Name Info Provider Link
Rare Diseases free resource MedlinePlus Health Information https://medlineplus.gov/rarediseases.html
free resource PubMed Central https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/31462106/
free resource Europe PubMed Central https://europepmc.org/abstract/MED/31462106
subscription/membership/fee required Wiley https://doi.org/10.1096/fj.201901529R