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PURPOSE: The study aimed to explore and describe the lives of patients with persistent cloaca (PC) from childhood to adulthood. METHODS: Semistructured interviews were conducted with nine adult patients with PC. Their experiences and thoughts regarding this disease were analyzed qualitatively and inductively. RESULTS: After classifying the experiences and thoughts of patients with PC, 13 categories were extracted. The following five themes emerged from these categories. (1) Difficulties with excretion and vaginal management because of the disease. (2) The degree of understanding of those around them and society has a huge effect on their way of life. (3) The inferiority of a woman who is not a "normal woman." (4) A "never-ending disease" in which problems continue even after the transition period. (5) Differences in the central point of the narrative depending on the age group. CONCLUSIONS: In this study, qualitative and inductive analyses of data from semistructured interviews with patients with PC revealed their experiences and thoughts. The results will provide a guide for young patients and the medical professionals who treat them. Accordingly, monitoring their lives until adulthood is necessary.
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Qualidade de Vida , Humanos , Feminino , Adulto , Qualidade de Vida/psicologia , Pesquisa Qualitativa , Adulto Jovem , Entrevistas como Assunto , Adolescente , Narração , Ductos Paramesonéfricos/anormalidades , Cloaca/anormalidadesRESUMO
Background: Maintaining good quality of healthcare data at various levels is a critical challenge in developing countries. The barriers to healthcare data quality remain largely unexplored in eastern Ethiopia. Objective: This study aimed to assess the barriers to quality of healthcare data in urban public health facilities in the Dire Dawa city administration from 7 April to 7 May 2019. Methods: An institutional-based qualitative exploratory approach was used among 17 purposefully selected key informants. In-depth interviews were inductively coded using the ATLAS.ti 7.5.4 version software. Inductive analysis was used by semantically analyzing the explicit content of the data to determine our themes. Results: Several key themes and subthemes with different barriers, some of which are mutually non-exclusive, were identified. These include: Organizational Barriers: Lack of an adequate health management information system and data clerk staff, poor management commitment, lack of post-training follow-up, work overload, frequent duty rotation, lack of incentives for good performers, lack of targeted feedback, and poor culture of information use. Behavioral/Individual Barriers: Gaps in the skill of managers and health professionals, lack of adequate awareness of each indicator and its definitions, inadequate educational competence, lack of feeling of ownership, poor commitment, lack of daily tallying, and lack of value for data. Technical Barriers: Lack of a standard form, diverse and too many data entry formats, manual data collection, shortage of supplies, failure to repair system break down in a timely manner, interruption in electricity and network, delay in digitizing health information systems, lack of post-training follow-up, and inadequate supervision. External Barriers: Poor collaboration between stakeholders, dependence on the software program of non-governmental organizations, and very hot weather conditions. Conclusion: Diverse and complex barriers to maintenance of data quality were identified. Developing standardized health management information system implementation plans, providing advanced supervisory-level training, supportive supervision, and site-level mentorship may be very effective in identifying and resolving bottleneck data quality issues. Healthcare managers should understand the imperative of data quality and accept responsibility for its improvement and maintenance. Interventions targeted only at supplies will not fully overcome limitations to data quality. Motivation of staff and recognition of best performance can motivate others and can create cooperation among staff.
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Aiming to complement and ground the theory of social entrepreneurship opportunity identification, we draw from a database of 2,872 entrepreneurs' life stories with two main objectives. The first is to provide a comprehensive list and categorization of antecedents of opportunity identification in the context of social entrepreneurship. The second is to demonstrate the systemic interconnections between those and build a model of social entrepreneurship opportunity identification. We review the literature and establish a framework of five high-order key antecedents' areas (context, background, social networks and interactions, affect, and cognitive process). We then proceed to a five-step empirical triangulation methodology mixing computerized and manual content analysis. We thereby identify 42 antecedents nested into 17 first-level items grouped into the five high-order key antecedents' areas. Our detailed results shed light on a wide array of previously ignored antecedents and provide more precisions about those that had already been documented elsewhere. Finally, we highlight and explain the relationships between the antecedents, show that they constitute an "opportunity growing ground," and present a full model of social entrepreneurship opportunity identification based on their interconnections. The context of the social entrepreneur combines stable features regarding access to various resources, a strong geographical identity and history, the encounter of several worlds, all condition or are conditioned by his/her social networks and background. This context is also subject to diverse constraints and institutional barriers that can shape the entrepreneur's background, her/his experiences, as well as his/her affect specificities. This stable context is at some point hit by elements of change that disrupt this stability, triggering chains of reactions between the various antecedents of opportunity identification.
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Few studies have utilized qualitative methods to assess the perceived effectiveness of collaboration among research center interdisciplinary team scientists. Stages of team development served as the theoretical framework to characterize minority serving institution (MSI) and predominantly White institutions (PWI) participants' challenges and successes during a National Institutes of Health (NIH) sponsored cancer health disparities training and research program. We present the finding of an inductive analysis of four open-ended survey questions across two years. Fostering an awareness of the inherently taxing, yet centrality of group (team) development may advance an understanding of team dynamics and lead to increased team cohesion and productivity. In conclusion, we provide recommendations to assist multiple principal investigators who embark on team development.
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Brain tumors are a common form of solid tumors in children and, unfortunately, they are characterized by a very uncertain prognosis. The treatment of this pathology often includes one or more very invasive surgical procedures, quite often in the very first steps of the treatment. Cases of brain tumors in children represent one of the greatest challenges for health care professionals in the domain of pediatric neurosurgery. This is clearly due to the complexity of the therapeutic plan, but also to the nature of the bond that is established between the child, the parents, and the members of the staff during the often-dramatic initial phase of the illness. In this phenomenological-hermeneutic study, we explore both the emotional and organizational needs, as well as the available professional and personal resources of the staff in the Neurosurgery ward of the Meyer Children's Hospital in Florence (Italy). The ward staff, composed of 7 surgeons, a pediatric neuro-oncologist, 12 nurses, and 4 auxiliary health care professionals, underwent in-depth interviews that were recorded (with the consensus of the participants). The recordings were then transcribed and submitted to content analysis according to COREQ standards. A complex picture of emotional as well as organizational demands emerged from the data. Shared experiences were pointed out, together with more specific and idiosyncratic contents characteristic of different professional roles. The focus of the present paper was twofold, first, we considered the needs that are overtly expressed by the staff, and then we discussed the main sources of their motivational drives. We found that the latter is mainly found in the quality of the therapeutic bond that is established with the children and the family members, together with the deep interest in one's own professional activity and the effective complementarity and integration of the personal and professional qualities of the staff members within the multidisciplinary caring group.
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AIMS: The Global Outbreak Alert and Response Network recently warned that the Zika virus-containing mosquitoes are being found in Pakistan and the health sector is on high alert. It is thus significant to understand public beliefs and perceptions of the Zika virus and vaccination in the current scenario of Pakistan. METHODS: Twenty semistructured qualitative interviews were conducted and analyzed through an inductive approach to analysis. RESULTS: The findings were presented in three main categories which were coded: Reality vs. Conspiracy, Vaccination Concerns, and Public Worries. The majority believed that the Zika virus is a real problem and that authorities might be trying to hide the Zika cases in Pakistan. Moreover, they believed that health organizations are being incompetent by failing to take timely remedial measures to manage the Zika. However, 20% have an opposing view and believed that the Zika virus is a conspiracy against Pakistan from the West. CONCLUSION: Overall, most participants were concerned about the lack of treatment and preventive methods and emphasized the need to create awareness among the public. It is observed that the participants' perceptions ranged from perceiving the Zika virus as real to as a conspiracy.
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Infecção por Zika virus , Zika virus , Animais , Surtos de Doenças , Humanos , Opinião Pública , Pesquisa Qualitativa , Infecção por Zika virus/epidemiologia , Infecção por Zika virus/prevenção & controleRESUMO
For people in single households, living alone has become literal and absolute during the social-distancing measures related to COVID-19 and can lead to decreased health and wellbeing. In this article, we examine how solo-living women think, feel, make sense of, and practice COVID-19-related social-distancing measures and, consequently, physical isolation. During lockdown, we interviewed 23 solo-living women between the ages of 25 and 69 years living in Slovenia. We present three levels of responses to social-distancing measures: cognitive, affective, and behavioral. We identified dissonances between these levels of responses, and we learned that affective responses play a significant role in shaping one's orientation toward and respect for the social-distancing measures.
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Adaptação Psicológica , COVID-19/psicologia , Distanciamento Físico , Isolamento Social/psicologia , Adulto , Comportamento , Feminino , Humanos , Relações Interpessoais , Entrevistas como Assunto , Pessoa de Meia-Idade , Pandemias , SARS-CoV-2RESUMO
The processes of analysing qualitative data, particularly the stage between coding and publication, are often vague and/or poorly explained within addiction science and research more broadly. A simple but rigorous and transparent technique for analysing qualitative textual data, developed within the field of addiction, is described. The technique, iterative categorization (IC), is suitable for use with inductive and deductive codes and can support a range of common analytical approaches, e.g. thematic analysis, Framework, constant comparison, analytical induction, content analysis, conversational analysis, discourse analysis, interpretative phenomenological analysis and narrative analysis. Once the data have been coded, the only software required is a standard word processing package. Worked examples are provided.
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Pesquisa Qualitativa , HumanosRESUMO
The paper by Ewens and Lessard (2015) adds to the progress that has been made in exploring the discrete-generation analytical version of Fisher's Fundamental Theorem of Natural Selection introduced by Ewens (1989). Fisher's continuous-time theorem differs from the version described by Ewens and Lessard by using a different concept of fitness. Ewens and Lessard use the conventional 'viability' concept whereas for Fisher the fitness of a genotype was its relative rate of increase or decrease in the population. The sole purpose of the present paper is to emphasize the alternative inductive nature of Fisher's theorem, as presented by him in 1930, by placing it in the context of his contemporary development of the analysis of variance in agricultural experiments. It is not a general discussion of the theorem itself.
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Modelos Genéticos , Seleção Genética , Frequência do Gene , Genótipo , Humanos , Dinâmica PopulacionalRESUMO
In today's NHS, qualitative research is increasingly important as a method of assessing and improving quality of care. Grounded theory has developed as an analytical approach to qualitative data over the last 40 years. It is primarily an inductive process whereby theoretical insights are generated from data, in contrast to deductive research where theoretical hypotheses are tested via data collection. Grounded theory has been one of the main contributors to the acceptance of qualitative methods in a wide range of applied social sciences. The influence of grounded theory as an approach is, in part, based on its provision of an explicit framework for analysis and theory generation. Furthermore the stress upon grounding research in the reality of participants has also given it credence in healthcare research. As with all analytical approaches, grounded theory has drawbacks and limitations. It is important to have an understanding of these in order to assess the applicability of this approach to healthcare research. In this review we outline the principles of grounded theory, and focus on thematic analysis as the analytical approach used most frequently in grounded theory studies, with the aim of providing clinicians with the skills to critically review studies using this methodology.
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Coleta de Dados , Teoria Fundamentada , Pesquisa sobre Serviços de Saúde , Pesquisa Qualitativa , Projetos de Pesquisa , HumanosRESUMO
AIMS AND OBJECTIVES: To extend nurses' descriptions of how they understood caring, as reflected in the findings of an earlier study (i.e. the hierarchical outcome space) and to gain additional understandings and perspectives of nurses' views of caring in relation to a coronary care patient case. BACKGROUND: Scientific literature from the 1970s-1990s contains descriptions of caring in nursing. In contrast, the contemporary literature on this topic--particularly in the context of coronary care--is very sparse, and the few studies that do contain descriptions rarely do so from the perspective of nurses. DESIGN: Qualitative descriptive study. METHODS: Twenty-one nurses were interviewed using the stimulated recall interview technique. The data were analysed using deductive and inductive qualitative content analysis. RESULTS: The results of the iterative and integrated content analysis showed that the data mainly reproduced the content of the hierarchical outcome space describing how nurses could understand caring; however, in the outcome space, the relationship broke up (i.e. flipped). The nurses' views of caring could now also be understood as: person-centredness 'lurking' in the shadows; limited 'potential' for safeguarding patients' best interests; counselling as virtually the 'only' nursing intervention; and caring preceded by the 'almighty' context. Their views offered alternative and, at times, contrasting perspectives of caring, thereby adding to our understanding of it. CONCLUSION: Caring was described as operating somewhere between the nurses caring values and the contextual conditions in which caring occurred. This challenged their ability to sustain caring in accordance with their values and the patients' preferences. RELEVANCE TO CLINICAL PRACTICE: To ensure that the essentials of caring are met at all times, nurses need to plan and deliver caring in a systematic way. The use of systematic structures in caring, as the nursing process, can help nurses to work in a person-centred way, while sustaining their professional values.
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Atitude do Pessoal de Saúde , Doenças Cardiovasculares/enfermagem , Enfermeiras e Enfermeiros , Recursos Humanos de Enfermagem , Adulto , Empatia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Adulto JovemRESUMO
We sought to identify how nurses can help to alleviate the concerns of inpatients undergoing palliative chemotherapy when the treatment effects are weakening. Semistructured interviews were conducted with 8 inpatients receiving palliative chemotherapy for end-stage carcinomatous peritonitis at a university hospital. Qualitative inductive analysis of the interview data revealed 7 categories of patient concerns. Overall, patients faced many dilemmas and expressed concerns about wanting to continue chemotherapy while also thinking about discontinuing it. However, they also expressed hope, the strength of which was influenced and changed in complex ways by each treatment outcome and the severity of their physical symptoms. From these results, we suggest specific aspects of nursing care for patients with end-stage cancer who are receiving palliative chemotherapy that is becoming less effective.