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Characterization and utilization of an international neurofibromatosis web-based, patient-entered registry: An observational study.
Seidlin, Mindell; Holzman, Robert; Knight, Pamela; Korf, Bruce; Rangel Miller, Vanessa; Viskochil, David; Bakker, Annette.
Afiliação
  • Seidlin M; Children's Tumor Foundation, New York, United States of America.
  • Holzman R; Department of Medicine, New York University School of Medicine, New York, United States of America.
  • Knight P; Children's Tumor Foundation, New York, United States of America.
  • Korf B; Department of Genetics, University of Alabama at Birmingham, Birmingham, Alabama, United States of America.
  • Rangel Miller V; Invitae, San Francisco, California, United States of America.
  • Viskochil D; Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, Utah, United States of America.
  • Bakker A; Children's Tumor Foundation, New York, United States of America.
PLoS One ; 12(6): e0178639, 2017.
Article em En | MEDLINE | ID: mdl-28644838
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Sistema de Registros / Neurofibromatoses / Internet Tipo de estudo: Observational_studies / Prognostic_studies Aspecto: Patient_preference Limite: Adolescent / Adult / Aged / Aged80 / Child / Child, preschool / Female / Humans / Infant / Male Idioma: En Revista: PLoS One Ano de publicação: 2017 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Sistema de Registros / Neurofibromatoses / Internet Tipo de estudo: Observational_studies / Prognostic_studies Aspecto: Patient_preference Limite: Adolescent / Adult / Aged / Aged80 / Child / Child, preschool / Female / Humans / Infant / Male Idioma: En Revista: PLoS One Ano de publicação: 2017 Tipo de documento: Article