Should We Stop Calling Thanatophoric Dysplasia a Lethal Condition? A Case Report of a Long-Term Survivor.

Carroll, Ricki S; Duker, Angela L; Schelhaas, Andrea J; Little, Mary Ellen; Miller, Elissa G; Bober, Michael B

Carroll, Ricki S; Duker, Angela L; Schelhaas, Andrea J; Little, Mary Ellen; Miller, Elissa G; Bober, Michael B.

Afiliação

Carroll RS; Division of Orthogenetics, Nemours/Alfred I. duPont Hospital for Children, Wilmington, Delaware, USA.
Duker AL; Division of Palliative Medicine, Nemours/Alfred I. duPont Hospital for Children, Wilmington, Delaware, USA.
Schelhaas AJ; Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, USA.
Little ME; Division of Orthogenetics, Nemours/Alfred I. duPont Hospital for Children, Wilmington, Delaware, USA.
Miller EG; Division of Orthogenetics, Nemours/Alfred I. duPont Hospital for Children, Wilmington, Delaware, USA.
Bober MB; Division of Orthogenetics, Nemours/Alfred I. duPont Hospital for Children, Wilmington, Delaware, USA.

Palliat Med Rep ; 1(1): 32-39, 2020.

Article em En | MEDLINE | ID: mdl-34223453

Palavras-chave

lethal condition; pediatric palliative care; perinatal palliative care; prognosis; rare disease; skeletal dysplasia; thanatophoric dysplasia

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Prognostic_studies Aspecto: Patient_preference Idioma: En Revista: Palliat Med Rep Ano de publicação: 2020 Tipo de documento: Article

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