pessoas com Deficiência/psicologia , Prática Clínica Baseada em Evidências , Saúde da Família , Feminino , Grupos Focais , Pessoal de Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Relações Pais-Filho , Pais/psicologia , Pesquisa Qualitativa , Apoio Social , Inquéritos e Questionários
20.
Fam Process ; 52(3): 411-24, 2013 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-24033239

RESUMO

Stepping Stones Triple P (SSTP) is a parenting program designed for families of a child with a disability. The current study involved a randomized controlled trial of Group Stepping Stones Triple P (GSSTP) for a mixed-disability group. Participants were 52 families of children diagnosed with an Autism Spectrum Disorder, Down syndrome, Cerebral Palsy, or an intellectual disability. The results demonstrated significant improvements in parent-reported child behavior, parenting styles, parental satisfaction, and conflict about parenting. Results among participants were similar despite children's differing impairments. The intervention effect was maintained at 6-month follow-up. The results indicate that GSSTP is a promising intervention for a mixed-disability group. Limitations of the study, along with areas for future research, are also discussed.


Assuntos
Transtornos do Comportamento Infantil/psicologia , Transtornos do Comportamento Infantil/reabilitação , Crianças com Deficiência/psicologia , Crianças com Deficiência/reabilitação , Educação não Profissionalizante/métodos , Relações Pais-Filho , Poder Familiar/psicologia , Psicoterapia de Grupo/métodos , Adulto , Transtornos de Deficit da Atenção e do Comportamento Disruptivo/psicologia , Transtornos de Deficit da Atenção e do Comportamento Disruptivo/reabilitação , Paralisia Cerebral/psicologia , Paralisia Cerebral/reabilitação , Criança , Transtornos Globais do Desenvolvimento Infantil/psicologia , Transtornos Globais do Desenvolvimento Infantil/reabilitação , Pré-Escolar , Comportamento do Consumidor , Síndrome de Down/psicologia , Síndrome de Down/reabilitação , Feminino , Seguimentos , Humanos , Deficiência Intelectual/psicologia , Deficiência Intelectual/reabilitação , Transtornos do Desenvolvimento da Linguagem/psicologia , Transtornos do Desenvolvimento da Linguagem/reabilitação , Masculino , Inquéritos e Questionários
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