[Guideline-based Care for patients with malignant lesions : The new S3 guideline for patients with incurable cancer]. / Leitliniengerechte Versorgung von Patienten mit malignen Wunden : Die neue S3-Leitlinie für Patienten mit einer nichtheilbaren Krebserkrankung.

The German Association of Palliative Care developed an evidence-based guideline about the management of malignant wounds in adult patients with incurable cancer. There is a lack of evidence-based guidelines about fungating wounds and a confusing wide range of available wound dressings. The goal of the guideline is to reduce the suffering of patients with malignant wounds and stabilize or improve their quality of life. The guideline is constructed following the German Instrument for Methodological Guideline Appraisal (DELBI): A systematic review was carried out for guidelines and reviews. A wound expert group discussed these research findings and suggested recommendations which were adapted and consented by representatives of 62 medical and health professionals associations.The guideline has 34 recommendations, thereof nine (26%) are evidence based with an evidence level from 2+ to 4 (according to SIGN). The assessment chapter comprises specific assessment tools for malignant wounds, odor and wound-related quality of life. Three recommendations address the psychosocial support of patients and their family caregivers and aim to reduce the impact of the wound on their emotional wellbeing, caregiver burden and social participation. The pain recommendations focus on a preventive atraumatic dressing change, positioning, systemic pain medication (anticipated, rescue and baseline) and local application of morphine or local anesthetics. The guideline gives recommendations on odor management (metronidazole, active coal and antiseptic dressings) and management of exudate (super absorber). The recommendations on prevention and management of bleeding (antifibrinolytica, haemostyptica) are vital for patients and caregivers. This guideline is one of the first evidence-based and consented guideline on malignant wound care and has the potential to improve the palliation of patients who suffer from there malignant wounds.

Communication about the desire to die: Development and evaluation of a first needs-oriented training concept - A pilot study.

OBJECTIVE: Patients' desire to die (DD) is rarely discussed in palliative care (PC) due to health professionals' (HPs) feeling of uncertainty. The aim of the study was to develop and evaluate a training to increase HPs' self-confidence in responding professionally to patient's DD and to assess the feasibility of this approach. METHODS: The training course was developed via focus groups and relevant literature and refined with an advisory board. An evaluation design was developed to evaluate training outcomes and to examine feasibility. To assess self-confidence, knowledge, skills, and attitudes: (1) standardized surveys were applied at T1 (before training), T2 (directly after), and T3 (3 months later), and were analyzed by descriptive and non-parametric statistics; and (2) participants' open feedback was summarized by content. RESULTS: A two-day multi-disciplinary training was developed to improve self-confidence via diverse teaching methods. Twenty-four HPs from general and specialized PC were participated. Via self-rating on Likert scales at three time points, improvements were seen at T1, T2, and partly remained at T3, especially in the overall item of self-confidence in communicating with patients about their DD (means: 4.3. at T1, 5.7 at T2, and 5.9 at T3; on a 7-point scale with 1 = lowest value and 7 = highest value). Fewer improvements were found in skills (using different approaches) and attitudes (feeling less helplessness). Open feedback revealed a high appreciation for the training, especially the composition of participants, the role-play, and the overall increase of awareness of the topic. SIGNIFICANCE OF RESULTS: The developed training on addressing DD meets a need and was perceived by the participants to be of added value. Future research should measure training effects with a validated instrument, including more participants, diverse participant groups, and a control group. Effects on patients should be assessed.

[Needs of parents in bereavement care after perinatal loss of their preterm infant in the NICU]. / Unterstützungsbedarf von Eltern in der Trauerbegleitung nach dem Tod ihres frühgeborenen Kindes. Eine qualitative Untersuchung der Sichtweisen Pflegender in der Elternberatung.

BACKGROUND: In Germany, 9% of babies are born preterm, 32 % of them die. A neonatal death is a challenge for both parents and neonatal health care professionals alike. In 1994 the Department of pediatric nursing of the Klinik für Neonatologie/Charité launched an initiative to offer bereavement care for parents who have experienced a perinatal death. AIM: The aim of this study was to determine the needs of parents after the perinatal loss of their child from the perspective of health care professionals (HCP). METHOD: Six interviews were conducted with the HCP in Neonatology, Charité ­ University of Medicine in Berlin and analyzed using qualitative content analysis according to Mayring. RESULTS: The results show the differing needs of the parents and are focused on five main points: "Avoid and protection of overtaxing", "express emotions", "safety and family support", "bonding with the child" and "give understanding and meaning". CONCLUSIONS: The parents needs connected with the Caring Theory of Swanson show that they mostly correspond with the dimension of "Being with". It underlines the importance of the emotional and educational support of parents in bereavement care during the perimortal period. A major requirement here is to "get to know" the parents and their needs and to accompany them individually. Offering compassionate care and interaction between nurses and bereaved parents complys with the "doing for" and "enabling" from Swanson's model.