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1.
J Am Board Fam Med ; 37(2): 172-179, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38740484

RESUMO

BACKGROUND: Optimal care for persons with multiple chronic conditions (MCC) requires primary and specialty care continuity, access to multiple providers, social risk assessment, and self-management support. The COVID-19 pandemic abruptly changed primary care delivery to increase reliance on telehealth and virtual care. We report on the experiences of individuals with MCC and their family caregivers on managing their health and receiving health care during the initial pandemic. METHODS: Semistructured qualitative interviews with 30 patients (19 English speaking, 11 Spanish speaking) plus 9 accompanying care partners, who had 2+ primary care encounters between March 1, 2020, and November 30, 2020, 2+ chronic conditions, and 1 or more self-reported social risks. Questions focused on access to and experiences with care, roles for care partners, and self-management during the first 6 months of the pandemic. RESULTS: Participants experienced substantial changes in care delivery. The most commonly reported changes were a shift to more virtual relative to in-person care and shifting roles for care partners. Changes fostered new perspectives on self-management and an appreciation of personal resilience and self-reliance. Virtual care was an acceptable complement to in-person care, though not a substitute for periodic in-person visits. It was more acceptable for English speakers and with a usual provider. CONCLUSION: New models of care delivery that recognize patient and family resilience and resourcefulness, emphasize provider continuity, and combine virtual and in-person care may support self-management for individuals with MCC and social needs.


Assuntos
COVID-19 , Múltiplas Afecções Crônicas , Atenção Primária à Saúde , Telemedicina , Humanos , COVID-19/epidemiologia , Feminino , Masculino , Pessoa de Meia-Idade , Idoso , Múltiplas Afecções Crônicas/terapia , Múltiplas Afecções Crônicas/epidemiologia , Atenção Primária à Saúde/organização & administração , Telemedicina/organização & administração , Pesquisa Qualitativa , SARS-CoV-2 , Autogestão/métodos , Cuidadores/psicologia , Adulto , Pandemias , Entrevistas como Assunto
2.
Contemp Clin Trials ; 140: 107495, 2024 05.
Artigo em Inglês | MEDLINE | ID: mdl-38467273

RESUMO

BACKGROUND: In real-world settings, low adherence to lung cancer screening (LCS) diminishes population-level benefits of reducing lung cancer mortality. We describe the Larch Study protocol, which tests the effectiveness of two patient-centered interventions (Patient Voices Video and Stepped Reminders) designed to address barriers and improve annual LCS adherence. METHODS: The Larch Study is a pragmatic randomized clinical trial conducted within Kaiser Permanente Washington. Eligible patients (target n = 1606) are aged 50-78 years with an index low-dose CT (LDCT) of the chest with negative or benign findings. With a 2 × 2 factorial-design, patients are individually randomized to 1 of 4 arms: video only, reminders only, both video and reminders, or usual care. The Patient Voices video addresses patient education needs by normalizing LCS, reminding patients when LCS is due, and encouraging social support. Stepped Reminders prompts primary care physicians to order patient's repeat screening LDCT and patients to schedule their scan. Intervention delivery is embedded within routine healthcare, facilitated by shared electronic health record components. Primary outcome is adherence to national LCS clinical guidelines, defined as repeat LDCT within 9-15 months. Patient-reported outcomes are measured via survey (knowledge of LCS, perception of stigma) approximately 8 weeks after index LDCT. Our mixed-methods formative evaluation includes process data, collected during the trial, and interviews with trial participants and stakeholders. DISCUSSION: Results will fill an important scientific gap on multilevel interventions to increase annual LCS adherence and provide opportunities for spread and scale to other healthcare settings. REGISTRATION: Trial is registered at clinicaltrials.gov (#NCT05747443).


Assuntos
Detecção Precoce de Câncer , Neoplasias Pulmonares , Cooperação do Paciente , Educação de Pacientes como Assunto , Sistemas de Alerta , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Detecção Precoce de Câncer/métodos , Neoplasias Pulmonares/diagnóstico , Educação de Pacientes como Assunto/métodos , Projetos de Pesquisa , Apoio Social , Tomografia Computadorizada por Raios X/métodos , Ensaios Clínicos Controlados Aleatórios como Assunto
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