Discovering aspects of health-experiences of a web-based health diary among adults with primary immunodeficiency.
Nurs Open
; 5(4): 642-648, 2018 Oct.
Article
em En
| MEDLINE
| ID: mdl-30338110
ABSTRACT
AIM:
Advances in technology generate new opportunities to develop e-health tools to help individuals in self-management by assessing symptoms of illness and its relation to treatments. Self-management is central when living with primary immunodeficiency diseases. The aim was to explore the experiences of people living with primary immunodeficiency, who used a pilot version of the web-based health diary.DESIGN:
Explorative design.METHODS:
In total, 16 participants (median age 59) attended one of three focus groups. Inductive content analysis was used.RESULTS:
The participants could be encouraged to discover aspects of their health by contributing to documentation which could support the health concept. A greater understanding about their own health and communicating with healthcare professionals during encounters was expressed. The web-based health diary is a helpful tool to discover aspects of health that affects the individuals' life situation and assists the self-management of a long-term condition such as immunodeficiency.
Texto completo:
1
Coleções:
01-internacional
Contexto em Saúde:
1_ASSA2030
Base de dados:
MEDLINE
Tipo de estudo:
Qualitative_research
Idioma:
En
Revista:
Nurs Open
Ano de publicação:
2018
Tipo de documento:
Article