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Lessons Learned From A Study Of Genomics-Based Carrier Screening For Reproductive Decision Making.
Wilfond, Benjamin S; Kauffman, Tia L; Jarvik, Gail P; Reiss, Jacob A; Richards, C Sue; McMullen, Carmit; Gilmore, Marian; Himes, Patricia; Kraft, Stephanie A; Porter, Kathryn M; Schneider, Jennifer L; Punj, Sumit; Leo, Michael C; Dickerson, John F; Lynch, Frances L; Clarke, Elizabeth; Rope, Alan F; Lutz, Kevin; Goddard, Katrina A B.
Afiliação
  • Wilfond BS; Benjamin S. Wilfond ( benjamin.wilfond@seattlechildrens.org ) is director of the Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital and Research Institute, and of the Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicin
  • Kauffman TL; Tia L. Kauffman is a project director at the Center for Health Research, Kaiser Permanente Northwest, in Portland, Oregon.
  • Jarvik GP; Gail P. Jarvik is a professor in the Division of Medical Genetics, Department of Medicine, and in the Department of Genome Sciences, both at the University of Washington.
  • Reiss JA; Jacob A. Reiss is a medical geneticist at the Center for Health Research, Kaiser Permanente Northwest.
  • Richards CS; C. Sue Richards is a professor in the Knight Diagnostic Laboratories, Oregon Health & Science University, in Portland.
  • McMullen C; Carmit McMullen is a senior investigator at the Center for Health Research, Kaiser Permanente Northwest.
  • Gilmore M; Marian Gilmore is a genetic counselor in the Department of Medical Genetics at Kaiser Permanente Northwest.
  • Himes P; Patricia Himes is a genetic counselor in the Department of Medical Genetics at Kaiser Permanente Northwest.
  • Kraft SA; Stephanie A. Kraft is an acting assistant professor in the Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital and Research Institute, and in the Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicine.
  • Porter KM; Kathryn M. Porter is a research scientist in the Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital and Research Institute.
  • Schneider JL; Jennifer L. Schneider is a research associate III at the Center for Health Research, Kaiser Permanente Northwest.
  • Punj S; Sumit Punj is a senior clinical scientist in the Clinical Genomics Program, GeneDx, in Gaithersburg, Maryland.
  • Leo MC; Michael C. Leo is an investigator at the Center for Health Research, Kaiser Permanente Northwest.
  • Dickerson JF; John F. Dickerson is an investigator at the Center for Health Research, Kaiser Permanente Northwest.
  • Lynch FL; Frances L. Lynch is a senior investigator at the Center for Health Research, Kaiser Permanente Northwest.
  • Clarke E; Elizabeth Clarke is a research associate III at the Center for Health Research, Kaiser Permanente Northwest.
  • Rope AF; Alan F. Rope is a staff physician at Northwest Permanente, Kaiser Permanente Northwest.
  • Lutz K; Kevin Lutz is publications manager at the Center for Health Research, Kaiser Permanente Northwest.
  • Goddard KAB; Katrina A. B. Goddard is associate director, research programs, at the Center for Health Research, Kaiser Permanente Northwest.
Health Aff (Millwood) ; 37(5): 809-816, 2018 05.
Article em En | MEDLINE | ID: mdl-29733724
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Triagem Neonatal / Genômica / Atenção à Saúde / Tomada de Decisão Clínica / Doenças Genéticas Inatas / Triagem de Portadores Genéticos Tipo de estudo: Diagnostic_studies / Etiology_studies / Prognostic_studies / Qualitative_research / Screening_studies Aspecto: Determinantes_sociais_saude / Ethics Limite: Female / Humans / Male / Newborn / Pregnancy País/Região como assunto: America do norte Idioma: En Revista: Health Aff (Millwood) Ano de publicação: 2018 Tipo de documento: Article
Texto completo
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Triagem Neonatal / Genômica / Atenção à Saúde / Tomada de Decisão Clínica / Doenças Genéticas Inatas / Triagem de Portadores Genéticos Tipo de estudo: Diagnostic_studies / Etiology_studies / Prognostic_studies / Qualitative_research / Screening_studies Aspecto: Determinantes_sociais_saude / Ethics Limite: Female / Humans / Male / Newborn / Pregnancy País/Região como assunto: America do norte Idioma: En Revista: Health Aff (Millwood) Ano de publicação: 2018 Tipo de documento: Article