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1.
J Med Ethics ; 45(6): 373-379, 2019 06.
Artigo em Inglês | MEDLINE | ID: mdl-31092631

RESUMO

OBJECTIVE: To increase knowledge of how doctors perceive futile treatments and scarcity of resources at the end of life. In particular, their perceptions about whether and how resource limitations influence end-of-life decision making. This study builds on previous work that found some doctors include resource limitations in their understanding of the concept of futility. SETTING: Three tertiary hospitals in metropolitan Brisbane, Australia. DESIGN: Qualitative study using in-depth, semistructured, face-to-face interviews. Ninety-six doctors were interviewed in 11 medical specialties. Transcripts of the interviews were analysed using thematic analysis. RESULTS: Doctors' perceptions of whether resource limitations were relevant to their practice varied, and doctors were more comfortable with explicit rather than implicit rationing. Several doctors incorporated resource limitations into their definition of futility. For some, availability of resources was one factor of many in assessing futility, secondary to patient considerations, but a few doctors indicated that the concept of futility concealed rationing. Doctors experienced moral distress due to the resource implications of providing futile treatment and the lack of administrative supports for bedside rationing. CONCLUSIONS: Doctors' ability to distinguish between futility and rationing would be enhanced through regulatory support for explicit rationing and strategies to support doctors' role in rationing at the bedside. Medical policies should address the distinction between resource limitations and futility to promote legitimacy in end-of-life decision making.


Assuntos
Tomada de Decisão Clínica/ética , Futilidade Médica/ética , Médicos/psicologia , Alocação de Recursos/ética , Assistência Terminal/ética , Humanos , Entrevistas como Assunto , Médicos/ética , Queensland
2.
Med J Aust ; 204(8): 318, 2016 May 02.
Artigo em Inglês | MEDLINE | ID: mdl-27125807

RESUMO

OBJECTIVE: To investigate how doctors define and use the terms "futility" and "futile treatment" in end-of-life care. DESIGN, SETTING, PARTICIPANTS: A qualitative study using semi-structured interviews with 96 doctors from a range of specialties which treat adults at the end of life. Doctors were recruited from three large Brisbane teaching hospitals and were interviewed between May and July 2013. RESULTS: Doctors' conceptions of futility focused on the quality and prospect of patient benefit. Aspects of benefit included physiological effect, weighing benefits and burdens, and quantity and quality of life. Quality and length of life were linked, but many doctors discussed instances in which benefit was determined by quality of life alone. Most described assessing the prospects of achieving patient benefit as a subjective exercise. Despite a broad conceptual consensus about what futility means, doctors noted variability in how the concept was applied in clinical decision making. More than half the doctors also identified treatment that is futile but nevertheless justified, such as short term treatment that supports the family of a dying person. CONCLUSIONS: There is an overwhelming preference for a qualitative approach to assessing futility, which inevitably involves variability in clinical decision making. Patient benefit is at the heart of doctors' definitions of futility. Determining patient benefit requires discussing with patients and their families their values and goals as well as the burdens and benefits of further treatment.


Assuntos
Cuidados Críticos/ética , Futilidade Médica/ética , Cuidados Paliativos/ética , Relações Médico-Paciente/ética , Atitude do Pessoal de Saúde , Atitude Frente a Saúde , Austrália , Tomada de Decisões , Hospitais de Ensino , Humanos , Participação do Paciente , Relações Profissional-Família/ética , Pesquisa Qualitativa
3.
J Med Ethics ; 42(8): 496-503, 2016 08.
Artigo em Inglês | MEDLINE | ID: mdl-27188227

RESUMO

OBJECTIVE: Futile treatment, which by definition cannot benefit a patient, is undesirable. This research investigated why doctors believe that treatment that they consider to be futile is sometimes provided at the end of a patient's life. DESIGN: Semistructured in-depth interviews. SETTING: Three large tertiary public hospitals in Brisbane, Australia. PARTICIPANTS: 96 doctors from emergency, intensive care, palliative care, oncology, renal medicine, internal medicine, respiratory medicine, surgery, cardiology, geriatric medicine and medical administration departments. Participants were recruited using purposive maximum variation sampling. RESULTS: Doctors attributed the provision of futile treatment to a wide range of inter-related factors. One was the characteristics of treating doctors, including their orientation towards curative treatment, discomfort or inexperience with death and dying, concerns about legal risk and poor communication skills. Second, the attributes of the patient and family, including their requests or demands for further treatment, prognostic uncertainty and lack of information about patient wishes. Third, there were hospital factors including a high degree of specialisation, the availability of routine tests and interventions, and organisational barriers to diverting a patient from a curative to a palliative pathway. Doctors nominated family or patient request and doctors being locked into a curative role as the main reasons for futile care. CONCLUSIONS: Doctors believe that a range of factors contribute to the provision of futile treatment. A combination of strategies is necessary to reduce futile treatment, including better training for doctors who treat patients at the end of life, educating the community about the limits of medicine and the need to plan for death and dying, and structural reform at the hospital level.


Assuntos
Futilidade Médica , Cuidados Paliativos , Médicos , Pesquisa Qualitativa , Assistência Terminal , Doente Terminal/psicologia , Atitude do Pessoal de Saúde , Austrália , Comunicação , Tomada de Decisões , Ética Clínica , Humanos , Futilidade Médica/ética , Cuidados Paliativos/ética , Médicos/psicologia , Relações Profissional-Paciente , Assistência Terminal/ética
4.
Health Commun ; 31(4): 400-7, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-26362334

RESUMO

Midwives and doctors require effective information-sharing strategies to provide safe and evidence-based care for women and infants, but this can be difficult to achieve. This article describes maternity care professionals' perceptions of communication in their current workplace in Australia. We invoke social identity theory (SIT) to explore how these perceptions affect interprofessional practice. A survey was conducted with 337 participants (281 midwives and 56 doctors). Using exploratory factor analysis we developed three scales that measured interprofessional workplace practice collaboration. Results indicated an intergroup environment in maternity care in which the professionals found exchange of ideas difficult, and where differences with respect to decision making and professional skills were apparent. Although scores on some measures of collaboration were high, the two professions differed on their ratings of the importance of team behaviors, information sharing, and interprofessional socialization as indicators of collaborative practice. These results highlight the complexities among maternity care providers with different professional identities, and demonstrate the impact of professional identity on interprofessional communication.


Assuntos
Comunicação , Relações Interprofissionais , Serviços de Saúde Materna , Tocologia , Médicos , Adulto , Idoso , Austrália , Análise Fatorial , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários , Adulto Jovem
5.
Women Health ; 56(8): 926-39, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-26813030

RESUMO

The objective of the authors in this study was to determine if prior visits to a complementary and alternative medicine (CAM) practitioner were associated with CAM use during pregnancy. The study sample comprised the Australian Longitudinal Study on Women's Health. Women were surveyed prior to pregnancy in 2006, and then again in 2010 if they were pregnant or had recently given birth, and asked a range of questions relating to demographic variables, health status, and use of CAM. A multivariable analysis identified significant covariates associated with visits to specific CAM practitioner modalities during pregnancy. Of the 447 women who consulted a CAM practitioner prior to pregnancy, 62.4% (n = 279) continued this use during pregnancy. Prior use of massage therapy, acupuncture, herbalist/naturopath, or chiropractor was related to use of the same service during pregnancy. Higher income and working full-time were associated with the continued use of massage, while continued visits to a chiropractor were associated with having depressive symptoms, a urinary tract infection, and living in a rural community. Prior use of CAM was highly related to continuing use during pregnancy. Further research is required to elucidate the benefits women attain from a CAM-model of care that they do not get from their conventional maternity care providers alone.


Assuntos
Terapias Complementares/estatística & dados numéricos , Complicações na Gravidez/terapia , Cuidado Pré-Natal/métodos , Encaminhamento e Consulta/estatística & dados numéricos , Saúde da Mulher , Adulto , Austrália , Feminino , Pesquisas sobre Atenção à Saúde , Nível de Saúde , Humanos , Modelos Logísticos , Estudos Longitudinais , Paridade , Gravidez , Cuidado Pré-Natal/estatística & dados numéricos , Inquéritos e Questionários
6.
Health Expect ; 18(5): 1633-44, 2015 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-24304970

RESUMO

BACKGROUND: Despite high rates of women's use of intrapartum pain management techniques, little is known about the factors that influence such use. OBJECTIVE: Examine the determinants associated with women's use of labour pain management. DESIGN: Cross-sectional survey of a substudy of women from the 'young' cohort of the Australian Longitudinal Study of Women's Health (ALSWH). SETTING AND PARTICIPANTS: Women aged 31-35 years who identified as being pregnant or recently given birth in the 2009 ALSWH survey (n = 2445) were recruited for the substudy. The substudy survey was completed by 1835 women (RR = 79.2%). MAIN VARIABLES STUDIED: Determinants examined included pregnancy health and maternity care [including complementary and alternative medicine (CAM)] for their most recent pregnancy and any previous pregnancies. Participants' attitudes and beliefs related to both CAM and maternity care were also included in the analysis. MAIN OUTCOME MEASURES: The outcome measures examined were the use of both pharmacological and non-pharmacological pain management techniques (NPMT). RESULTS: Differences were seen in the effects of demographics, health service utilization, health status, use of CAM, and attitudes and beliefs upon use of intrapartum pain management techniques across all categories. The only variable that was identified as a determinant for use of all types of pain management techniques was a previous caesarean section (CS). DISCUSSION AND CONCLUSIONS: The effect of key determinants on women's use of pain management techniques differs significantly, and, other than CS, no one determinant is clearly influential in the use of all pain management options.


Assuntos
Dor do Parto/terapia , Manejo da Dor/métodos , Adulto , Austrália , Comportamento de Escolha , Terapias Complementares/métodos , Estudos Transversais , Feminino , Humanos , Estudos Longitudinais , Gravidez , Resultado da Gravidez , Cuidado Pré-Natal
7.
BMC Health Serv Res ; 15: 371, 2015 Sep 10.
Artigo em Inglês | MEDLINE | ID: mdl-26357948

RESUMO

BACKGROUND: Miscommunication in the healthcare sector can be life-threatening. The rising number of migrant patients and foreign-trained staff means that communication errors between a healthcare practitioner and patient when one or both are speaking a second language are increasingly likely. However, there is limited research that addresses this issue systematically. This protocol outlines a hospital-based study examining interactions between healthcare practitioners and their patients who either share or do not share a first language. Of particular interest are the nature and efficacy of communication in language-discordant conversations, and the degree to which risk is communicated. Our aim is to understand language barriers and miscommunication that may occur in healthcare settings between patients and healthcare practitioners, especially where at least one of the speakers is using a second (weaker) language. METHODS/DESIGN: Eighty individual interactions between patients and practitioners who speak either English or Chinese (Mandarin or Cantonese) as their first language will be video recorded in a range of in- and out-patient departments at three hospitals in the Metro South area of Brisbane, Australia. All participants will complete a language background questionnaire. Patients will also complete a short survey rating the effectiveness of the interaction. Recordings will be transcribed and submitted to both quantitative and qualitative analyses to determine elements of the language used that might be particularly problematic and the extent to which language concordance and discordance impacts on the quality of the patient-practitioner consultation. DISCUSSION: Understanding the role that language plays in creating barriers to healthcare is critical for healthcare systems that are experiencing an increasing range of culturally and linguistically diverse populations both amongst patients and practitioners. The data resulting from this study will inform policy and practical solutions for communication training, provide an agenda for future research, and extend theory in health communication.


Assuntos
Barreiras de Comunicação , Comunicação , Atenção à Saúde , Multilinguismo , Segurança do Paciente , Relações Profissional-Paciente , Adulto , Etnicidade , Feminino , Humanos , Idioma , Pacientes Ambulatoriais , Queensland , Inquéritos e Questionários , Migrantes , Gravação de Videoteipe
8.
J Health Commun ; 20(7): 827-34, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-26020149

RESUMO

In this study, 3,531 Queensland women, who had recently given birth, completed a questionnaire that included questions about their participation in decision making during pregnancy, their ratings of client-centered care, and perceived quality of care. These data tested a version of the Linguistic Model of Patient Participation in Care, adapted to the maternity context. The authors investigated how age and education influenced women's perceptions of their participation and quality of care. Hierarchical multiple regressions revealed that women's perceived ability to make decisions, and the extent of client-centered communication with maternity care providers, were the most influential predictors of participation and perceived quality of care. Participation in care predicted perceived quality of care, but the influence of client-centered communication by a care provider and a woman's confidence in decision making were stronger predictors of perceived quality of care. Age and education level were not important predictors. These findings extend and support the use of Linguistic Model of Patient Participation in Care in the maternity context.


Assuntos
Comunicação , Serviços de Saúde Materna , Participação do Paciente/psicologia , Satisfação do Paciente/estatística & dados numéricos , Relações Médico-Paciente , Adolescente , Adulto , Feminino , Pesquisas sobre Atenção à Saúde , Humanos , Pessoa de Meia-Idade , Parto , Participação do Paciente/estatística & dados numéricos , Gravidez , Queensland , Estudos Retrospectivos , Adulto Jovem
9.
Women Health ; 54(2): 127-44, 2014.
Artigo em Inglês | MEDLINE | ID: mdl-24417673

RESUMO

The objective of this study was to explore the determinants that are related to women's likelihood to consult with a complementary and alternative medicine (CAM) practitioner during pregnancy. Primary data were collected as a sub-study of the Australian Longitudinal Study on Women's Health (ALSWH) in 2010. We completed a cross-sectional survey of 2,445 women from the ALSWH "younger" cohort (n=8,012), who had identified as being pregnant or had recently given birth in 2009. Independent Poisson backwards stepwise regression models were applied to four CAM practitioner outcome categories: acupuncturist, chiropractor, massage therapist, and naturopath. The survey was completed by 1,835 women (79.2%). The factors associated with women's consultation with a CAM practitioner differed by practitioner groups. A range of demographic factors were related, including employment status, financial status, and level of education. Women's health insurance coverage, health status, and perceptions toward both conventional maternity care and CAM were also associated with their likelihood of consultations with all practitioner groups, but in diverse ways. Determinants for women's consultations with a CAM practitioner varied across practitioner groups. Stakeholders and researchers would benefit from giving attention to specific individual modalities when considering CAM use in maternity care.


Assuntos
Terapias Complementares/estatística & dados numéricos , Cuidado Pré-Natal/estatística & dados numéricos , Encaminhamento e Consulta/estatística & dados numéricos , Adulto , Austrália , Estudos Transversais , Feminino , Pesquisas sobre Atenção à Saúde , Conhecimentos, Atitudes e Prática em Saúde , Nível de Saúde , Humanos , Modelos Logísticos , Vigilância da População , Gravidez , Fatores Socioeconômicos , Inquéritos e Questionários , Saúde da Mulher , Adulto Jovem
10.
Aust N Z J Obstet Gynaecol ; 53(4): 347-52, 2013 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-23472704

RESUMO

BACKGROUND: Pregnant women have been identified as high users of complementary and alternative medicine (CAM). However, no research to date has provided a detailed analysis of the prevalence and determinants of CAM consumption amongst pregnant women. AIM: To examine the prevalence and determinants of CAM use by pregnant women, utilising a national representative sample. METHODS: The study sample was obtained via the Australian Longitudinal Study on Women's Health. This paper is based on a sub-study of 1,835 pregnant women, administered in 2010. The women answered questions about CAM use, demographics, pregnancy-related health concerns and health service utilisation. RESULTS: Complementary and alternative medicine use was found to be high with 48.1% (n = 623) of pregnant women consulting a CAM practitioner and 52.0% (n = 842) of women using CAM products (excluding vitamins and minerals) during pregnancy. CAM practitioner visits were more likely for selected pregnancy-related health concerns, namely back pain or back ache, neck pain and labour preparation. Women were less likely to consult a CAM practitioner if they suffered with headaches/migraines. Employment was also found to be predictive of pregnant women's visits to a CAM practitioner. Significant health history and demographic predictors of CAM product use were tiredness and fatigue, embarking on preparation for labour and having a university education. CONCLUSION: Most pregnant women are utilising CAM products and/or services as part of their maternity care and obstetricians, general practitioners and midwives need to enquire with women in their care about possible CAM use to help promote safe, effective coordinated maternity care.


Assuntos
Terapias Complementares/estatística & dados numéricos , Complicações na Gravidez/terapia , Cuidado Pré-Natal/estatística & dados numéricos , Adulto , Austrália , Dor nas Costas/terapia , Feminino , Pesquisas sobre Atenção à Saúde , Humanos , Modelos Logísticos , Estudos Longitudinais , Gravidez , Inquéritos e Questionários , Adulto Jovem
11.
BMC Pregnancy Childbirth ; 12: 146, 2012 Dec 12.
Artigo em Inglês | MEDLINE | ID: mdl-23231765

RESUMO

BACKGROUND: There is little known about women's concurrent use of conventional and complementary health care during pregnancy, particularly consultation patterns with complementary and alternative medicine (CAM). This study examines health service utilisation among pregnant women including consultations with obstetricians, midwives, general practitioners (GPs) and CAM practitioners. METHODS: A sub-study of pregnant women (n=2445) was undertaken from the nationally-representative Australian Longitudinal Study on Women's Health (ALSWH). Women's consultations with conventional practitioners (obstetricians, GPs and midwives) and CAM practitioners for pregnancy-related health conditions were analysed. The analysis included Pearson chi-square tests to compare categorical variables. RESULTS: The survey was completed by 1835 women (response rate = 79.2%). A substantial number (49.4%) of respondents consulted with a CAM practitioner for pregnancy-related health conditions. Many participants consulted only with a CAM practitioner for assistance with certain conditions such as neck pain (74.6%) and sciatica (40.4%). Meanwhile, women consulted both CAM practitioners and conventional maternity health professionals (obstetricians, midwives and GPs) for back pain (61.8%) and gestational diabetes (22.2%). Women visiting a general practitioner (GP) 3-4 times for pregnancy care were more likely to consult with acupuncturists compared with those consulting a GP less often (p=<0.001, x2=20.5). Women who had more frequent visits to a midwife were more likely to have consulted with an acupuncturist (p=<0.001, x2=18.9) or a doula (p=<0.001, x2=23.2) than those visiting midwives less frequently for their pregnancy care. CONCLUSIONS: The results emphasise the necessity for a considered and collaborative approach to interactions between pregnant women, conventional maternity health providers and CAM practitioners to accommodate appropriate information transferral and co-ordinated maternity care. The absence of sufficient clinical evidence regarding many commonly used CAM practices during pregnancy also requires urgent attention.


Assuntos
Terapias Complementares/estatística & dados numéricos , Diabetes Gestacional , Serviços de Saúde Materna/estatística & dados numéricos , Tocologia/estatística & dados numéricos , Dor Musculoesquelética , Complicações na Gravidez , Encaminhamento e Consulta/estatística & dados numéricos , Acupuntura/estatística & dados numéricos , Adulto , Austrália/epidemiologia , Estudos de Coortes , Doulas/estatística & dados numéricos , Feminino , Clínicos Gerais/estatística & dados numéricos , Humanos , Estudos Longitudinais , Obstetrícia/estatística & dados numéricos , Gravidez
12.
Int Psychogeriatr ; 24(12): 1927-42, 2012 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-23092595

RESUMO

BACKGROUND: People with dementia have a range of needs that are met by informal caregivers. A DVD-based training program was developed using research-based strategies for memory and communication in dementia. The effectiveness of the training on the caregiver experience and the well-being of the person with dementia was evaluated. METHODS: A pre-test/post-test controlled trial was undertaken with caregiver-care-recipient dyads living in the community. Measures of the carers' knowledge of memory and communication strategies, burden, positive perceptions of caregiving, and perceptions of problem behaviors were taken pre- and three months post-intervention. The depression and well-being of the person with dementia were also evaluated. Satisfaction with the training and feedback were measured. RESULTS: Twenty-nine dyads (13 training group, 16 control group) participated. Bonferroni's correction was made to adjust for multiple comparisons, setting α at 0.00385. A significant improvement was found in caregivers' knowledge for the training group compared to the control group (p = 0.0011). The training group caregivers reported a reduction in the frequency of care recipient disruptive behaviors (p = 0.028) and increased perceptions of positive aspects of caregiving (p = 0.039), both at a level approaching significance. The training group care recipients had increased frequency of verbally communicated depressive behaviors at a level approaching significance (p = 0.0126). The frequency of observed depressive behaviors was not significantly different between groups. CONCLUSIONS: This approach to training for caregivers of people with dementia appears promising for its impact on knowledge and the caregiving experience. Further research could monitor the impact of the training on broader measures of depression and well-being, with a larger sample.


Assuntos
Cuidadores , Comunicação , Efeitos Psicossociais da Doença , Demência , Educação/organização & administração , Memória , Idoso , Sintomas Comportamentais/diagnóstico , Sintomas Comportamentais/terapia , Cuidadores/educação , Cuidadores/psicologia , Comportamento do Consumidor , Demência/diagnóstico , Demência/psicologia , Demência/terapia , Avaliação Educacional/métodos , Feminino , Humanos , Relações Interpessoais , Masculino , Pessoa de Meia-Idade , Avaliação de Programas e Projetos de Saúde , Qualidade de Vida , Apoio Social
13.
Aust Health Rev ; 36(4): 466-70, 2012 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-22958328

RESUMO

OBJECTIVE: To investigate agreement with the National Health and Medical Research Council (NHMRC) definition of collaboration in maternity care by care providers, and to examine their preferences for models of care in order to shed light on the lack of success in implementing collaborative practice. METHODS: Maternity care providers completed a survey in Queensland. The final sample consisted of 337 participants, including 281 midwives (83.38%), 35 obstetricians (10.39%), and 21 general practitioners (6.23%). RESULTS: Ninety-one percent of the participants agreed with the NHMRC definition of collaboration: Midwives (M=5.97, s.d.=1.2) and doctors (obstetricians and general practitioners: M=5.7, s.d.=1.35) did not differ significantly in their level of agreement with definition (t (332)=-1.8, P=.068). However, 72% of doctors endorsed a doctor-led model of care, whereas only 6.8% of midwives indicated agreement with it. Fewer (56%) doctors agreed with the midwife-led model of care, whereas 99.3% of midwives endorsed it. CONCLUSION: The concept of collaboration does not recognise the different interpretations by midwives and doctors of its impact on their roles and behaviours. Successful collaborative practice requires the development of guidelines that recognise these differences and specify the communication behaviour that would assist midwives and doctors to practice collaboratively.


Assuntos
Atitude do Pessoal de Saúde , Comportamento Cooperativo , Conhecimentos, Atitudes e Prática em Saúde , Serviços de Saúde Materna , Feminino , Clínicos Gerais , Pesquisas sobre Atenção à Saúde , Humanos , Tocologia , Obstetrícia , Relações Médico-Enfermeiro , Gravidez , Queensland
14.
Integr Psychol Behav Sci ; 56(2): 459-471, 2022 06.
Artigo em Inglês | MEDLINE | ID: mdl-34734358

RESUMO

The concept of home encompasses relationships people develop with the physical, familial, social, and cultural environments in which they are embedded. It is through navigating these relationships that immigrants negotiate their identity and belonging in the settlement country. Yet, a significant gap exists in the current knowledge of the process through which a sense of home is created and experienced by immigrants as they undergo acculturation. This conceptual paper addresses this knowledge gap by elucidating the process through which they develop identity and belonging in a foreign land through constructing a sense of home. Drawing on environmental gerontology as a primary framework and incorporating acculturation theories as well as evidence from previous research, this paper shows how older Chinese immigrants build a sense of home through decorating their houses with culturally meaningful objects, growing culturally reminiscent plants, and maintaining intergenerational relations and social networks in Australia. This paper argues that immigrants' sense of home is always in-between cultures, regardless of how long they have lived outside their homeland, because home is where the heart is. Building a sense of home in a foreign land therefore involves continuing reintegration of people and place in both the old country of origin and the new country of settlement.


Assuntos
Emigrantes e Imigrantes , Aculturação , Austrália , China , Humanos , Relação entre Gerações
15.
Int Psychogeriatr ; 23(2): 256-63, 2011 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-20849676

RESUMO

BACKGROUND: Difficulties with memory and communication are prominent and distressing features of dementia which impact on the person with dementia and contribute to caregiver stress and burden. There is a need to provide caregivers with strategies to support and maximize memory and communication abilities in people with dementia. In this project, a team of clinicians, researchers and educators in neuropsychology, psychogeriatrics, nursing and speech pathology translated research-based knowledge from these fields into a program of practical strategies for everyday use by family and professional caregivers. METHODS: From the available research evidence, the project team identified compensatory or facilitative strategies to assist with common areas of difficulty, and structured these under the mnemonics RECAPS (for memory) and MESSAGE (for communication). This information was adapted for presentation in a DVD-based education program in accordance with known characteristics of effective caregiver education. RESULTS: The resultant DVD comprises (1) information on the nature and importance of memory and communication in everyday life; (2) explanations of common patterns of difficulty and preserved ability in memory and communication across the stages of dementia; (3) acted vignettes demonstrating the strategies, based on authentic samples of speech in dementia; and (4) scenarios to prompt the viewer to consider the benefits of using the strategies. CONCLUSION: Using a knowledge-translation framework, information and strategies can be provided to family and professional caregivers to help them optimize residual memory and communication in people with dementia. Future development of the materials, incorporating consumer feedback, will focus on methods for enabling wider dissemination.


Assuntos
Cuidadores/psicologia , Comunicação , Demência/psicologia , Memória , Pesquisa Translacional Biomédica , Atividades Cotidianas/psicologia , Idoso , Cuidadores/educação , Demência/terapia , Humanos
16.
Health Commun ; 26(4): 379-88, 2011 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-21424965

RESUMO

This study examined the ways in which health care providers (general practitioners and specialists) and patients communicate with each other about managing musculoskeletal (MSK) disorders, a major cause of long-term pain and physical disability. In managing their illness, patients must interact closely with health care providers, who play a large role in transferring knowledge to them. In-depth interviews with patients, general practitioners, and specialist rheumatologists in Australia and Canada were analyzed using Leximancer (a text-mining tool). Results indicated that, in their communication, doctors subtly emphasized accepting and adjusting to the illness ("new normal"), whereas patients emphasized pain relief and getting "back to normal." These results suggest that doctors and patients should accommodate in their communication across subtle and often unexpressed differences in the priorities of provider and patient, or they are likely to be at cross purposes and thus less effective.


Assuntos
Comunicação , Doenças Musculoesqueléticas/terapia , Pacientes , Relações Médico-Paciente , Médicos , Adulto , Idoso , Austrália , Canadá , Feminino , Humanos , Entrevistas como Assunto , Masculino , Pessoa de Meia-Idade , Satisfação do Paciente , Atenção Primária à Saúde , Teoria Psicanalítica , Pesquisa Qualitativa
17.
Qual Health Res ; 20(12): 1611-28, 2010 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-20675536

RESUMO

We examined conversations between people with schizophrenia (PwS) and family or professional carers with whom they interacted frequently. We allocated PwS to one of two communication profiles: Low-activity communicators talked much less than their conversational partners, whereas high-activity communicators talked much more. We used Leximancer text analytics software to analyze the conversations. We found that carers used different strategies to accommodate to the PwS's behavior, depending on the PwS's communication profile and their relationship. These findings indicate that optimal communication strategies depend on the PwS's conversational tendencies and the relationship context. They also suggest new opportunities for qualitative assessment via intelligent text analytics technologies.


Assuntos
Cuidadores , Comunicação , Mineração de Dados , Relações Interpessoais , Pesquisa Qualitativa , Esquizofrenia , Adulto , Barreiras de Comunicação , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Relações Profissional-Paciente , Psicolinguística , Queensland , Linguagem do Esquizofrênico , Técnicas Sociométricas
18.
Aust Health Rev ; 34(4): 467-76, 2010 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-21108909

RESUMO

OBJECTIVE: To determine whether the community's attitudes to components of a community eHealth strategy differ across three different socioeconomic groups. DESIGN: A survey questionnaire was designed and implemented across three different communities. PARTICIPANTS AND SETTING: Paper-based surveys were left in community organisations and local health practices in a low socioeconomic community on the outskirts of Ipswich, Queensland (n = 262), a mid-high socioeconomic community in the western suburbs of Brisbane (n = 256) and at a local university (n = 200). MAIN OUTCOME MEASURES: Ascribed importance and comfort with proposed components of a community eHealth strategy. RESULTS: A community-oriented health website was perceived as useful in getting access to relevant health information. Those who were most comfortable with accessing online health information were those who were: experienced, had home internet access and were frequent internet users. The most important types of health information for the website were: information about the treatment of conditions, how to manage a chronic illness, how to stay healthy and patient clinical pathways. The low socioeconomic community had different information priorities ­ all categories were considered more important, particularly information about how the public system operates, local health support groups, and the roles of health professionals. CONCLUSIONS: Different communities have different information demands but there is a strong demand for information which empowers community members to take control of their own health and become active participants in their health care. Tools such as a community health portal and patient clinical pathways should become more available.


Assuntos
Informação de Saúde ao Consumidor/métodos , Letramento em Saúde , Necessidades e Demandas de Serviços de Saúde , Internet , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Queensland , Classe Social , Adulto Jovem
19.
Diabetes Res Clin Pract ; 148: 32-42, 2019 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-30579804

RESUMO

PROBLEM: Postnatal screening rates to detect type two diabetes following gestational diabetes are low. The quality of communication is an important element to consider in developing targeted strategies that support women in completing recommended follow-up care. AIMS: To explore the communication perspectives, practices and preferences of women, hospital clinicians and general practitioners, to determine strategies that may promote completion of recommended postnatal GDM follow-up, in Queensland Australia. METHOD: We used an exploratory, three-phase, mixed-methods approach, interpreted through intergroup communication theory. Phase one: convergent interviews explored perspectives of the communication experience in GDM care among new mothers (n = 13), hospital clinicians (n = 13) and general practitioners (n = 16). Phase two: a retrospective chart audit assessed current practice in postnatal discharge summaries of women (n = 86). Phase three: an online survey identified the preferences of general practitioners and hospital clinicians who provide maternity care in Queensland. Triangulation of the findings from the interviews, audit and surveys was used to clarify results and increase the robustness of the findings. RESULTS: Three themes: Seeking information, Written hospital discharge summary (discharge summary) and Clarity of follow-up requirements, provide direction for pragmatic strategies to promote follow-up. Practical recommendations include continued discussion about care with women from the point of GDM diagnosis into the postnatal period; discharge summaries that give primacy to diagnosis and ongoing treatment; and provision of explicit directions for recommended testing and timing. IMPLICATIONS: This research informs seven practical recommendations to help promote completion of recommended postnatal GDM follow-up.


Assuntos
Assistência ao Convalescente , Diabetes Mellitus Tipo 2/prevenção & controle , Diabetes Gestacional/terapia , Clínicos Gerais , Corpo Clínico Hospitalar , Mães , Cuidado Pós-Natal , Adolescente , Adulto , Assistência ao Convalescente/métodos , Assistência ao Convalescente/psicologia , Assistência ao Convalescente/normas , Assistência ao Convalescente/estatística & dados numéricos , Austrália/epidemiologia , Comunicação , Diabetes Mellitus Tipo 2/diagnóstico , Diabetes Mellitus Tipo 2/epidemiologia , Diabetes Gestacional/epidemiologia , Diabetes Gestacional/psicologia , Diabetes Gestacional/reabilitação , Feminino , Clínicos Gerais/psicologia , Clínicos Gerais/estatística & dados numéricos , Humanos , Masculino , Corpo Clínico Hospitalar/psicologia , Corpo Clínico Hospitalar/estatística & dados numéricos , Pessoa de Meia-Idade , Tocologia/normas , Tocologia/estatística & dados numéricos , Mães/psicologia , Mães/estatística & dados numéricos , Alta do Paciente/estatística & dados numéricos , Satisfação do Paciente/estatística & dados numéricos , Cuidado Pós-Natal/métodos , Cuidado Pós-Natal/psicologia , Cuidado Pós-Natal/normas , Cuidado Pós-Natal/estatística & dados numéricos , Gravidez , Relações Profissional-Paciente , Estudos Retrospectivos , Inquéritos e Questionários , Adulto Jovem
20.
Women Birth ; 32(1): e24-e33, 2019 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-29735392

RESUMO

PROBLEM: The reasons for low postnatal screening rates for women with gestational diabetes mellitus are not well understood. Multiple care providers, settings and changes to diagnostic criteria, may contribute to confusion over postnatal care. Quality of communication between clinicians may be an important influence for the completion of postnatal gestational diabetes mellitus follow-up. AIM: Describe and analyse communication processes between hospital clinicians (midwives, medical, allied staff) and general practitioners who provide postnatal gestational diabetes mellitus care. METHODS: Purposive sampling and convergent interviews explored participants' communication experiences providing gestational diabetes mellitus postnatal follow-up. Data were analysed with Leximancer automated content analysis software; interpretation was undertaken using Communication Accommodation Theory. SETTING AND PARTICIPANTS: Clinicians who provided maternity care at a tertiary referral hospital (n=13) in Queensland, Australia, and general practitioners (n=16) who provided maternity shared care with that hospital between December 2012 and July 2013. FINDINGS: Thematic analysis identified very different perspectives between the experiences of General Practitioners and hospital clinicians; six themes emerged. General practitioners were concerned about themes relating to discharge summaries and follow-up guidelines. In contrast, hospital clinicians were more concerned about themes relating to gestational diabetes mellitus antenatal care and specialist clinics. Two themes, gestational diabetes mellitus women and postnatal checks were shared. CONCLUSION: Gestational diabetes mellitus follow-up is characterised by communication where general practitioners appear to be information seekers whose communication needs are not met by hospital clinicians. Midwives are ideally placed to assist in improving communication and postnatal gestational diabetes mellitus follow-up.


Assuntos
Atitude do Pessoal de Saúde , Diabetes Gestacional , Clínicos Gerais , Recursos Humanos em Hospital , Cuidado Pós-Natal , Adulto , Assistência ao Convalescente , Austrália , Feminino , Hospitais , Humanos , Alta do Paciente , Educação de Pacientes como Assunto , Médicos , Gravidez , Queensland , Inquéritos e Questionários
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