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Why parents consent to their children's participation in genetic research: A study of parental decision making.
Kumari, Sunita; Bhatia, Triptish; Mishra, Nagendra N; Kumari, Nupur; Narayanan, Sreelatha S; Malik, Deepak; Deshpande, Smita N.
Afiliação
  • Kumari S; Social Worker, Dept. of Psychiatric Social Work, Centre of Excellence in Mental Health, Atal Bihari Vajpayee Institute of Medical Sciences (formerly PGIMER) and Dr Ram Manohar Lohia Hospital , New Delhi 110 001, INDIA.
  • Bhatia T; Senior Research Scientist, Indo-US Projects, Centre of Excellence in Mental Health, Dept. of Psychiatry, Atal Bihari Vajpayee Institute of Medical Sciences and Dr Ram Manohar Lohia .Hospital, New Delhi-110001, INDIA.
  • Mishra NN; Assistant Professor and HOD, Dept. of Psychology, LS College, Muzaffarpur, Bihar, INDIA.
  • Kumari N; Junior Research Fellow, SATYAM project, Centre of Excellence in Mental Health, Dept. of Psychiatry, Atal Bihari Vajpayee Institute of Medical Sciences and Dr Ram Manohar Lohia.Hospital, New Delhi 110 001, INDIA.
  • Narayanan SS; Senior Research Fellow, Institute of Home Economics, University of Delhi, Delhi, INDIA.
  • Malik D; Scientist 'B', Division of Sociobehavioural and Health Systems Research, Indian Council of Medical Research, New Delhi 110 001 INDIA.
  • Deshpande SN; Senior Consultant and Professor, Dept. of Psychiatry, Centre of Excellence in Mental Health, Atal Bihari Vajpayee Institute of Medical Sciences and Dr. Ram Manohar Lohia Hospital, New Delhi 110001, INDIA.
Indian J Med Ethics ; 4 (NS)(4)2019.
Article em En | MEDLINE | ID: mdl-31791933
ABSTRACT
Parents need to be asked to provide informed consent on behalf of their child for participation in genetic research. Decision making for such parents is difficult because ethical challenges in paediatric genetic research studies are different from similar adult studies. This paper focuses on interviews conducted with parents who were asked to consent to their children's participation (or not) in a genetic research study of intellectual disability and/or autism.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Participação do Paciente / Tomada de Decisões / Pesquisa em Genética / Consentimento Informado por Menores Tipo de estudo: Qualitative_research Aspecto: Ethics / Patient_preference Limite: Adolescent / Adult / Child / Child, preschool / Female / Humans / Infant / Male / Middle aged / Newborn País/Região como assunto: Asia Idioma: En Revista: Indian J Med Ethics Ano de publicação: 2019 Tipo de documento: Article
Texto completo
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Participação do Paciente / Tomada de Decisões / Pesquisa em Genética / Consentimento Informado por Menores Tipo de estudo: Qualitative_research Aspecto: Ethics / Patient_preference Limite: Adolescent / Adult / Child / Child, preschool / Female / Humans / Infant / Male / Middle aged / Newborn País/Região como assunto: Asia Idioma: En Revista: Indian J Med Ethics Ano de publicação: 2019 Tipo de documento: Article