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In Their Own Words: Fears Expressed by People with Parkinson's Disease in an Online Symptom Database.
Mantri, Sneha; Purks, Jennifer L; Kinel, Daniel; Arbatti, Lakshmi; Hosamath, Abhishek; Allen, Allison; Amara, Amy; Anderson, Karen; Chahine, Lana M; Eberly, Shirley; Mathur, Soania; Standaert, David; Oakes, David; Weintraub, Daniel; Shoulson, Ira; Marras, Connie.
Afiliação
  • Mantri S; Department of Neurology, Duke University, Durham, NC, USA.
  • Purks JL; Department of Neurology, University of Rochester, Rochester, NY, USA.
  • Kinel D; Department of Neurology, Center for Health + Technology, University of Rochester Medical Center, Rochester, NY, USA.
  • Arbatti L; Grey Matter Technologies, A Wholly Owned Subsidiary of Modality.ai, San Francisco, CA, USA.
  • Hosamath A; Grey Matter Technologies, A Wholly Owned Subsidiary of Modality.ai, San Francisco, CA, USA.
  • Allen A; Department of Neurology, Duke University, Durham, NC, USA.
  • Amara A; Department of Neurology, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
  • Anderson K; Department of Psychiatry and Department of Neurology, Georgetown University, Washington, DC, USA.
  • Chahine LM; Department of Neurology, University of Pittsburgh, Pittsburgh, PA, USA.
  • Eberly S; Department of Biostatistics and Computational Biology, University of Rochester, Rochester, NY, USA.
  • Mathur S; PD Avengers, Toronto, Canada.
  • Standaert D; Department of Neurology, University of Alabama at Birmingham, Birmingham, AL, USA.
  • Oakes D; Department of Biostatistics and Computational Biology, University of Rochester, Rochester, NY, USA.
  • Weintraub D; Departments of Psychiatry and Neurology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.
  • Shoulson I; Department of Neurology, University of Rochester, Rochester, NY, USA.
  • Marras C; Grey Matter Technologies, A Wholly Owned Subsidiary of Modality.ai, San Francisco, CA, USA.
J Parkinsons Dis ; 14(4): 865-872, 2024.
Article em En | MEDLINE | ID: mdl-38669556
ABSTRACT
Parkinson's disease (PD) carries substantial psychosocial burden. Using a database of responses by people with PD reporting up to five "most bothersome problems," we identified 225 fear-based verbatims, which were organized using the framework method into 26 categories. Commonly-reported fears included uncertainty of progression (n = 60, 26.7%), fear of future cognitive impairment (n = 24, 10.7%) and fear of becoming a burden on others (n = 23, 10.2%). Fears in PD are wide-ranging and can constitute the most bothersome aspect of the condition. These data can be used to design interventions to lessen the psychosocial burden of PD.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Doença de Parkinson / Bases de Dados Factuais / Medo Limite: Aged / Aged80 / Female / Humans / Male / Middle aged Idioma: En Revista: J Parkinsons Dis Ano de publicação: 2024 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Doença de Parkinson / Bases de Dados Factuais / Medo Limite: Aged / Aged80 / Female / Humans / Male / Middle aged Idioma: En Revista: J Parkinsons Dis Ano de publicação: 2024 Tipo de documento: Article