Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam.
J Empir Res Hum Res Ethics
; 10(3): 251-63, 2015 Jul.
Article
em En
| MEDLINE
| ID: mdl-26297747
International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the policies in these settings. This study used in-depth interviews and focus group discussions with 48 stakeholders in Vietnam to explore the experiences, attitudes, and expectations that inform ethical and effective approaches to sharing clinical research data. Distinct views on the role of trust, respect, and reciprocity were among those that emerged to inform culturally appropriate best practices. We conclude by discussing the challenges that authors of data-sharing policies should consider in this unique context.
Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Atitude
/
Comportamento Cooperativo
/
Cultura
/
Disseminação de Informação
/
Confiança
/
Pesquisa Biomédica
/
Políticas
Tipo de estudo:
Guideline
/
Prognostic_studies
/
Qualitative_research
Aspecto:
Determinantes_sociais_saude
/
Ethics
Limite:
Humans
País/Região como assunto:
Asia
Idioma:
En
Revista:
J Empir Res Hum Res Ethics
Ano de publicação:
2015
Tipo de documento:
Article