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1.
Am J Bioeth ; 23(11): 11-23, 2023 11.
Artigo em Inglês | MEDLINE | ID: mdl-37262312

RESUMO

It has become increasingly difficult for individuals to exercise meaningful control over the personal data they disclose to companies or to understand and track the ways in which that data is exchanged and used. These developments have led to an emerging consensus that existing privacy and data protection laws offer individuals insufficient protections against harms stemming from current data practices. However, an effective and ethically justified way forward remains elusive. To inform policy in this area, we propose the Ethical Data Practices framework. The framework outlines six principles relevant to the collection and use of personal data-minimizing harm, fairly distributing benefits and burdens, respecting autonomy, transparency, accountability, and inclusion-and translates these principles into action-guiding practical imperatives for companies that process personal data. In addition to informing policy, the practical imperatives can be voluntarily adopted by companies to promote ethical data practices.


Assuntos
Confidencialidade , Privacidade , Humanos
3.
Am J Bioeth ; 22(7): 60-63, 2022 07.
Artigo em Inglês | MEDLINE | ID: mdl-35737478

Assuntos
Privacidade , Humanos
4.
Hastings Cent Rep ; 54(3): 2, 2024 May.
Artigo em Inglês | MEDLINE | ID: mdl-38842868

RESUMO

The privacy of the dead is an interesting area of concern for bioethicists. There is a legal doctrine that the dead can't have privacy rights, but also a body of contrary law ascribing privacy rights to the deceased and kin in relation to the deceased. As women's abortion privacy is under assault by American courts and legislatures, the implications of ascribing privacy rights to embryos and fetuses is more important than ever. Caution is called for in this domain.


Assuntos
Aborto Induzido , Privacidade , Humanos , Feminino , Estados Unidos , Aborto Induzido/legislação & jurisprudência , Aborto Induzido/ética , Privacidade/legislação & jurisprudência , Gravidez , Aborto Legal/legislação & jurisprudência , Aborto Legal/ética
5.
AMA J Ethics ; 24(12): E1121-1128, 2022 12 01.
Artigo em Inglês | MEDLINE | ID: mdl-36520966

RESUMO

To improve health outcomes, the science and practice of medicine must move quickly in response to new information. Yet, in other important ways, health professionals must operate slowly and in a mode of intentional stillness to center empathy and light a path from empathy to solidarity. Solidarity, or standing with, prompts efforts to create circumstances in which disadvantaged communities can achieve health equity. This article argues for intentional stillness and solidarity to inspire ethical conduct and structural change. In the case presented, inaction and delay, which are neither virtuous nor antiracist forms of stillness in this context, would leave intact the status quo of disparity and inequity in cardiac medicine.


Assuntos
Equidade em Saúde , Humanos , Populações Vulneráveis , Desigualdades de Saúde
7.
Trends Cogn Sci ; 19(10): 549-551, 2015 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-26412093

RESUMO

Media outlets are reporting that cognitive enhancement is reaching epidemic levels, but evidence is lacking and ethical questions remain. The US Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has examined the issue, and we lay out the commission's findings and their relevance for the scientific community.


Assuntos
Terapia Cognitivo-Comportamental/ética , Ciência Cognitiva/ética , Bioética , Cognição/efeitos dos fármacos , Cognição/fisiologia , Terapia Cognitivo-Comportamental/métodos , Ciência Cognitiva/métodos , Humanos
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