Challenges in Chronic Genetic Disorders: Lessons From the COVID-19 Pandemic.
Indian Pediatr
; 58(4): 391-392, 2021 Apr 15.
Article
em En
| MEDLINE
| ID: mdl-33883315
ABSTRACT
To examine the impact of the COVID-19 pandemic, we interviewed 26 patients with lysosomal storage disorders receiving enzyme replacement therapy. 20 (77 %) had significant interruption in their treatment, with an average of 8 (range 2-28) missed doses. Alternate methods of delivering uninterrupted care including home therapy were used. Vulnerable patients with chronic genetic disorders require organization for their multidisciplinary needs of care.
Texto completo:
1
Coleções:
01-internacional
Contexto em Saúde:
11_ODS3_cobertura_universal
/
1_ASSA2030
/
2_ODS3
/
4_TD
Base de dados:
MEDLINE
Assunto principal:
Doenças por Armazenamento dos Lisossomos
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Conduta do Tratamento Medicamentoso
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Terapia de Reposição de Enzimas
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COVID-19
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Acessibilidade aos Serviços de Saúde
Aspecto:
Determinantes_sociais_saude
Limite:
Adolescent
/
Female
/
Humans
/
Male
País/Região como assunto:
Asia
Idioma:
En
Revista:
Indian Pediatr
Ano de publicação:
2021
Tipo de documento:
Article