A qualitative investigation of reasoning behind decisions to decline participation in a research intervention: A study-within-a-trial.
J Health Psychol
; 28(4): 374-387, 2023 03.
Article
em En
| MEDLINE
| ID: mdl-34355599
ABSTRACT
The current study-within-a-trial explored individuals' decisions to decline participation in research trialling a chronic illness-focused therapy (i.e. multiple sclerosis). Four themes were identified from seven semi-structured interviews with participation decliners and were confirmed by the host trial's Patient & Public Involvement (PPI) panel acknowledgement of the value of research; 'fit' of the study; misinterpretation of participant information; and 'ignorance is bliss' - discussed in light of theory and research. This study-within-a-trial extends research on trial recruitment and participation decline; while also suggesting that PPI can be utilised in both a practical and impactful manner.
Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Contexto em Saúde:
1_ASSA2030
Base de dados:
MEDLINE
Assunto principal:
Resolução de Problemas
/
Esclerose Múltipla
Tipo de estudo:
Qualitative_research
Limite:
Humans
Idioma:
En
Revista:
J Health Psychol
Ano de publicação:
2023
Tipo de documento:
Article