In Their Own Words: Fears Expressed by People with Parkinson's Disease in an Online Symptom Database.
J Parkinsons Dis
; 14(4): 865-872, 2024.
Article
em En
| MEDLINE
| ID: mdl-38669556
ABSTRACT
Parkinson's disease (PD) carries substantial psychosocial burden. Using a database of responses by people with PD reporting up to five "most bothersome problems," we identified 225 fear-based verbatims, which were organized using the framework method into 26 categories. Commonly-reported fears included uncertainty of progression (nâ=â60, 26.7%), fear of future cognitive impairment (nâ=â24, 10.7%) and fear of becoming a burden on others (nâ=â23, 10.2%). Fears in PD are wide-ranging and can constitute the most bothersome aspect of the condition. These data can be used to design interventions to lessen the psychosocial burden of PD.
Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Doença de Parkinson
/
Bases de Dados Factuais
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Medo
Limite:
Aged
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Aged80
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Female
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Humans
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Male
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Middle aged
Idioma:
En
Revista:
J Parkinsons Dis
Ano de publicação:
2024
Tipo de documento:
Article