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The genome empowerment scale: An assessment of parental empowerment in families with undiagnosed disease.
McConkie-Rosell, Allyn; Schoch, Kelly; Sullivan, Jennifer; Cope, Heidi; Spillmann, Rebecca; Palmer, Christina G S; Pena, Loren; Jiang, Yong-Hui; Daniels, Nicole; Walley, Nicole; Tan, Khoon G; Hooper, Stephen R; Shashi, Vandana.
Afiliação
  • McConkie-Rosell A; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina.
  • Schoch K; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina.
  • Sullivan J; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina.
  • Cope H; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina.
  • Spillmann R; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina.
  • Palmer CGS; Department of Psychiatry and Biobehavioral Sciences, UCLA Semel Institute, Los Angeles, California.
  • Pena L; Division of Human Genetics, Cincinnati Children's Hospital Medical Center, Department of Pediatrics, University of Cincinnati School of Medicine.
  • Jiang YH; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina.
  • Daniels N; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina.
  • Walley N; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina.
  • Tan KG; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina.
  • Hooper SR; Department of Allied Health Sciences, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina.
  • Shashi V; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina.
Clin Genet ; 96(6): 521-531, 2019 12.
Article em En | MEDLINE | ID: mdl-31448412
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Genoma Humano / Doenças não Diagnosticadas / Empoderamento Tipo de estudo: Prognostic_studies Limite: Adult / Female / Humans / Male Idioma: En Revista: Clin Genet Ano de publicação: 2019 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Genoma Humano / Doenças não Diagnosticadas / Empoderamento Tipo de estudo: Prognostic_studies Limite: Adult / Female / Humans / Male Idioma: En Revista: Clin Genet Ano de publicação: 2019 Tipo de documento: Article