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Do Personal Stories Make Patient Decision Aids More Effective? An Update from the International Patient Decision Aids Standards.
Shaffer, Victoria A; Brodney, Suzanne; Gavaruzzi, Teresa; Zisman-Ilani, Yaara; Munro, Sarah; Smith, Sian K; Thomas, Elizabeth; Valentine, Katherine D; Bekker, Hilary L.
Afiliação
  • Shaffer VA; Department of Psychological Sciences, University of Missouri, Columbia, MO, USA.
  • Brodney S; Division of Internal Medicine, Massachusetts General Hospital, Padova, Veneto, Italy.
  • Gavaruzzi T; Department of Developmental Psychology and Socialization, Universita degli Studi di Padova Scuola di Psicologia, Padova, Veneto, Italy.
  • Zisman-Ilani Y; Department of Social and Behavioral Sciences, Temple University, Philadelphia, PA, USA.
  • Munro S; Department of Obstetrics and Gynaecology, University of British Columbia, Vancouver, BC, Canada.
  • Smith SK; Faculty of Medicine, University of New South Wales, Sydney, New South Wales, Australia.
  • Thomas E; Department of Social and Behavioral Sciences, Temple University, Philadelphia, PA, USA.
  • Valentine KD; Health Decision Sciences Center, Massachusetts General Hospital, Boston, MA, USA.
  • Bekker HL; Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK.
Med Decis Making ; 41(7): 897-906, 2021 10.
Article em En | MEDLINE | ID: mdl-34027739
ABSTRACT

BACKGROUND:

This article evaluates the evidence for the inclusion of patient narratives in patient decision aids (PtDAs). We define patient narratives as stories, testimonials, or anecdotes that provide illustrative examples of the experiences of others that are relevant to the decision at hand.

METHOD:

To evaluate the evidence for the effectiveness of narratives in PtDAs, we conducted a narrative scoping review of the literature from January 2013 through June 2019 to identify relevant literature published since the last International Patient Decision Aid Standards (IPDAS) update in 2013. We considered research articles that examined the impact of narratives on relevant outcomes or described relevant theoretical mechanisms.

RESULTS:

The majority of the empirical work on narratives did not measure concepts that are typically found in the PtDA literature (e.g., decisional conflict). Yet, a few themes emerged from our review that can be applied to the PtDA context, including the impact of narratives on relevant outcomes (knowledge, behavior change, and psychological constructs), as well as several theoretical mechanisms about how and why narratives work that can be applied to the PtDA context.

CONCLUSION:

Based on this evidence update, we suggest that there may be situations when narratives could enhance the effectiveness of PtDAs. The recent theoretical work on narratives has underscored the fact that narratives are a multifaceted construct and should no longer be considered a binary option (include narratives or not). However, the bottom line is that the evidence does not support a recommendation for narratives to be a necessary component of PtDAs.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Participação do Paciente / Técnicas de Apoio para a Decisão Tipo de estudo: Prognostic_studies / Qualitative_research Aspecto: Patient_preference Limite: Humans Idioma: En Revista: Med Decis Making Ano de publicação: 2021 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Participação do Paciente / Técnicas de Apoio para a Decisão Tipo de estudo: Prognostic_studies / Qualitative_research Aspecto: Patient_preference Limite: Humans Idioma: En Revista: Med Decis Making Ano de publicação: 2021 Tipo de documento: Article