Assessing the knowledge of endometriosis diagnostic tools in a large, international lay population: an online survey.
BJOG
; 128(13): 2084-2090, 2021 12.
Article
in En
| MEDLINE
| ID: mdl-34403184
ABSTRACT
OBJECTIVE:
To assess the general population's knowledge regarding the utility and availability of tools to diagnosis endometriosis, with a focus on ultrasound.DESIGN:
An international cross-sectional online survey study was performed between August and October 2019. SETTING AND POPULATION 5301 respondents, representing 73 countries.METHODS:
In all, 23 questions survey focused on knowledge of endometriosis diagnosis distributed globally via patient- and community-endometriosis groups using social media. MAIN OUTCOMES ANDMEASURES:
Descriptive data of the knowledge of diagnostic tools for diagnosing endometriosis, including details about diagnosis using ultrasound.RESULTS:
In all, 84.0% of respondents had been previously diagnosed with endometriosis, 71.5% of whom had been diagnosed at the time of surgery. Ultrasound and MRI were the methods of diagnosis in 6.5% and 1.8%, respectively. A total of 91.8%, 28.8% and 16.6% of respondents believed surgery, ultrasound and MRI could diagnose endometriosis, respectively (more than one answer allowed). In those diagnosed by surgery, 21.7% knew about ultrasound as a diagnosis method, whereas in those diagnosed non-surgically, 51.5% knew (P < 0.001). In all, 14.7%, 31.1% and 18.2% stated superficial, ovarian and deep endometriosis could be diagnosed with ultrasound (32.9% stated they did not know which phenotypes of endometriosis could be diagnosed). Lastly, 58.4% of respondents do not believe they could access an advanced ultrasound in their region.CONCLUSIONS:
There is a limited appreciation for the role of non-surgical diagnostic tests for endometriosis among lay respondents to this survey. TWEETABLE ABSTRACT International survey shows limited awareness of lay respondents about non-surgical endometriosis diagnostic tools.Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Magnetic Resonance Imaging
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Health Knowledge, Attitudes, Practice
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Ultrasonography
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Pelvic Pain
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Endometriosis
Type of study:
Diagnostic_studies
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Observational_studies
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Prevalence_studies
/
Qualitative_research
/
Risk_factors_studies
Limits:
Adult
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Female
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Humans
/
Middle aged
Language:
En
Journal:
BJOG
Year:
2021
Document type:
Article