Big advocacy, little recognition: the hidden work of Black patients in precision medicine.

Gerido, Lynette Hammond; Resnicow, Kenneth; Stoffel, Elena M; Tomlin, Tiah; Cook-Deegan, Robert; Cline, Melissa; Coffin, Amy; Holdren, Jill; Majumder, Mary Anderlik; He, Zhe

Gerido, Lynette Hammond; Resnicow, Kenneth; Stoffel, Elena M; Tomlin, Tiah; Cook-Deegan, Robert; Cline, Melissa; Coffin, Amy; Holdren, Jill; Majumder, Mary Anderlik; He, Zhe.

Afiliação

Gerido LH; Department of Bioethics, School of Medicine, Case Western Reserve University, 10900 Euclid Ave, Cleveland, OH, 44106-4976, USA. lynette.gerido@case.edu.
Resnicow K; School of Public Health, University of Michigan, Ann Arbor, MI, USA.
Stoffel EM; Rogel Cancer Center, University of Michigan, Ann Arbor, MI, USA.
Tomlin T; Patient Advocate, Atlanta, GA, USA.
Cook-Deegan R; Arizona State University, Washington, DC, USA.
Cline M; University of California Santa Cruz, Santa Cruz, CA, USA.
Coffin A; Virginia Commonwealth University, Richmond, VA, USA.
Holdren J; Patient Advocate, Boulder, CO, USA.
Majumder MA; Baylor College of Medicine, Houston, TX, USA.
He Z; Florida State University, Tallahassee, FL, USA.

J Community Genet ; 14(6): 657-665, 2023 Dec.

Article em En | MEDLINE | ID: mdl-37775604

Palavras-chave

African Americans; Biomedical research; Breast cancer; Data ethics; Genetic testing, Advocacy

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Texto completo: 1 Coleções: 01-internacional Contexto em Saúde: 1_ASSA2030 Base de dados: MEDLINE Tipo de estudo: Qualitative_research Idioma: En Revista: J Community Genet Ano de publicação: 2023 Tipo de documento: Article

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