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Returning value to the community through the All of Us Research Program Data Sandbox model.
Cohn, Elizabeth; Kleiman, Frida Esther; Muhammad, Shayaa; Jones, S Scott; Pourkey, Nakisa; Bier, Louise.
Afiliação
  • Cohn E; Northwell Health, Institute of Health Systems Science, Manhasset, NY 11030, United States.
  • Kleiman FE; Chemistry Department, Hunter College, The City University of New York, New York, NY 10065, United States.
  • Muhammad S; Northwell Health, Institute of Health Systems Science, Manhasset, NY 11030, United States.
  • Jones SS; Northwell Health, Institute of Health Systems Science, Manhasset, NY 11030, United States.
  • Pourkey N; Northwell Health, Institute of Health Systems Science, Manhasset, NY 11030, United States.
  • Bier L; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY 10029, United States.
Article em En | MEDLINE | ID: mdl-39078280
ABSTRACT

OBJECTIVE:

The All of Us Research Program aims to return value to participants by developing research capacity in communities. We describe a novel set of introductory exercises (Data Sandboxes) and specialized trainings to orient researchers to the Researcher Workbench to foster health equity research. MATERIALS AND

METHODS:

We developed a tailored training to familiarize researchers with the All of Us Research Program (1) orientation, (2) tailored "data treasure hunt" using the Public Data Browser, and (3) overview of the analyses tools and platform.

RESULTS:

Participants' pre- and post-knowledge of the contents and structure of the All of Us dataset scores increased significantly after training. These trainings effectively engaged researchers in exploring this rich dataset.

CONCLUSION:

We describe ways of orienting and familiarizing a wide variety of researchers with the All of Us Research Program dataset, sparking their interest, and "jump-starting" their research.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: J Am Med Inform Assoc Ano de publicação: 2024 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: J Am Med Inform Assoc Ano de publicação: 2024 Tipo de documento: Article