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Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam.
Merson, Laura; Phong, Tran Viet; Nhan, Le Nguyen Thanh; Dung, Nguyen Thanh; Ngan, Ta Thi Dieu; Kinh, Nguyen Van; Parker, Michael; Bull, Susan.
Afiliação
  • Merson L; Oxford University Clinical Research Unit, Ho Chi Minh City, Vietnam Lmerson@oucru.org.
  • Phong TV; Oxford University Clinical Research Unit, Ho Chi Minh City, Vietnam.
  • Nhan le NT; Children's Hospital 1, Ho Chi Minh City, Vietnam.
  • Dung NT; Hospital for Tropical Diseases, Ho Chi Minh City, Vietnam.
  • Ngan TT; National Hospital for Tropical Diseases, Ha Noi, Vietnam.
  • Kinh NV; National Hospital for Tropical Diseases, Ha Noi, Vietnam.
  • Parker M; University of Oxford, UK.
  • Bull S; University of Oxford, UK.
J Empir Res Hum Res Ethics ; 10(3): 251-63, 2015 Jul.
Article em En | MEDLINE | ID: mdl-26297747
International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the policies in these settings. This study used in-depth interviews and focus group discussions with 48 stakeholders in Vietnam to explore the experiences, attitudes, and expectations that inform ethical and effective approaches to sharing clinical research data. Distinct views on the role of trust, respect, and reciprocity were among those that emerged to inform culturally appropriate best practices. We conclude by discussing the challenges that authors of data-sharing policies should consider in this unique context.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Atitude / Comportamento Cooperativo / Cultura / Disseminação de Informação / Confiança / Pesquisa Biomédica / Políticas Tipo de estudo: Guideline / Prognostic_studies / Qualitative_research Aspecto: Determinantes_sociais_saude / Ethics Limite: Humans País/Região como assunto: Asia Idioma: En Revista: J Empir Res Hum Res Ethics Ano de publicação: 2015 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Atitude / Comportamento Cooperativo / Cultura / Disseminação de Informação / Confiança / Pesquisa Biomédica / Políticas Tipo de estudo: Guideline / Prognostic_studies / Qualitative_research Aspecto: Determinantes_sociais_saude / Ethics Limite: Humans País/Região como assunto: Asia Idioma: En Revista: J Empir Res Hum Res Ethics Ano de publicação: 2015 Tipo de documento: Article