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1.
J Clin Nurs ; 32(15-16): 4599-4613, 2023 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-35974684

RESUMO

AIMS AND OBJECTIVES: To reduce the likelihood of preventable readmissions, the aim was to investigate how older people (with their family members) managed their chronic health conditions at home following hospital discharge. The objectives explored older people and their family members' perspectives on how discharge plans assisted self-management of their chronic conditions, their recognition of deterioration and when to seek treatment/re-attend hospital. BACKGROUND: Chronic conditions have challenged older adults' self-management, particularly after hospital discharge and can impact on preventable readmission. Few studies have examined patients' and their family members' perspectives on the management of their conditions at home after hospitalisation. DESIGN: A qualitative exploratory design known as Interpretive Description was utilised. METHODS: Purposeful sampling involved 27 community-dwelling older adults; nineteen were discharged patients with one or more chronic health conditions. Eight nominated family members were also recruited to enhance understanding of the older persons' self-management at home. Interviews were undertaken and thematic data analysis followed the COREQ guidelines. RESULTS: Five themes emerged: (1) Post-Discharge Advice; (2) Managing at Home; (3) Recognition and Response to Deterioration; (4) Community Care and Support; and (5) The "Burden" on Others of Post-Discharge Care. CONCLUSION: Older people sought a clear plan for self-management at home prior to discharge. This plan should contain potential signs of deterioration and guidance on future action. We found that support given to older people from family and friends was critical to prevent readmission. In addition, their local General Practitioner and Pharmacist played an essential part in the support of their care. For some, social support services were also important. Nurse telephone follow-up in the week following discharge was mostly absent. However, this strategy would be strongly recommended. RELEVANCE TO CLINICAL PRACTICE: To mitigate against preventable readmission, we recommend the above strategies to assist the older person at home with self-management of their chronic conditions.


Assuntos
Readmissão do Paciente , Autogestão , Humanos , Idoso , Idoso de 80 Anos ou mais , Alta do Paciente , Assistência ao Convalescente , Família , Doença Crônica
2.
Issues Ment Health Nurs ; 44(10): 951-959, 2023 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-37734156

RESUMO

People with severe mental illness are dying up to thirty years earlier than the general population. The limited literature on their experience of dying indicates that they often suffer from inequities in their access to healthcare services, and further, what care they do receive is frequently poor. Living with both a mental illness and facing death can engender spiritual concerns and dying at a younger age is a risk factor for spiritual despair. Hence, addressing spiritual concerns can be an important dimension of mental health nursing care. The aim of this ethnographic study of 11 senior and experienced mental health nurses was to determine if the culture of the mental health service impacted their spiritual care for those patients who were facing death. The data highlighted that the nurses felt comfortable in providing spiritual care when the person was suffering from psychosis. Yet, the results also revealed that nurses felt disempowered by the dominance of the biomedical culture, in which they felt unable to articulate their care. However, it was identified that their spiritual care was inherent within the professional values, knowledge, and skills of mental health nursing and framed through their therapeutic relationships. Therefore, strategies need to be used by the organization to assist nurses to reclaim their power and assist the mental health service to further develop and engage in spiritual care practices.


Assuntos
Enfermagem Psiquiátrica , Transtornos Psicóticos , Terapias Espirituais , Humanos , Espiritualidade , Comorbidade
3.
J Women Aging ; 35(1): 4-21, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-34724877

RESUMO

Poverty, poor living conditions, religious values and norms, lack of education, and gender discrimination influence the beliefs and behaviors of rural older women in many low-income countries. This paper aims to report the socio-ecological determinants of health-seeking beliefs and behaviors of rural older women in North-eastern Bangladesh and how these behaviors impact their recognition within the setting. It involved semi-structured interviews with 25 older women and 11 healthcare professionals. The findings revealed various determinants at the personal level (awareness of illness, mistrust toward medical treatment, self-treatment, and religious values and norms), the interpersonal level (isolation in family and communication with clinicians), community level (community perception of aging, neighboring and community organizations), and in the sphere of human rights (care affordability, social safety-net coverage and national policy). Four core determinants (poverty, education, gender and religiosity) were intertwined in shaping beliefs and behaviors.


Assuntos
Mangifera , Humanos , Feminino , Idoso , Bangladesh , Aceitação pelo Paciente de Cuidados de Saúde , População Rural , Escolaridade
4.
J Clin Nurs ; 31(11-12): 1669-1685, 2022 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-34467583

RESUMO

AIMS AND OBJECTIVES: To explore experienced ward-based Registered Nurses' views on the potential use of standing orders, prior to the escalation protocol, for patient deterioration. BACKGROUND: Ward based nurses are required to follow set steps of the escalation protocol. The introduction of standing order policies would allow nurses to intervene earlier when deterioration was first detected. DESIGN: Hermeneutic Phenomenology. METHODS: Ten experienced ward-based RNs were recruited. Semi-structured interviews were conducted, with the data subjected to thematic analysis. Diekelmann's framework was used to analyse the texts, seeking the highest level of hermeneutic analysis namely, a constitutive pattern. COREQ guidelines were utilised. RESULTS: Four main themes emerged: (1) Ambiguity in perception: the escalation protocol; (2) Observations within acceptable parameters, but the patient is deteriorating; (3) Paradoxes of escalation: well laid out protocol, but hard to escalate; (4) We could intervene with standing orders, but are we permitted? The constitutive pattern namely, Dualism in Perception related to the dissonance conveyed by participants regarding the escalation protocol. CONCLUSIONS: Notwithstanding the benefits of the escalation protocol for junior staff, the RNs offered critique of the established escalation practices and the restrictive role of the protocol. Another aspect of the protocol, that is 'worried criterion' was viewed positively. The participants expressed a desire to apply nurse-driven standing orders, to enable them to intervene earlier for patient deterioration. RELEVANCE TO CLINICAL PRACTICE: Organisations should consider new policies introducing standing orders for implementation by experienced RNs. The engagement of experienced ward-based nurses in forming 'patient at-risk teams' could assist organisations to deal with cases of clinical deterioration prior to activation of the escalation of care protocol.


Assuntos
Deterioração Clínica , Enfermeiras e Enfermeiros , Prescrições Permanentes , Hospitais , Humanos
5.
Muscle Nerve ; 63(2): 192-198, 2021 02.
Artigo em Inglês | MEDLINE | ID: mdl-33188573

RESUMO

INTRODUCTION: In this study we explored walking activity in a large cohort of boys with Duchenne muscular dystrophy (DMD). METHODS: Step activity (monitored for 7 days), functional ability, and strength were quantified in ambulatory boys (5-12.9 years of age) with DMD and unaffected boys. Ambulatory status was determined 2 years later. RESULTS: Two to 5 days of activity monitoring predicted weekly step activity (adjusted R2 = 0.80-0.95). Age comparisons revealed significant declines for step activity with increasing age, and relationships were found between step activity with both function and strength (P < .01). Our regression model predicted 36.5% of the variance in step activity. Those who were still ambulatory after 2 years demonstrated baseline step activity nearly double that of those who were no longer walking 2 years later (P < .01). DISCUSSION: Step activity for DMD is related to and predictive of functional declines, which may be useful for clinical trials.


Assuntos
Exercício Físico , Distrofia Muscular de Duchenne/fisiopatologia , Caminhada , Acelerometria , Atividades Cotidianas , Estudos de Casos e Controles , Criança , Pré-Escolar , Estudos de Coortes , Progressão da Doença , Estado Funcional , Glucocorticoides/uso terapêutico , Humanos , Masculino , Limitação da Mobilidade , Distrofia Muscular de Duchenne/tratamento farmacológico
6.
Sensors (Basel) ; 21(22)2021 Nov 15.
Artigo em Inglês | MEDLINE | ID: mdl-34833666

RESUMO

Recumbent stationary cycling is a potential exercise modality for individuals with cerebral palsy (CP) that lack the postural control needed for upright exercises. Functional electrical stimulation (FES) of lower extremity muscles can help such individuals reach the cycling intensities that are required for aerobic benefits. The aim of this study was to examine the effect of cycling with and without FES assistance to that of a no-intervention control group on the cardiorespiratory fitness of children with CP. Thirty-nine participants were randomized to a FES group that underwent an 8-week FES-assisted cycling program, the volitional group (VOL), who cycled without FES, or a no-intervention control group (CON) (15 FES, 11 VOL, 13 CON). Cadence, peak VO2, and net rise in heart rate were assessed at baseline, end of training, and washout (8-weeks after cessation of training). Latent growth curve modeling was used for analysis. The FES group showed significantly higher cycling cadences than the VOL and CON groups at POST and WO. There were no differences in improvements in the peak VO2 and peak net HR between groups. FES-assisted cycling may help children with CP attain higher cycling cadences and to retain these gains after training cessation. Higher training intensities may be necessary to obtain improvements in peak VO2 and heart rate.


Assuntos
Paralisia Cerebral , Terapia por Estimulação Elétrica , Traumatismos da Medula Espinal , Criança , Estimulação Elétrica , Exercício Físico , Terapia por Exercício , Humanos
7.
Int Nurs Rev ; 68(1): 49-58, 2021 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-33058198

RESUMO

AIMS: To identify the reasons why workers decide to enter, stay or leave the aged care workforce; and the factors influencing them to transition between community and residential sectors in Australia. BACKGROUND: Factors affecting the recruitment and retention of suitable care workers in aged care are complex and influenced by personal, institutional and societal factors. METHODS: A qualitative description study design. RESULTS: In total, 32 staff participated in the study. Five main themes were identified: entering aged care with a passion for the job; entering aged care as it is the only employment option; factors attracting care workers to stay in aged care; factors influencing care workers to leave the job; and preferring to work in residential aged care rather than community aged care. CONCLUSION: Issues relating to the attraction and retention of aged care workers are influenced by personal, institutional and societal factors. Critical shortages in the aged care workforce make the industry more susceptible to crises such as COVID-19 outbreaks. IMPLICATION FOR NURSING PRACTICE: Aged care organizations need to create a positive psychosocial work environment for staff to improve the attraction and retention of skilled care workers. They also need to develop staff recruitment guidelines to ensure care workers with the appropriate skills and training and a passion for working with older adults are selected. Staff development programmes need to focus on learning activities that enable staff to build peers support in the work environment. IMPLICATIONS FOR HEALTH POLICY: There is a need to mandate curriculum to enable nursing students to receive more gerontological education and exposure to aged care throughout their education. Aged care quality standards need to mandate transition support for new graduate nurses.


Assuntos
Escolha da Profissão , Cuidadores/psicologia , Cuidadores/estatística & dados numéricos , Serviços de Saúde para Idosos , Humanos , Seleção de Pessoal , Reorganização de Recursos Humanos , Pesquisa Qualitativa , Austrália do Sul
8.
J Cross Cult Gerontol ; 36(1): 69-89, 2021 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-33449242

RESUMO

Social determinants of health is a core cross-cutting approach of the World Health Organization to reduce health inequalities, and places an emphasis on aged care planning in rural areas of low- and lower-middle income countries including Bangladesh. The complex correlated health and social factors in Bangladesh interplay to shape the healthcare access of rural people. This impact is significant for rural elderly women in particular who have been shown to access healthcare in ways that are described as 'socially determined'. This study aimed to explore how this cohort related their healthcare access to their living circumstances and provided insight into how their healthcare access needs can be addressed. This study was a critical social theoretical exploration from conversational interviews held over three months with 25 elderly women in rural Bangladesh. Two critical social constructs, 'emancipation' of Habermas and 'recognition' of Honneth, were used in the exploration and explanation of the influence of personal circumstances, society and system on rural elderly women's healthcare access. The concept of 'social determinants of healthcare access' is defined from the physical, emotive, symbolic and imaginative experiences of these women. Interviewing the women provided information for exploration of the determinants that characterized their experiences into an overall construct of 'The World is Not Mine'. This construct represented four themes focusing on the exclusion from healthcare, oppressive socioeconomic condition, marginalization in social relationships and personal characteristics that led the women to avoid or delay access to modern healthcare. This study confirms that the rural elderly women require adequate policy responses from the government, and also need multiple support systems to secure adequate access to healthcare. As healthcare services are often a reflection of community values and human rights concerns for the elderly, there is a need of recognition and respect of their voice by the family members, society and the healthcare system in planning and implementation of a prudent aged care policy for rural elderly women in Bangladesh.


Assuntos
Acessibilidade aos Serviços de Saúde , Disparidades em Assistência à Saúde , População Rural/estatística & dados numéricos , Idoso , Idoso de 80 Anos ou mais , Bangladesh , Atenção à Saúde , Feminino , Humanos , Entrevistas como Assunto , Pesquisa Qualitativa , Determinantes Sociais da Saúde , Fatores Socioeconômicos
9.
Radiology ; 295(3): 616-625, 2020 06.
Artigo em Inglês | MEDLINE | ID: mdl-32286193

RESUMO

Background Upper extremity MRI and proton MR spectroscopy are increasingly considered to be outcome measures in Duchenne muscular dystrophy (DMD) clinical trials. Purpose To demonstrate the feasibility of acquiring upper extremity MRI and proton (1H) MR spectroscopy measures of T2 and fat fraction in a large, multicenter cohort (ImagingDMD) of ambulatory and nonambulatory individuals with DMD; compare upper and lower extremity muscles by using MRI and 1H MR spectroscopy; and correlate upper extremity MRI and 1H MR spectroscopy measures to function. Materials and Methods In this prospective cross-sectional study, MRI and 1H MR spectroscopy and functional assessment data were acquired from participants with DMD and unaffected control participants at three centers (from January 28, 2016, to April 24, 2018). T2 maps of the shoulder, upper arm, forearm, thigh, and calf were generated from a spin-echo sequence (repetition time msec/echo time msec, 3000/20-320). Fat fraction maps were generated from chemical shift-encoded imaging (eight echo times). Fat fraction and 1H2O T2 in the deltoid and biceps brachii were measured from single-voxel 1H MR spectroscopy (9000/11-243). Groups were compared by using Mann-Whitney test, and relationships between MRI and 1H MR spectroscopy and arm function were assessed by using Spearman correlation. Results This study evaluated 119 male participants with DMD (mean age, 12 years ± 3 [standard deviation]) and 38 unaffected male control participants (mean age, 12 years ± 3). Deltoid and biceps brachii muscles were different in participants with DMD versus control participants in all age groups by using quantitative T2 MRI (P < .001) and 1H MR spectroscopy fat fraction (P < .05). The deltoid, biceps brachii, and triceps brachii were affected to the same extent (P > .05) as the soleus and medial gastrocnemius. Negative correlations were observed between arm function and MRI (T2: range among muscles, ρ = -0.53 to -0.73 [P < .01]; fat fraction, ρ = -0.49 to -0.70 [P < .01]) and 1H MR spectroscopy fat fraction (ρ = -0.64 to -0.71; P < .01). Conclusion This multicenter study demonstrated early and progressive involvement of upper extremity muscles in Duchenne muscular dystrophy (DMD) and showed the feasibility of MRI and 1H MR spectroscopy to track disease progression over a wide range of ages in participants with DMD. © RSNA, 2020 Online supplemental material is available for this article.


Assuntos
Braço/diagnóstico por imagem , Perna (Membro)/diagnóstico por imagem , Imageamento por Ressonância Magnética/métodos , Músculo Esquelético/diagnóstico por imagem , Distrofia Muscular de Duchenne/diagnóstico por imagem , Espectroscopia de Prótons por Ressonância Magnética/métodos , Adolescente , Estudos de Casos e Controles , Criança , Estudos de Coortes , Estudos Transversais , Progressão da Doença , Estudos de Viabilidade , Humanos , Masculino , Avaliação de Resultados em Cuidados de Saúde , Estudos Prospectivos
10.
Int J Nurs Pract ; 26(1): e12773, 2020 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-31423691

RESUMO

AIMS: The aim of the study is to explore the experiences of nurses providing home-based palliative care for patients who live in country settings. METHODS: This study is an integrated literature review. Electronic databases, specific journals of interest, and reference lists were searched using key words and Boolean operators. Descriptive thematic analysis was undertaken to identify main themes and subthemes. Critical appraisal of the articles was conducted using the qualitative Critical Appraisal Skills Program guidelines. Primary research articles published in English, in peer-reviewed journals from 1990 to 2017, were included. RESULTS: Twelve articles were included in this review. Two main themes emerged including the nature of nursing in country communities and nurses' emotional responses. The first main theme had the subthemes of community connections, geographical distance and isolation, organizational deficits, lack of education, and resources. The second main theme consisted on five subthemes including feeling rewarded, autonomy and professional isolation, hope and hopelessness, frustration, and fear. CONCLUSION: Literature is sparse reporting the lived experience of nurses providing palliative care in country areas for patients wanting to die at home. An increase in demand for a home-based palliative nursing service will require additional funding globally to meet this increase in the future.


Assuntos
Serviços de Assistência Domiciliar , Enfermagem de Cuidados Paliativos na Terminalidade da Vida , Cuidados Paliativos , Humanos
11.
Muscle Nerve ; 60(3): 242-249, 2019 09.
Artigo em Inglês | MEDLINE | ID: mdl-31026080

RESUMO

INTRODUCTION: Balance impairment contributes to gait dysfunction, falls, and reduced quality of life in adults with Charcot-Marie-Tooth disease (CMT) but has been minimally examined in pediatric CMT. METHODS: The CMT Pediatric Scale (CMTPedS) was administered to 520 children with CMT. Associations between balance function (Bruininks-Oseretsky Test of Motor Proficiency [BOT-2]) and sensorimotor and gait impairments were investigated. RESULTS: Daily trips/falls were reported by 42.3% of participants. Balance (BOT-2) varied by CMT subtype, was impaired in 42% of 4-year-olds, and declined with age (P < 0.001). Vibration (P < 0.001), pinprick (P < 0.004), ankle dorsiflexion strength (P < 0.001), and foot alignment (P < 0.004) were associated with BOT-2 balance (adjusted R2 = 0.28). The visual dependence of balance increased with age. DISCUSSION: Balance impairment occurs from a young age in children with CMT. Balance intervention studies are required in pediatric CMT and should consider the degree of sensorimotor impairment, foot malalignment, and visual dependence. Muscle Nerve, 2019.


Assuntos
Doença de Charcot-Marie-Tooth/fisiopatologia , Transtornos Neurológicos da Marcha/fisiopatologia , Transtornos dos Movimentos/fisiopatologia , Força Muscular/fisiologia , Adolescente , Fatores Etários , Criança , Pré-Escolar , Feminino , Marcha/fisiologia , Humanos , Masculino , Modalidades de Fisioterapia , Qualidade de Vida , Adulto Jovem
12.
BMC Health Serv Res ; 19(1): 477, 2019 Jul 12.
Artigo em Inglês | MEDLINE | ID: mdl-31299950

RESUMO

BACKGROUND: Attention to culture and its impact on health care can improve the quality of care given, add to our understanding of health care among culturally diverse populations, and encourage a more holistic approach to health care within general care. Connection to culture is important to Aboriginal peoples, and integrating Aboriginal culture into general care in residential aged care facilities may contribute to improving care delivery and outcomes for residents. The literature to date revealed a lack of understanding of the capacity of residential aged care and the health practices of carers in relation to providing cultural care for Aboriginal people. This study aimed to explore how cultural care needs are maintained for Aboriginal residents from their own and their carers' perspectives. METHODS: Applying an Aboriginal centered research method, an Interpretive Descriptive Approach was used as a theoretical framework to explore data in this study. Semi structured audio-recorded interviews were conducted. An additional file provides a complete description of the interview questions used as a guide for the study [see Additional file 1]. Three Residential Aged Care Centres, in South Australia were used i.e., two rural from centres and one urban metropolitan centre. Seven Aboriginal residents and 19 carers participated in interviews. Data was transcribed and an interpretive analysis was employed to code the transcribed data for themes and sub-themes. The study was guided by an Aboriginal community advisory group with an aim to work under the principle of reciprocity; giving back to the communities, participants and those where the research results may have been relevant. RESULTS: Three themes emerged from the views of the residents and carers: (i) lack of resources and funding; (ii) care practice; and (iii) marginalisation of Aboriginal culture within aged care facilities. CONCLUSION: The findings suggest that carers and residents believe cultural inclusion in general care practices may enrich Aboriginal residents' daily life, health and well-being in residential aged care facilities. This study may provide carers, aged care centre managers and policy makers with information on the need of resources, funding, organised care plan and management, and cultural competency of carers to be considered to improve Aboriginal aged care protocols for integrating cultural care into practice.


Assuntos
Assistência à Saúde Culturalmente Competente/etnologia , Instituição de Longa Permanência para Idosos , Havaiano Nativo ou Outro Ilhéu do Pacífico , Avaliação das Necessidades , Espiritualidade , Idoso , Cuidadores/psicologia , Cuidadores/estatística & dados numéricos , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Havaiano Nativo ou Outro Ilhéu do Pacífico/psicologia , Havaiano Nativo ou Outro Ilhéu do Pacífico/estatística & dados numéricos , Pesquisa Qualitativa , Austrália do Sul
13.
J Relig Health ; 58(5): 1561-1572, 2019 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-30535671

RESUMO

The ability of older people to express their spirituality is an important component of aged care. Spirituality is not specifically religiousness although, for some, religion offers a means for spiritual expression. This paper aimed to explore what constitutes spiritual life for residents in three residential aged care facilities in South Australia. The findings of the research demonstrated that the majority of older resident participants defined spirituality as 'connection/s'. Three unexpected results of the study became obvious during analysis, reported here as 'loss', 'adaptation' and 'they're busy'. It is offered here that these adjustments enabled participants to compensate for their losses.


Assuntos
Cuidados de Enfermagem/métodos , Terapias Espirituais , Espiritualidade , Idoso , Idoso de 80 Anos ou mais , Austrália , Feminino , Instituição de Longa Permanência para Idosos , Humanos , Masculino , Cuidados de Enfermagem/psicologia , Casas de Saúde , Religião e Psicologia
14.
Muscle Nerve ; 58(5): 631-638, 2018 11.
Artigo em Inglês | MEDLINE | ID: mdl-29742798

RESUMO

INTRODUCTION: Tests of ambulatory function are common clinical trial endpoints in Duchenne muscular dystrophy (DMD). Using these tests, the ImagingDMD study has generated a large data set that can describe the contemporary natural history of DMD in 5-12.9-year-olds. METHODS: Ninety-two corticosteroid-treated boys with DMD and 45 controls participated in this longitudinal study. Participants performed the 6-minute walk test (6MWT) and timed function tests (TFT: 10-m walk/run, climbing 4 stairs, supine to stand). RESULTS: Boys with DMD had impaired functional performance even at 5-6.9 years old. Boys older than 7 had significant declines in function over 1 year for 10-m walk/run and 6MWT. Eighty percent of participants could perform all functional tests at 9 years old. TFTs appear to be slightly more responsive and predictive of disease progression than the 6MWT in 7-12.9 year olds. DISCUSSION: This study provides insight into the contemporary natural history of key functional endpoints in DMD. Muscle Nerve 58: 631-638, 2018.


Assuntos
Imageamento por Ressonância Magnética , Distrofia Muscular de Duchenne/diagnóstico por imagem , Distrofia Muscular de Duchenne/fisiopatologia , Avaliação de Resultados em Cuidados de Saúde , Caminhada/fisiologia , Adolescente , Fatores Etários , Criança , Pré-Escolar , Estudos de Coortes , Progressão da Doença , Feminino , Humanos , Processamento de Imagem Assistida por Computador , Masculino , Fatores de Tempo , Teste de Caminhada
15.
J Clin Nurs ; 27(7-8): e1327-e1343, 2018 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-29322576

RESUMO

AIMS AND OBJECTIVES: To undertake a mixed methods thematic literature review that explored how elderly adults approached decision-making in regard to their health care following discharge. BACKGROUND: A critical time for appropriate health decisions occurs during hospital discharge planning with nursing staff. However, little is known how the 89% of elderly living at home make decisions regarding their health care. Research into older adults' management of chronic conditions emerges as an important step to potentially encourage symptom monitoring, prevent missed care and detect deterioration. All should reduce the risk of hospital re-admission. DESIGN: A mixed methods thematic literature review was undertaken. The structure followed the PRISMA reporting guidelines for systematic reviews recommended by the EQUATOR network. METHODS: PubMed, Cumulative Index to Nursing and Allied Health Literature (CINAHL) and Scopus online databases were searched using keywords, inclusion and exclusion criteria. References drawn from relevant publications, identified by experts and published between 1995 and 2017 were also considered. Twenty-five qualitative, quantitative and mixed methods studies and reviews were critically appraised (CASP 2013) before inclusion in the review. Analysis of each study's findings was undertaken using Braun and Clarke's (2006) steps to identify major themes and sub-themes. RESULTS: Four main themes associated with health-related decision-making in the elderly were identified: "the importance of maintaining independence," "decision making style," "management of conditions at home" and "discharge planning." CONCLUSION: Health care decision preferences in the elderly emerged as highly complex and influenced by multiple factors. Development of a tool to assess these components has been recommended. RELEVANCE TO CLINICAL PRACTICE: Nurses play a vital role in exploring and understanding the influence that maintaining independence has with each patient. This understanding provides an initial step toward development of a tool to assist collaboration between patients and healthcare professionals involved in their care.


Assuntos
Doença Crônica/psicologia , Tomada de Decisões , Idoso Fragilizado/psicologia , Vida Independente/psicologia , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Participação do Paciente/psicologia , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade
16.
Nurs Inq ; 25(1)2018 01.
Artigo em Inglês | MEDLINE | ID: mdl-28616899

RESUMO

Cultural diversity between residents and staff is significant in aged care homes in many developed nations in the context of international migration. This diversity can be a challenge to achieving effective cross-cultural communication. The aim of this study was to critically examine how staff and residents initiated effective cross-cultural communication and social cohesion that enabled positive changes to occur. A critical hermeneutic analysis underpinned by Giddens' Structuration Theory was applied to the study. Data were collected by interviews with residents or their family and by focus groups with staff in four aged care homes in Australia. Findings reveal that residents and staff are capable of restructuring communication via a partnership approach. They can also work in collaboration to develop communication resources. When staff demonstrate cultural humility, they empower residents from culturally and linguistically diverse backgrounds to engage in effective communication. Findings also suggest that workforce interventions are required to improve residents' experiences in cross-cultural care. This study challenges aged care homes to establish policies, criteria and procedures in cross-cultural communication. There is also the challenge to provide ongoing education and training for staff to improve their cross-cultural communication capabilities.


Assuntos
Comunicação , Idoso , Idoso de 80 Anos ou mais , Austrália , Comparação Transcultural , Diversidade Cultural , Assistência à Saúde Culturalmente Competente/métodos , Feminino , Grupos Focais , Humanos , Masculino , Casas de Saúde/organização & administração , Folhetos
17.
Ann Neurol ; 79(4): 535-47, 2016 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-26891991

RESUMO

OBJECTIVE: The aim of this study was to describe Duchenne muscular dystrophy (DMD) disease progression in the lower extremity muscles over 12 months using quantitative magnetic resonance (MR) biomarkers, collected across three sites in a large cohort. METHODS: A total of 109 ambulatory boys with DMD (8.7 ± 2.0 years; range, 5.0-12.9) completed baseline and 1-year follow-up quantitative MR imaging (transverse relaxation time constant; MRI-T2 ), MR spectroscopy (fat fraction and (1) H2 O T2 ), and 6-minute walk test (6MWT) measurements. A subset of boys completed additional measurements after 3 or 6 months. RESULTS: MRI-T2 and fat fraction increased significantly over 12 months in all age groups, including in 5- to 6.9-year-old boys. Significant increases in vastus lateralis (VL) fat fraction were observed in 3 and 6 months. Even in boys whose 6MWT performance improved or remained stable over 1 year, significant increases in MRI-T2 and fat fraction were found. Of all the muscles examined, the VL and biceps femoris long head were the most responsive to disease progression in boys with DMD. INTERPRETATION: MR biomarkers are responsive to disease progression in 5- to 12.9-year-old boys with DMD and able to detect subclinical disease progression in DMD, even within short (3-6 months) time periods. The measured sensitivity of MR biomarkers in this multicenter study may be critically important to future clinical trials, allowing for smaller sample sizes and/or shorter study windows in this fatal rare disease.


Assuntos
Progressão da Doença , Perna (Membro)/patologia , Imageamento por Ressonância Magnética/métodos , Músculo Esquelético/patologia , Distrofia Muscular de Duchenne/patologia , Biomarcadores , Criança , Pré-Escolar , Teste de Esforço , Humanos , Estudos Longitudinais , Espectroscopia de Ressonância Magnética , Masculino , Distrofia Muscular de Duchenne/fisiopatologia
18.
Cardiol Young ; 27(7): 1361-1368, 2017 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-28330522

RESUMO

OBJECTIVE: The aim of this study was to evaluate the safety and feasibility of a passive range of motion exercise programme for infants with CHD. Study design This non-randomised pilot study enrolled 20 neonates following Stage I palliation for single-ventricle physiology. Trained physical therapists administered standardised 15-20-minute passive range of motion protocol, for up to 21 days or until hospital discharge. Safety assessments included vital signs measured before, during, and after the exercise as well as adverse events recorded through the pre-Stage II follow-up. Feasibility was determined by the percent of days that >75% of the passive range of motion protocol was completed. RESULTS: A total of 20 infants were enrolled (70% males) for the present study. The median age at enrolment was 8 days (with a range from 5 to 23), with a median start of intervention at postoperative day 4 (with a range from 2 to 12). The median hospital length of stay following surgery was 15 days (with a range from 9 to 131), with an average of 13.4 (with a range from 3 to 21) in-hospital days per patient. Completion of >75% of the protocol was achieved on 88% of eligible days. Of 11 adverse events reported in six patients, 10 were expected with one determined to be possibly related to the study intervention. There were no clinically significant changes in vital signs. At pre-Stage II follow-up, weight-for-age z-score (-0.84±1.20) and length-for-age z-score (-0.83±1.31) were higher compared with historical controls from two earlier trials. CONCLUSION: A passive range of motion exercise programme is safe and feasible in infants with single-ventricle physiology. Larger studies are needed to determine the optimal duration of passive range of motion and its effect on somatic growth.


Assuntos
Desenvolvimento Infantil , Cardiopatias Congênitas/reabilitação , Tempo de Internação/estatística & dados numéricos , Terapia Passiva Contínua de Movimento , Antropometria , Estudos de Viabilidade , Feminino , Cardiopatias Congênitas/cirurgia , Humanos , Recém-Nascido , Modelos Logísticos , Masculino , Terapia Passiva Contínua de Movimento/efeitos adversos , Procedimentos de Norwood , Projetos Piloto , Fatores de Tempo , Resultado do Tratamento , Estados Unidos
19.
J Clin Nurs ; 26(9-10): 1351-1362, 2017 May.
Artigo em Inglês | MEDLINE | ID: mdl-27990703

RESUMO

AIMS AND OBJECTIVES: To explore the experience of spirituality and spiritual care by military nurses on deployed operations. BACKGROUND: Despite an increasing body of research addressing spirituality in nursing care in a variety of clinical settings, the deployed military nursing context remains poorly understood. DESIGN: A qualitative, philosophical hermeneutic design. METHOD: Ten Australian military nurses were interviewed about their experiences of spirituality and spiritual care while on deployed operations. Analyses were performed using a phenomenological method informed by philosophical hermeneutics. RESULTS: The participants perceived that they had an important role in the provision of spiritual care in the absence of family on deployed operations. However, the nurse also needed to care for their own spiritual needs. The results suggested that spirituality and spiritual care may provide positive benefits in protecting against the long-term psychological, emotional and spiritual impacts of military service on deployed operations. CONCLUSIONS: Military nurses need to understand the factors that influence spiritual care delivery in their practice setting. Nurses need to be cognizant of the importance of spiritual care in the deployed military context, not only for their patients and colleagues, but also for themselves. Spirituality is argued as a protective factor against the challenges and consequences often associated with deployment. Well-developed spiritual resilience may assist in ensuring that military personnel return home emotionally, psychologically and spiritually 'fit'. RELEVANCE FOR CLINICAL PRACTICE: To provide effective spiritual nursing care to deployed military populations, the nurse needs to understand the complex military practice environment, the personal and individual nature of spiritual expressions and their own spiritual care requirements. Meaningful spiritual care aids resilience against the psychological, emotional and spiritual dangers of deployment.


Assuntos
Enfermagem Militar , Papel do Profissional de Enfermagem/psicologia , Relações Enfermeiro-Paciente , Espiritualidade , Adaptação Psicológica , Austrália , Humanos , Processo de Enfermagem , Filosofia em Enfermagem
20.
Nurs Health Sci ; 19(1): 59-65, 2017 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-27485390

RESUMO

Similar to many developed nations, older people living in residential aged care homes in Australia and the staff who care for them have become increasingly multicultural. This cultural diversity adds challenges for residents in adapting to the care home. This study explores: (i) residents' and family members' perceptions about staff and cultural diversity, and (ii) culturally and linguistically diverse residents' and family members' experiences. An interpretive study design employing a thematic analysis was applied. Twenty-three residents and seven family members participated in interviews. Four themes were identified from interpreting residents and family members' perceptions of the impact of cultural diversity on their adaptation to aged care homes: (i) perceiving diversity as an attraction; (ii) adapting to cross-cultural communication; (iii) adjusting to diet in the residential care home; and (iv) anticipating individualized psychosocial interactions. The findings have implications for identifying strategies to support staff from all cultural backgrounds in order to create a caring environment that facilitates positive relationships with residents and supports residents to adjust to the care home.


Assuntos
Diversidade Cultural , Família/psicologia , Percepção , Idoso , Idoso de 80 Anos ou mais , Austrália , Feminino , Humanos , Masculino , Casas de Saúde/normas , Pesquisa Qualitativa , Instituições Residenciais/normas
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