Improving the impact of clinical documentation through patient-driven co-design: experiences with cancer pathology reports.
BMJ Health Care Inform
; 27(3)2020 Dec.
Article
em En
| MEDLINE
| ID: mdl-33334872
ABSTRACT
OBJECTIVE:
With the unprecedented rise of patient access to clinical documentation through electronic health records, there is a need for health systems to understand best practices for redesigning clinical documentation to support patient needs. This study used an experience-based co-design approach to inform the redesign of cancer pathology reports to improve their patient-centeredness and impact on patient engagement. MATERIALS ANDMETHODS:
Multiple methods for data collection and stakeholder engagement were used, including Delphi prioritisation with breast and colorectal cancer experts (n=78) and focus groups with patients with cancer (n=23) in the Seattle area. Iterative rounds of consensus generation and reflection were used to elicit themes and design recommendations for the development of patient-centred pathology reports on cancer care.RESULTS:
Although each cancer type had nuanced elements to consider, common design requirements emerged around two key themes (1) clinical documentation language should be framed in a way that informs and engages patients, and (2) clinical documentation format should be leveraged to enhance readability and information flow. Study activities illuminated detailed recommendations to improve the patient-centeredness of pathology reports based on patients' and clinicians' lived experience.DISCUSSION:
The design requirements that emerged from this study provide a framework that can guide the rapid development of patient-centred pathology reports for all cancer types. Even further, health systems can replicate these methods to guide experience-based co-design of clinical documentation for contexts beyond cancer care.CONCLUSION:
This work offers practice-based learnings that can more effectively guide health systems in their clinical documentation redesign efforts.Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Contexto em Saúde:
1_ASSA2030
Base de dados:
MEDLINE
Assunto principal:
Patologia Clínica
/
Acesso dos Pacientes aos Registros
/
Documentação
/
Registros Eletrônicos de Saúde
/
Neoplasias
Tipo de estudo:
Guideline
/
Qualitative_research
Limite:
Humans
Idioma:
En
Revista:
BMJ Health Care Inform
Ano de publicação:
2020
Tipo de documento:
Article