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1.
Schmerz ; 35(4): 242-250, 2021 Aug.
Artigo em Alemão | MEDLINE | ID: mdl-33970339

RESUMO

BACKGROUND: This article describes a first use of an electronic case-based assessment tool in undergraduate palliative care education. It describes the development of the tool presenting strengths and shortcomings in order to contribute to an innovative design of assessment tools in medical education. DESIGN AND METHOD: An electronic (virtual) case-based assessment tool (the virtual palliative patient, vPp) was developed. Palliative care levels of knowledge, skills and attitude of students were tested at a computer workplace as a voluntary and non-performance-relevant pilot project at four faculties. RESULTS: On average the students achieved 80% of the points using the vPp tool, which is below the average score of 91% achieved in the regular examination. In particular, the free text task on reflection of dealing with the patient's death wish caused uncertainty, while multiple choice questions and an interactive conversation sequence were perceived as relatively easy. Technical problems were also identified in the evaluation but overall the concept was evaluated positively and establishment as a regular examination or e­learning tool was desired. CONCLUSION: The implementation of an innovative assessment tool in medical education is technically challenging. A coordination with contents of the individual faculties is necessary in order that students do not have a feeling of a lack of preparation. The development of the vPp describes an innovative assessment format. In the long term, all interested faculties could receive a form of toolbox containing the technical framework of the assessment tool, which can then be fed with new contents.


Assuntos
Educação de Graduação em Medicina , Estudantes de Medicina , Cognição , Currículo , Eletrônica , Humanos , Dor , Cuidados Paliativos , Projetos Piloto
2.
Schmerz ; 31(1): 54-61, 2017 Feb.
Artigo em Alemão | MEDLINE | ID: mdl-27271155

RESUMO

BACKGROUND: In September 2009 a new legislation for advance care planning was introduced in Germany with the important characteristics of bindingness and unlimited validity for individual directives. Knowledge regarding this act and the attitude towards its characteristics among patients is unclear. AIM OF THIS STUDY: Analysis of knowledge, attitude and opinion of patients in a general internal medical department regarding advance care planning in general and the recent German legislation. METHODS: A total of 200 consecutive patients in an internal medicine ward were interviewed with the help of a questionnaire regarding their attitude to and knowledge on advance care planning in general and the current legislation. RESULTS: Approximately 40 % of the patients had issued some form of directive (either advance care directive or health care proxy) and only 7.5 % were advised by their physicians to make an advance directive. Patients with no directive were not willing to deal with dying and death, were not well-informed about directives or assumed that relatives or physicians would make an appropriate decision. Characteristics of the new legislation were controversially assessed; only 21 % of the patients wished to have a literal implementation of their directive. Regarding the content of an advance directive, more than 80 % of the patients voted for pain control in the palliative setting. CONCLUSION: The proportion of patients with a directive regarding advance care planning is only slowly increasing. Many patients are not well-informed, do not want to deal with dying or would like to delegate decisions to relatives and physicians. The present characteristics of the German legislation are controversially assessed and often do not represent the wishes of the patients.


Assuntos
Diretivas Antecipadas/legislação & jurisprudência , Atitude do Pessoal de Saúde , Conhecimentos, Atitudes e Prática em Saúde , Departamentos Hospitalares/legislação & jurisprudência , Medicina Interna/legislação & jurisprudência , Tutores Legais/legislação & jurisprudência , Programas Nacionais de Saúde/legislação & jurisprudência , Idoso , Idoso de 80 Anos ou mais , Feminino , Alemanha , Humanos , Masculino , Pessoa de Meia-Idade , Cuidados Paliativos/legislação & jurisprudência
3.
Schmerz ; 35(4): 227-228, 2021 08.
Artigo em Alemão | MEDLINE | ID: mdl-34297183
4.
Schmerz ; 30(6): 560-567, 2016 Dec.
Artigo em Alemão | MEDLINE | ID: mdl-27072143

RESUMO

To date, no studies investigating titration with oral transmucosal fentanyl for the dose-finding of transdermal fentanyl treatment have been published. In an open randomized study 60 patients with chronic malignant (n = 39) or nonmalignant pain (n = 21), who required opioid therapy according to step three of the guidelines of the World Health Organization (WHO), were investigated. In two groups of 30 patients each titration with immediate release morphine (IRM) or oral transmucosal fentanyl citrate (OTFC) was undertaken. For measurement purposes the Brief Pain Inventory (BPI) and Minimal Documentation System (MIDOS) were used. After a 24-h titration phase, in which patients documented the intensity of pain, nausea, and tiredness, treatment with transdermal fentanyl was evaluated over a 10-day period by means of the necessary dose adaptation (responder ≤ 1 dose adaptation; conversion formula 1:1 [OTFC group] vs 100:1 [IRM group]).The pain reduction over the first 24 h (titration phase) did not differ significantly between the groups. The number of responders (17 OTFC vs. 21 IRM) over the 10-day period did not show any difference either. In both groups there was a significant reduction in pain intensity (p < 0.001). Over the course of the study, there were significantly more drop-outs because of adverse effects in the OTFC group than in the IRM group (8 vs 1, p = 0.028).Oral transmucosal fentanyl citrate can be applied for the titration of transdermal fentanyl, but it does not show any clinically relevant advantage. For example, the risk of side effects-induced drop-outs was greater in the present study. Whether the unnecessary opioid switching to treat chronic pain and breakthrough pain is advantageous with regard to minimizing conversion errors cannot be definitively answered within the scope of this study.


Assuntos
Dor do Câncer/tratamento farmacológico , Dor Crônica/tratamento farmacológico , Fentanila/administração & dosagem , Cuidados Paliativos/métodos , Administração Bucal , Administração Cutânea , Adulto , Idoso , Relação Dose-Resposta a Droga , Feminino , Fentanila/efeitos adversos , Humanos , Masculino , Pessoa de Meia-Idade , Morfina/administração & dosagem , Morfina/efeitos adversos , Medição da Dor
5.
Internist (Berl) ; 57(10): 959-970, 2016 Oct.
Artigo em Alemão | MEDLINE | ID: mdl-27631529

RESUMO

Cancer pain and pain associated with non-neoplastic diseases can be associated with pain mechanisms, such as a peripheral or central sensitization or deafferentation. The clarification allows indirect conclusions about the underlying mechanisms based on clinical signs, such as allodynia or hyperalgesia. Non-opioid analgesics are the basis of cancer pain therapy according to the World Health Organization (WHO) pain ladder. In the case of severe cancer pain, treatment can be escalated directly from level 1 to level 3. Opioids are highly effective for the treatment of cancer pain even with a neuropathic component, which can occur in up to 40 % of cases as amixed pain syndrome. Coanalgesics represent a valuable therapeutic adjunct for better pain control and can address treatment of comorbidities, such as anxiety, depression and sleep disorders. When liver and/or renal function is reduced, the dosage of many drugs has to be adapted. Treatment of multimorbid or critically ill patients with opioids and antidepressants/anticonvulsants requires consideration of numerous possible pharmacodynamic and pharmacokinetic interactions.


Assuntos
Analgésicos Opioides/administração & dosagem , Analgésicos/administração & dosagem , Dor do Câncer/tratamento farmacológico , Dor Crônica/tratamento farmacológico , Manejo da Dor/métodos , Cuidados Paliativos/métodos , Anticonvulsivantes/administração & dosagem , Antidepressivos/administração & dosagem , Dor do Câncer/prevenção & controle , Doença Crônica , Dor Crônica/prevenção & controle , Relação Dose-Resposta a Droga , Esquema de Medicação , Combinação de Medicamentos , Monitoramento de Medicamentos/métodos , Medicina Baseada em Evidências , Alemanha , Humanos , Medição da Dor/efeitos dos fármacos , Resultado do Tratamento
6.
Support Care Cancer ; 20(11): 2879-93, 2012 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-22410859

RESUMO

BACKGROUND: As different definitions for PC have been used across the last three decades, a common terminology is lacking. To ensure quality of care, (a) a consensus on outcome criteria and indicators and (b) validated and applicable outcome assessment instruments are necessary. The aim of this study is to systematically review instrument for outcome assessment that have been used or proposed for research and clinical practice in palliative care. METHOD: A systematic literature search in electronic databases Cinahl, MEDLINE, EMBASE, and PsychoINFO until December 2009 was conducted to identify articles describing outcome assessment in palliative care. Following extraction of relevant publications, the outcome assessment instruments were categorized in outcome domains and target groups. RESULTS: The literature search resulted in 8,607 hits. Deduplication and exclusion of irrelevant or unavailable publications allowed for 725 publications which were analyzed in detail. At least 528 different outcome assessment instruments were applied. Four target groups were identified: patients, family members, staff members, and the health care system. Fifteen patient domains were identified: quality of life, quality of care, symptoms and problems, performance status, psychological symptoms, decision-making and communication, place of death, stage of disease, mortality and survival, distress and wish to die, spirituality and personality, disease-specific outcomes, clinical features, meaning in life, and needs. The majority of instruments were found only in single cases and a minority of instruments were validated. Validated instruments were used more often. CONCLUSIONS: The wide scope of existing instruments makes consensus on a universal set of instruments for outcome assessment in palliative care improbable. A framework with a set of appropriate instruments could help (1) to harmonize the variety of tools used in research and clinical practice, (2) to allow for more comparability, and (3) to define gaps were tools maybe missing and should be developed.


Assuntos
Cuidados Paliativos na Terminalidade da Vida/normas , Avaliação de Resultados em Cuidados de Saúde/métodos , Cuidados Paliativos/normas , Humanos , Indicadores de Qualidade em Assistência à Saúde , Qualidade da Assistência à Saúde , Terminologia como Assunto
7.
Schmerz ; 26(5): 600-7, 2012 Sep.
Artigo em Alemão | MEDLINE | ID: mdl-22956075

RESUMO

Noisy breathing during the terminal stages of life (death rattle) is one of the most common and most difficult symptoms to treat. In palliative medicine there are still no accepted guidelines for the treatment of death rattle in the final phase of life. In the first part of this article a description of death rattle is presented and in the second part a systematic literature review gives an insight into the effectiveness of interventions for death rattle. Two databases (Embase and Medline) were searched up to 2010 which identified 134 studies but only 6 met the inclusion criteria (2 cohort and 4 experimental studies) in which scopolamine, glycopyrrolate, butyl scopolamine, atropine and octreotide were tested. There is a lack of conclusive studies which investigated the effectiveness of treatment of death rattle. Furthermore, the identified studies revealed methodical problems. In general non-drug therapy is recommended as first choice. If anticholinergics are considered the selection also depends on whether simultaneous sedation is desired or not. The English full text version of this article will be available in SpringerLink as of November 2012 (under "Supplemental").


Assuntos
Atropina/uso terapêutico , Brometo de Butilescopolamônio/uso terapêutico , Glicopirrolato/uso terapêutico , Octreotida/uso terapêutico , Sons Respiratórios/efeitos dos fármacos , Escopolamina/uso terapêutico , Assistência Terminal/métodos , Resistência das Vias Respiratórias/efeitos dos fármacos , Resistência das Vias Respiratórias/fisiologia , Atropina/efeitos adversos , Brometo de Butilescopolamônio/efeitos adversos , Terapia Combinada , Glicopirrolato/efeitos adversos , Humanos , Muco/fisiologia , Octreotida/efeitos adversos , Posicionamento do Paciente , Sons Respiratórios/fisiologia , Saliva/fisiologia , Escopolamina/efeitos adversos , Sucção , Assistência Terminal/psicologia , Resultado do Tratamento
8.
Schmerz ; 25(6): 676-84, 2011 Dec.
Artigo em Alemão | MEDLINE | ID: mdl-22120921

RESUMO

INTRODUCTION: The German Cancer Aid funded 12 regional projects which developed different models of palliative home care. The realization of the projects were concurrently monitored and evaluated. MATERIAL AND METHODS: The funded projects were asked to document all patients who were cared for beginning in January 2009 using HOPE (Hospice and palliative survey), MIDOS (Minimal documentation system for palliative patients) and the Barthel index. Documentation was mandatory at the beginning and the end of care as well as when patients changed settings, for example when patients were transferred from a palliative care unit to a palliative home care service. Additionally the projects were visited by an independent observer. RESULTS: Overall the 12 projects documented 2,663 patients. Analysis revealed differences between the projects mainly concerning target groups and interventions. DISCUSSION: The results of this evaluation can support the discussion about the development of palliative home care in Germany with particular focus on possible interrelations between structures, target groups and possible outcomes of care.


Assuntos
Apoio Financeiro , Serviços de Assistência Domiciliar/economia , Cuidados Paliativos na Terminalidade da Vida/economia , Neoplasias/economia , Neoplasias/terapia , Cuidados Paliativos/economia , Instituições Filantrópicas de Saúde/economia , Idoso , Idoso de 80 Anos ou mais , Assistência Ambulatorial/economia , Administração de Caso/economia , Avaliação da Deficiência , Educação Médica Continuada/economia , Feminino , Alemanha , Humanos , Masculino , Pessoa de Meia-Idade , Avaliação de Processos e Resultados em Cuidados de Saúde , Garantia da Qualidade dos Cuidados de Saúde/economia , Apoio ao Desenvolvimento de Recursos Humanos
9.
Support Care Cancer ; 18(1): 43-9, 2010 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-19381693

RESUMO

BACKGROUND: Most terminally ill patients request information about their remaining life span. Professionals are not generally willing to provide prognosis on survival, even though they are expected to be able to do so from their clinical experience. This study aims to find out whether the standardized instruments Palliative Prognostic Index (PPI) and the Palliative Prognostic Score (PaP-S) are appropriate, specific, and sensitive to estimate survival time in patients receiving inpatient palliative care in Germany. METHOD: PPI and PaP-S were assessed in addition to the core documentation data set of the Hospice and Palliative Care Evaluation for patients admitted to the palliative care units in Aachen, Bonn, and Cologne. Time of survival was assessed with repeated phone calls to the family and was defined as the difference between the day of completion of the instruments (excluded) and the day of death (included). RESULTS: Survival time was compared with physicians' estimations and prognostic scores in 83 patients. Whereas the estimates of the PPI and the PaP-S correlate highly, even higher correlations are found for the physicians' prognosis and the scores. Correlations between survival time and the prognostic scores or physicians' prognosis were lower. Physicians' estimations overestimated survival time on average fourfold. Estimations were more often correct for very good and very bad prognosis. DISCUSSION: The prognostic scores are not able to produce a precise reliable prognosis for the individual patient. Nevertheless, they can be used for ethical decision making and team discussions. Estimating survival time from clinical experience seems to be easier for very bad or very good prognosis for physicians.


Assuntos
Mortalidade , Doente Terminal/estatística & dados numéricos , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Alemanha , Humanos , Masculino , Pessoa de Meia-Idade , Cuidados Paliativos , Prognóstico , Sensibilidade e Especificidade , Estatísticas não Paramétricas , Análise de Sobrevida
10.
Schmerz ; 24(2): 177-89, 2010 Apr.
Artigo em Alemão | MEDLINE | ID: mdl-20376609

RESUMO

"There's nothing more to do, so let's come to an end, Doc!" A request for euthanasia or physician-assisted suicide is a dramatic expression of patients' suffering and causes difficulties for staff members to react to these questions. Great efforts have been made in the last two centuries to gain a deeper understanding of the wish for hastened death of terminally ill patients and to develop conclusions for the management of these situations. This article presents differences in international legislation on euthanasia and summarises the ethical background. The current results from the literature according to motivations for the wish for hastened death, communicative functions of the request, attitudes and practices of physicians and their willingness to accompany the patient in euthanasia as well as practical implications for clinical practice are discussed.


Assuntos
Eutanásia/psicologia , Futilidade Médica/psicologia , Motivação , Suicídio Assistido/psicologia , Assistência Terminal/psicologia , Transtornos de Ansiedade/diagnóstico , Transtornos de Ansiedade/psicologia , Atitude do Pessoal de Saúde , Comunicação , Comparação Transcultural , Transtorno Depressivo/diagnóstico , Transtorno Depressivo/psicologia , Ética Médica , Eutanásia/ética , Eutanásia/legislação & jurisprudência , Alemanha , Humanos , Futilidade Médica/ética , Futilidade Médica/legislação & jurisprudência , Autonomia Pessoal , Relações Médico-Paciente , Papel do Doente , Suicídio Assistido/ética , Suicídio Assistido/legislação & jurisprudência , Inquéritos e Questionários , Assistência Terminal/ética , Assistência Terminal/legislação & jurisprudência
11.
Schmerz ; 24(6): 596-604, 2010 Dec.
Artigo em Alemão | MEDLINE | ID: mdl-20882300

RESUMO

BACKGROUND: repeated self-assessment of symptoms and problems of patients is required for quality assurance in palliative care. In Germany, the Minimal Documentation System (MIDOS) has been designed specifically for palliative care patients. To adapt MIDOS as a German version of the Edmonton Symptom Assessment Scale (ESAS) a revised version of MIDOS(2) has now been validated. Two original items on average and highest pain intensity (11-step NRS) were replaced by one item on pain intensity on a 4-step VRS and the assessment of vomitus, lack of appetite and depressive mood were added to the assessment of nausea, dyspnoea, constipation, weakness, tiredness, anxiety, others and well-being which were already part of the original version. METHOD: all patients admitted to the palliative care unit were asked to participate voluntarily in this study. MIDOS(2), the German versions of the ESAS and the quality of life questionnaire EORTC QLQ-C15-Pal were completed on the same day during their inpatient stay. MIDOS(2) was repeated on the next day. RESULTS: from August 2009 to March 2010, 60 patients (55% men, 45% women; mean age = 64.3, range = 23.6-92.4 years) treated in the palliative care unit completed the study. Self-assessment with MIDOS(2) was reported to burden the patients only slightly (mean burden = 1.1, range: 0 = no to 10 = maximum burden on a NRS), application of MIDOS(2) took between 1 and 7 min (mean duration = 2.4 min) and 61.7% of the patients preferred MIDOS(2) (with VRS) to ESAS (30%) (with NRS) for routine daily documentation. External criterion validity by inter-item correlations of MIDOS(2) with ESAS varied between r = .533 (anxiety) and .881 (nausea) and between r = .348 (depressive mood) and .717 (constipation) for the corresponding items of the EORTC QLQ-C15-Pal. Test-retest reliability between the sum scores of symptoms and problems reported in MIDOS(2) on the first day and on the second day was .688, and r = .573 for well-being. CONCLUSION: MIDOS(2) can be recommended for routine daily documentation in palliative care because of low burden, little expenditure of time and high participation of patients. Statistical evaluation indicated good external validity and reliability.


Assuntos
Lista de Checagem , Comparação Transcultural , Autoavaliação Diagnóstica , Documentação/métodos , Indicadores Básicos de Saúde , Neoplasias/psicologia , Neoplasias/terapia , Medição da Dor/estatística & dados numéricos , Cuidados Paliativos , Inquéritos e Questionários , Adulto , Idoso , Idoso de 80 Anos ou mais , Documentação/estatística & dados numéricos , Feminino , Alemanha , Cuidados Paliativos na Terminalidade da Vida , Humanos , Masculino , Pessoa de Meia-Idade , Psicometria , Qualidade de Vida/psicologia , Reprodutibilidade dos Testes
12.
Schmerz ; 24(6): 605-12, 2010 Dec.
Artigo em Alemão | MEDLINE | ID: mdl-21046170

RESUMO

BACKGROUND: of cancer patients receiving palliative care, 80% suffer from cancer pain, and again 80% of these patients report breakthrough pain. This study explores the patients' perception of breakthrough pain, their experiences with existing therapeutic regimens and their expectations regarding an ideal breakthrough pain medication. METHOD: from November 2008 to February 2010 two German palliative care units recruited 80 in- or outpatient cancer patients who completed a standardized questionnaire on breakthrough pain characteristics, analgesic medication, attitudes towards new treatment approaches for breakthrough pain, and experiences with alternative routes of drug administration as part of the "European Survey of Oncology Patients' Experience of Breakthrough Pain". RESULTS: the study participants suffered from 1-12 episodes of either incident (47.5%) or spontaneous pain (37.5%) per day which were perceived as "severe" in 71% of all cases. These exacerbations highly interfered with the patients' general activity, mood, walking ability, and normal work. Overall, 64% of the patients reported alleviation from pharmacological (26%) and non-pharmacological (73%) interventions. Subcutaneous (40%) and oral (39%) routes were used frequently; intranasal (1.25%) and intrapulmonary (1.25%) routes were used rarely. Only 64% of all participants stated an overall satisfaction with their breakthrough analgesia. CONCLUSION: the diagnosis and treatment of breakthrough pain seems to be conducted in a suboptimal manner, and standard recommendations on breakthrough pain relief are not implemented consistently. Possible causes of pain should be taken into account as well as multi-professional treatment interventions and alternative routes of administration of fast onset, effective drugs should be considered.


Assuntos
Analgésicos Opioides/administração & dosagem , Neoplasias/fisiopatologia , Medição da Dor/estatística & dados numéricos , Dor Intratável/tratamento farmacológico , Cuidados Paliativos , Satisfação do Paciente , Atividades Cotidianas/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Relação Dose-Resposta a Droga , Vias de Administração de Medicamentos , Quimioterapia Combinada , Europa (Continente) , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Neoplasias/complicações , Neoplasias/psicologia , Dor Intratável/diagnóstico , Dor Intratável/psicologia , Psicometria , Qualidade de Vida/psicologia
13.
Schmerz ; 23(5): 510-7, 2009 Oct.
Artigo em Alemão | MEDLINE | ID: mdl-19685084

RESUMO

INTRODUCTION: Problems and deficits in the transition between hospital-based and outpatient care of cancer patients were evaluated. The project was initiated by the Public Health Department of the City of Aachen and was carried out with cooperation from all hospitals in the urban areas. METHOD: From September 2002 to April 2003 a total of 145 cancer patients fulfilling the inclusion criteria from 4 regional hospitals were documented at 4 time points within a period of 6-8 weeks by questionnaires, telephone and personal interviews. Aspects of interest were disease type, symptom burden, well-being, the homecare situation and medical aids required. RESULTS: Patients and their relatives reported on inadequate pain management, insufficient preparation of transition, problems in information flow, organisational problems, lack of attention and humaneness, deficiency of care, delay of diagnosis, inadequate access to services, insufficient prescription of drugs and adjuvants, financial problems and quarrels with the health insurance company on payment of aid devices. Coping strategies were mostly non-functional and not problem-orientated. DISCUSSION: Special attention should be paid to psychosocial and interpersonal needs of patients. Volunteers may have an important role in the care of patients and relatives. The introduction of case managers might lead to an advancement of care. Sensitisation of physicians, nurses and other caregivers for deficits in transition of patients is needed and should be covered in palliative care education and training.


Assuntos
Assistência Ambulatorial , Neoplasias/terapia , Alta do Paciente , Satisfação do Paciente , Adaptação Psicológica , Adulto , Idoso , Atitude Frente a Morte , Cuidadores/psicologia , Estudos Transversais , Feminino , Alemanha , Acessibilidade aos Serviços de Saúde , Necessidades e Demandas de Serviços de Saúde , Pesquisa sobre Serviços de Saúde , Hospitais de Distrito , Humanos , Entrevista Psicológica , Masculino , Pessoa de Meia-Idade , Entorpecentes/uso terapêutico , Neoplasias/psicologia , Dor/psicologia , Manejo da Dor , Cuidados Paliativos/psicologia , Educação de Pacientes como Assunto , Resolução de Problemas , Papel do Doente , Revelação da Verdade , Adulto Jovem
14.
Palliat Med ; 22(7): 796-807, 2008 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-18838491

RESUMO

Constipation is one of the most common problems in patients receiving palliative care and can cause extreme suffering and discomfort. The aims of this study are to raise awareness of constipation in palliative care, provide clear, practical guidance on management and encourage further research in the area. A pan-European working group of physicians and nurses with significant experience in the management of constipation in palliative care met to evaluate the published evidence and produce these clinical practice recommendations. Four potentially relevant publications were identified, highlighting a lack of clear, practical guidance on the assessment, diagnosis and management of constipation in palliative care patients. Given the limited data available, our recommendations are based on expert clinical opinion, relevant research findings from other settings and best practice from the countries represented. Palliative care patients are at a high risk of constipation, and while general principles of prevention should be followed, pharmacological treatment is often necessary. The combination of a softener and stimulant laxative is generally recommended, and the choice of laxatives should be made on an individual basis. The current evidence base is poor and further research is required on many aspects of the assessment, diagnosis and management of constipation in palliative care.


Assuntos
Catárticos/uso terapêutico , Constipação Intestinal/tratamento farmacológico , Cuidados Paliativos , Constipação Intestinal/induzido quimicamente , Constipação Intestinal/prevenção & controle , Humanos
15.
Anaesthesist ; 55(5): 502-14, 2006 May.
Artigo em Alemão | MEDLINE | ID: mdl-16508740

RESUMO

Social developments and medical progress in the last decades have led to a significant change of values in medicine, which spans from the cornerstone of the patient's autonomy to the increasingly difficult decision-making process related to available medical treatments. This conflict exaggerates with end-of-life situations, where a purely palliative approach to the therapy is applied, or in cases of reduced ability for patient's consent. From a legal point of view, many uncertainties have been clarified in recent years. The patient's autonomy has been strengthened, however, the law requires the doctor to review and carefully balance the treatment options so that a new and modified patient-doctor relationship is often necessary in this difficult decision-making process. The doctor should no longer retreat into the classical role of a neutral advisor and leave the complete responsibility of medical decisions to the patient. Instead, in order for the patient to be able to make a balanced and individually tailored autonomous decision, the doctor needs to bring in his medical expertise along with his own personal experiences and personal opinions, as long as he clearly differentiates between personal and professional views. This way the patient will be empowered to make complex medical decisions, considering his personal situation and previous experiences as well as his own set of values. For complex situations medical practitioners can find support from reflection within the treatment team, or through an external ethical advisory panel. Algorithms can be helpful to illustrate the steps in a decision-making process and thus support medical staff in situations of difficult medical decisions.


Assuntos
Técnicas de Apoio para a Decisão , Autonomia Pessoal , Idoso , Aconselhamento/ética , Humanos , Masculino , Cuidados Paliativos , Direitos do Paciente , Relações Médico-Paciente
16.
J Palliat Med ; 8(4): 743-50, 2005 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-16128648

RESUMO

BACKGROUND: Patients with cancer pain with initially adequate analgesia under oral sustained-release opioid medication may suffer from persisting pain exacerbations. Sometimes even fast help is needed and then optimally performed by intravenous application (IVA) of immediate-release (IR) opioids. This IVA, however, may only be performed by physicians in Germany. OBJECTIVE: We wanted to find out if subcutaneous application of IR-opioids might be an adequate alternative to IVA in persisting pain exacerbations of patients with cancer pain because this could be performed by the nursing staff in Germany as well. DESIGN: An open randomized controlled trial was used to compare intravenous versus subcutaneous morphine titration in persisting pain exacerbations in patients with cancer pain. SETTING/SUBJECTS: Thirty-nine patients with cancer (21 intravenously, 18 subcutaneously) of the pain management department of the university hospital of Cologne, Germany were included into the study. MEASUREMENTS: Calculated from preexisting analgesic medication boli of morphine were given every 5 minutes (intravenously) or 30 minutes (subcutaneously) up to adequate analgesia or intolerable side effects. Pain intensity, nausea, sedation, and some vital parameters were documented before the start, after each application and at the end of titration. RESULTS: Thirty-five patients were pretreated with oral opioids, 4 patients with nonopioid analgesics. Six patients stopped titration because of intolerable side effects (sedation, vomiting). Thirty patients (77%) reported at least sufficient pain reduction, 3 patients were free of pain (intravenously). Mean pain intensity decreased on a visual analogue scale (VAS, 0-100) from 83 to 32 (intravenously) and from 68 to 42 (subcutaneously). Morphine doses ranged from 4 mg to 32 mg (intravenously; mean, 18.5 +/- 9.2 mg) and from 10 mg to 200 mg (subcutaneously mean, 57.9 +/- 59.6 mg). Mean time up to adequate analgesia was 53 (intravenously) 77 min (subcutaneously), respectively. There was no change in vital parameters but an increase of sedation in both groups. The adaptation of the continuous analgesic medication resulted in a stable and lasting pain relief after 4 days in both groups. CONCLUSIONS: Intravenous and subcutaneous-morphine titration are adequate to antagonize persisting pain exacerbations in cancer pain patients quickly and to adapt the continuous opioid analgesic medication.


Assuntos
Analgésicos Opioides/administração & dosagem , Morfina/administração & dosagem , Neoplasias/fisiopatologia , Dor Intratável/tratamento farmacológico , Adulto , Idoso , Doença Crônica , Feminino , Alemanha , Humanos , Infusões Intravenosas , Injeções Subcutâneas , Masculino , Pessoa de Meia-Idade , Neoplasias/complicações
17.
Z Arztl Fortbild Qualitatssich ; 94(6): 495-500, 2000 Aug.
Artigo em Alemão | MEDLINE | ID: mdl-10996940

RESUMO

In a regional pain management network in Cologne, the pain clinic of the department of anaesthesiology and the departments of psychosomatic medicine and of informatics, statistics and epidemiology have been cooperating with the regional board of physicians and more than 80 general practitioners since 1996. The program is sponsored by the German Ministry of Health. In this network, guidelines for the management of chronic pain have been implemented for outpatient care in the last three years. Results from the first year confirm the high level of distress of patients with chronic pain. Consultation and education offered by the coordinating office and in training courses were accepted by the practitioners in variable degrees. Some physicians requested consultations frequently while including only a few patients in the study documentation, while other physicians requested consultations rarely and assessed many patients. Participating physicians were also asked to provide analgesic regimens for constructed case reports with chronic headache or cancer pain. The evaluation of these prescriptions showed poor adherence to analgesic guidelines.


Assuntos
Manejo da Dor , Assistência Ambulatorial/normas , Doença Crônica , Alemanha , Guias como Assunto , Humanos , Equipe de Assistência ao Paciente , Garantia da Qualidade dos Cuidados de Saúde
18.
Z Arztl Fortbild Qualitatssich ; 94(5): 373-8, 2000 Jun.
Artigo em Alemão | MEDLINE | ID: mdl-10939149

RESUMO

Pain management by general practitioners often is inadequate. Guidelines for pain management are either not observed or not known at all. Opioids are not prescribed adequately. Differential diagnoses influencing the therapeutic regimen such as drug-induced headache are not sufficiently known. Monotherapies with analgesic drugs are enforced for patients with chronic lower back pain in spite of low efficacy. Improving pain management can be difficult for the general practitioner having no special knowledges or support from pain specialists. However, the general practitioner should remain the patient-coordinator for the patient with chronic pain. Networks with general practitioners and specialised units in the hospital may offer possibilities for improvement of pain management deficits.


Assuntos
Medicina de Família e Comunidade/normas , Manejo da Dor , Analgésicos/uso terapêutico , Doença Crônica , Alemanha , Guias como Assunto , Humanos , Guias de Prática Clínica como Assunto
19.
Dtsch Med Wochenschr ; 138(50): 2585-91, 2013 Dec.
Artigo em Alemão | MEDLINE | ID: mdl-24301491

RESUMO

BACKGROUND: With a priority programme the German Cancer Aid supported the development of quality-assured outpatient palliative care to cover the whole country. The 12 regional pilot projects funded with the aim to improve outpatient palliative care in different models and different frameworks were concurrently monitored and evaluated. METHODS: The supported projects, starting and ending individually, documented all patients who were cared for using HOPE (Hospice and palliative care evaluation) and MIDOS (Minimal documentation system for palliative patients). Total data were analyzed for 3239 patients decriptively. In addition to the quantitative data the experiences of the projects were recorded in a number of workshops (2008, 2009, 2010, and 2012). In particular, the experiences reported in the final meeting in July 2012 were considered for this article as well as the final reports for the German Cancer Aid. RESULTS: In the quantitative evaluation 85.6% of 3239 palliative care patients had a cancer diagnosis. In all model projects the goal of a network with close cooperation of primary providers, social support, and outpatient and inpatient specialist services has been achieved. For all projects, the initial financing of the German Cancer Aid was extremely important, because contracts with health insurance funds were negotiated slowly, and could then be built on the experiences with the projects. CONCLUSION: The participants of the project-completion meeting emphasized the need to carry out a market analysis before starting palliative care organizations considering the different regional structures and target groups of patients. Education, training and continuing education programs contribute significantly to the network. A reliably funded coordination center/case management across all institutions is extremely important.


Assuntos
Assistência Ambulatorial/estatística & dados numéricos , Atenção à Saúde/estatística & dados numéricos , Neoplasias/epidemiologia , Neoplasias/terapia , Cuidados Paliativos/estatística & dados numéricos , Avaliação de Programas e Projetos de Saúde , Alemanha/epidemiologia , Cuidados Paliativos na Terminalidade da Vida , Humanos , Projetos Piloto
20.
GMS Z Med Ausbild ; 29(3): Doc47, 2012.
Artigo em Inglês | MEDLINE | ID: mdl-22737202

RESUMO

BACKGROUND: Following recent modifications of the Medical Licensure Act (ÄApprO) in the year 2009, palliative care was introduced as a compulsory 13(th) cross-disciplinary subject (Q13) in the undergraduate curriculum. Its implementation must have taken place before the beginning of the final year ('practical year') in August 2013 and has to be substantiated for the medical exams taking place in October 2014. Very diverse structures pertaining to palliative care teaching were described in previous surveys at various medical faculties in Germany. As a result, the current and future plans and concepts related to content and exams of a mandatory Q13 course at the respective faculty sites should be ascertained. METHODS: Since 2006, the German Medical Students' Association (bvmd) has been carrying out a bi-annual survey at all medical faculties in Germany regarding the current situation of teaching in the field of palliative care. After designing and piloting an online survey in May 2010, a one-month online survey took place. The data was assessed using a descriptive approach. RESULTS: 31 of 36 medical faculties took part in the survey. At the time of questioning, 15 faculties already taught courses according to the requirements of the new ÄApprO; at three sites the Q13 is yet to be introduced commencing in 2012. A teaching curriculum for Q13 already existed at 15 faculty sites, partly based on the curricular requirements of the German Association for Palliative Medicine (DGP). Six sites described an implementation process as yet without an independent curriculum. Most of the faculties aim for 21-40 course hours, which will for the most part be provided as lectures, seminars or less often in more assisted and intense formats. The majority of the participating faculties intend an examination containing multiple choice questions. At 8 universities there is an independent Chair for palliative medicine (5 more are planned); this was linked with a higher degree of mandatory teaching in alignment with the requirements of the ÄApprO. A broad spectrum of educationally-involved occupational groups, specialist disciplines and external co-operating partners, were mentioned. CONCLUSION: The infrastructural prerequisites of the present curricular concepts and the degree of implementation of the Q13 according to the requirements of the new ÄApprO diverge significantly among the various medical faculties. The efforts made to produce a qualitatively high standard of teaching with regard to the multifaceted questions concerning the support for severely and terminally ill patients is as much reflected in the survey, as the special implications of an independent Chair for palliative medicine for the implementation of the requirements by law. The participation of various occupational groups in this survey as well as the broad spectrum of those involved highlights the interdisciplinary and multi-professional dimension of teaching in palliative care.


Assuntos
Educação de Graduação em Medicina , Cuidados Paliativos/métodos , Comportamento Cooperativo , Currículo/normas , Currículo/tendências , Educação de Graduação em Medicina/normas , Educação de Graduação em Medicina/tendências , Avaliação Educacional/normas , Docentes de Medicina , Previsões , Alemanha , Humanos , Comunicação Interdisciplinar , Licenciamento em Medicina/tendências , Cuidados Paliativos/tendências , Ensino/normas , Ensino/tendências
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