"I'd feel like someone was watchin' me
watching for a good reason": perceptions of data privacy, access, and sharing in the context of real-time PrEP adherence monitoring among HIV-negative MSM with substance use.
AIDS Behav
; 26(9): 2981-2993, 2022 Sep.
Article
em En
| MEDLINE
| ID: mdl-35303187
ABSTRACT
Once-daily oral tenofovir/emtricitabine is highly effective as pre-exposure prophylaxis (PrEP) against HIV but is dependent on adherence, which may be challenging for men who have sex with men (MSM) and use substances. Digital pill systems (DPS) permit the direct, real-time measurement of adherence, though user perceptions of data privacy in this context are unknown. Thirty prospective DPS users - HIV-negative MSM with non-alcohol substance use - completed in-depth qualitative interviews exploring preferences around privacy, access, and sharing of DPS adherence data. Participants discussed some concerns about the impact of DPS use on personal privacy, and emphasized the need for robust data protections in the technology. Participants were interested in having on-demand access to their adherence data, and were most willing to share data with primary care providers and long-term relationship partners. Future investigations exploring bioethical frameworks around DPS use are warranted, and user preferences should inform best practices for protecting DPS data.
Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Contexto em Saúde:
11_ODS3_cobertura_universal
/
1_ASSA2030
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2_ODS3
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8_ODS3_consumo_sustancias_psicoactivas
Base de dados:
MEDLINE
Assunto principal:
Infecções por HIV
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Fármacos Anti-HIV
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Transtornos Relacionados ao Uso de Substâncias
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Profilaxia Pré-Exposição
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Minorias Sexuais e de Gênero
Tipo de estudo:
Guideline
/
Observational_studies
/
Qualitative_research
Aspecto:
Ethics
Limite:
Humans
/
Male
Idioma:
En
Revista:
AIDS Behav
Ano de publicação:
2022
Tipo de documento:
Article