[Quality of life and exercise tolerance tools in children/adolescents with cystic fibrosis: Systematic review]. / Herramientas de evaluación de calidad de vida y tolerancia al ejercicio en niños y adolescentes con fibrosis quística: revisión sistemática.
Med Clin (Barc)
; 158(11): 519-530, 2022 06 10.
Article
em En, Es
| MEDLINE
| ID: mdl-34507821
ABSTRACT
INTRODUCTION:
This systematic review aims to analyze the validity and reliability of available tools to assess health-related quality of life (HRQoL) and exercise tolerance in children and adolescents with cystic fibrosis (CF). MATERIALS ANDMETHODS:
A review of observational studies studying the validity and reliability of the tools was conducted. The COSMIN (COnsesus-based Standards for the selection of health Measurements INstruments) guide was followed to analyze the quality of these tools.RESULTS:
A total of 18 studies were selected. Of the eight HRQoL tools, five generic and three specific, analyzed in 14 studies, the Cystic Fibrosis Questionnaire-Revised (CFQ-R) presents the best properties. Of the four tools analyzed to assess exercise tolerance, cycle ergometry and the modified shuttle test are the most valid and reliable.CONCLUSIONS:
The CFQ-R, cycloergometry and the modified shuttle test have the best properties for the assessment of children with CF, but more studies are needed.Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Qualidade de Vida
/
Fibrose Cística
Tipo de estudo:
Observational_studies
/
Qualitative_research
/
Systematic_reviews
Aspecto:
Patient_preference
Limite:
Adolescent
/
Child
/
Humans
Idioma:
En
/
Es
Revista:
Med Clin (Barc)
Ano de publicação:
2022
Tipo de documento:
Article