"They Could Have Cut My Head Off and I Wouldn't Have Cared"-A Qualitative Study of Patient Experiences and the Impact of Trigeminal Neuralgia.
J Oral Facial Pain Headache
; 36(3-4): 189205, 2022.
Article
in En
| MEDLINE
| ID: mdl-36445910
ABSTRACT
AIMS:
To understand, from the patient perspective, the meaning of living with trigeminal neuralgia (TN) and what the patient-desired outcomes of treatment are.METHODS:
A qualitative study involving focus group work with 14 participants with a diagnosis of TN was conducted. The discussions were recorded and transcribed verbatim and analyzed using framework analysis.RESULTS:
Four themes and 14 subthemes were identified. Theme 1 reflects the uncertainty about TN etiology and prognosis; theme 2 includes descriptions of the mental, social, and physical impacts of TN that contrast with coping mechanisms developed over time; theme 3 reflects participants' views of what a successful treatment means and the specific outcomes they expect following treatment, as well as patient willingness to self-manage their conditions while supported; and theme 4 highlights the importance of appropriate and timely access to health care and the importance of peer support.CONCLUSION:
This study confirms the need to move beyond the biologic models of disease to patient-centered care and research approaches.
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Trigeminal Neuralgia
Type of study:
Qualitative_research
Limits:
Humans
Language:
En
Journal:
J Oral Facial Pain Headache
Year:
2022
Document type:
Article