[Cystic fibrosis: centers and care networks organization]. / Mucoviscidose: organisation de la prise en charge.

ABSTRACT

More than 20 years after the gene discovery, without specific treatment, the observed improvement of the cystic fibrosis prognosis appears due to management's organization as well as early diagnosis (neonatal screening) or progress in symptomatic treatment. The CF Centers (CRCM) official recognition was a necessary step before generalization of routine neonatal screening (October, 2002). Actually French CF management relies on three levels of organization CF centers, regional care networks and French CF Society, in close relationship with patients association (Vaincre la Mucoviscidose).