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1.
Int Wound J ; 21(1): e14339, 2024 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-37667542

RESUMO

Complex, chronic or hard-to-heal wounds are a prevalent health problem worldwide, with significant physical, psychological and social consequences. This study aims to identify factors associated with the healing process of these wounds and develop a mobile application for wound care that incorporates these factors. A prospective multicentre cohort study was conducted in nine health units in Portugal, involving data collection through a mobile application by nurses from April to October 2022. The study followed 46 patients with 57 wounds for up to 5 weeks, conducting six evaluations. Healing time was the main outcome measure, analysed using the Mann-Whitney test and three Cox regression models to calculate risk ratios. The study sample comprised various wound types, with pressure ulcers being the most common (61.4%), followed by venous leg ulcers (17.5%) and diabetic foot ulcers (8.8%). Factors that were found to impair the wound healing process included chronic kidney disease (U = 13.50; p = 0.046), obesity (U = 18.0; p = 0.021), non-adherence to treatment (U = 1.0; p = 0.029) and interference of the wound with daily routines (U = 11.0; p = 0.028). Risk factors for delayed healing over time were identified as bone involvement (RR 3.91; p < 0.001), presence of odour (RR 3.36; p = 0.007), presence of neuropathy (RR 2.49; p = 0.002), use of anti-inflammatory drugs (RR 2.45; p = 0.011), stalled wound (RR 2.26; p = 0.022), greater width (RR 2.03; p = 0.002), greater depth (RR 1.72; p = 0.036) and a high score on the healing scale (RR 1.21; p = 0.001). Integrating the identified risk factors for delayed healing into the assessment of patients and incorporating them into a mobile application can enhance decision-making in wound care.


Assuntos
Pé Diabético , Úlcera Varicosa , Humanos , Estudos de Coortes , Estudos Prospectivos , Cicatrização , Úlcera Varicosa/terapia , Pé Diabético/tratamento farmacológico
2.
J Tissue Viability ; 31(4): 783-789, 2022 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-35931619

RESUMO

INTRODUCTION: In order to assess and to follow up the evolution of chronic wounds, it is advisable to apply measurement scales. This procedure allows clinicians to verify the appropriateness of their activities and whether the healing process is evolving as expected. AIM: To conduct a cross-cultural adaptation and psychometric analysis of Portuguese version of RESVECH 2.0. METHODS: A quantitative and correlational study was designed and, to perform the cross-cultural adaptation of RESVECH 2.0, we followed the classic sequential approach for linguistic equivalence to European Portuguese. The study occurred at a Portuguese oncology hospital and the sample encompassed 281 patients with multiple chronic wounds. RESULTS: RESVECH 2.0 is a practical measurement instrument, easy to use, and well accepted by nurses to know all kinds of wounds' etiologies. The reliability test revealed an acceptable internal consistency and high proportion of agreement between two raters assessing the same patient. Construct validity was considered average/good and the principal component factor analysis with varimax rotation obtained six factors corresponding to 59.5% of explained variance. When comparing the domains from RESVECH 2.0 with those from BWAT we found statistically significant correlations. CONCLUSION: The adapted version of RESVECH 2.0 scale presents a good internal consistency and is valid for the Portuguese language and culture, being useful and effective in clinical practice.


Assuntos
Idioma , Linguística , Humanos , Reprodutibilidade dos Testes , Inquéritos e Questionários , Portugal , Psicometria , População Europeia , Comparação Transcultural
3.
Issues Ment Health Nurs ; 39(3): 200-207, 2018 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-29172826

RESUMO

Our aim was to identify factors that contribute to a better outcome in drug users and to understand the effectiveness of nursing interventions, by applying "Nursing Role Effectiveness Model" (NREM). It's a correlational, cross-sectional study with 180 drug users in a methadone program, randomly selected from three community services. We identified that treatment time, lower co-morbidities, less poly-drug use, family support and being employed contribute to a better quality of life, better mental health, less substance addiction consequences and more satisfaction with nursing care (p < 0.05). Those data were also related with nursing interventions using Structural Equation Model and we found that nursing care contributes 29% to health outcome improvement. The model revealed itself adequate to assess the effectiveness of nursing interventions (X2: 82.51/(34) = 2.426; p < 0.01, NFI = 0.927, CFI = 0.955, RFI = 0.903, GFI = 0.917, PGFI = 0.567, PCFI = 0.722, PNFI = 0.700, RMSEA = 0.089). Compared with the NREM original model, our findings reveal new relationships between the users' structural variables and the health outcomes and also relationship between units' structural variables and nurses' structural variables.


Assuntos
Assistência Ambulatorial , Papel do Profissional de Enfermagem , Transtornos Relacionados ao Uso de Substâncias/enfermagem , Estudos Transversais , Humanos , Modelos de Enfermagem , Resultado do Tratamento
4.
Issues Ment Health Nurs ; 39(9): 779-785, 2018 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-30111209

RESUMO

Our aim was to contribute to the clinical validation of "Substance Addiction Consequences" (SAC) derived from the nursing outcomes classification (NOC), and to analyse psychometric properties. To that purpose, we applied a methodological design. The study's outcome comprises 16 nursing-sensitive indicators, within four different consequence factors: psychological and family; physical and cognitive ability; self-care; economic and work. The psychometric properties were considered good. We concluded that the scale can be used as a valid tool to measure the consequences of substance addiction and to assess the health status as a nursing sensitive outcome. The scale is considered valid to monitor nursing interventions in the clinical setting; being a comprehensive tool it allows the nurse to understand better this complex health problem.


Assuntos
Transtornos Relacionados ao Uso de Substâncias/complicações , Transtornos Relacionados ao Uso de Substâncias/psicologia , Adulto , Idoso , Feminino , Nível de Saúde , Indicadores Básicos de Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Avaliação de Resultados em Cuidados de Saúde , Portugal , Psicometria , Qualidade de Vida , Reprodutibilidade dos Testes , Fatores Socioeconômicos , Transtornos Relacionados ao Uso de Substâncias/enfermagem , Adulto Jovem
5.
Rev Gaucha Enferm ; 38(2): e58962, 2017 Jul 13.
Artigo em Português, Inglês | MEDLINE | ID: mdl-28723984

RESUMO

OBJECTIVES: To identify the degree of satisfaction with nursing care, the significant variables and contribute to the evolution of the scale. METHODS: Descriptive, correlational, cross study, with 180 drug users. Data collected using the scale called "Satisfaction of users with the Nursing Health Center26", between February and December 2012 in three treatment units in the region of Lisbon and Vale do Tejo, Portugal. RESULTS: Users indicated 83.3% satisfaction. The dimension "Information individualization" was the most marked (98.5%). The more stability in the programs, abstinence from stimulants and benzodiazepines and more nursing interventions, the greater the satisfaction. Better working conditions, specializing in mental health, younger ages and less experience of nurses also contributed to satisfaction. Four items of the scale were extracted, assuming new SUCECS22 designation. CONCLUSIONS: Satisfaction was high, influenced by structural variables of users, nurses and working conditions. The scale has proved suitable for assessment in this population.


Assuntos
Dependência de Heroína/enfermagem , Cuidados de Enfermagem , Tratamento de Substituição de Opiáceos/enfermagem , Satisfação do Paciente , Adulto , Idoso , Comorbidade , Estudos Transversais , Feminino , Dependência de Heroína/psicologia , Dependência de Heroína/reabilitação , Humanos , Masculino , Metadona/uso terapêutico , Pessoa de Meia-Idade , Tratamento de Substituição de Opiáceos/psicologia , Fatores Socioeconômicos , Inquéritos e Questionários , Adulto Jovem
6.
Nurs Rep ; 13(1): 67-72, 2023 Jan 06.
Artigo em Inglês | MEDLINE | ID: mdl-36648981

RESUMO

BACKGROUND: Artificial intelligence (AI) techniques and methodologies for problem solving are emerging as formal tools essential to assist in nursing care. Given their potential to improve workflows and to guide decision making, several studies have been developed; however, little is known about their impact, particularly on decision making. OBJECTIVE: The aim of this study was to map the existing research on the use of AI in decision making in nursing. With this review protocol, we aimed to map the existing research on the use of AI in nursing decision making. METHODS: A scoping review was conducted following the framework proposed by the Joanna Briggs Institute (JBI). The search strategy was tailored to each database/repository to identify relevant studies. The contained articles were the targets of the data extraction, which was conducted by two independent researchers. In the event of discrepancies, a third researcher was consulted. RESULTS: This review included quantitative, qualitative and mixed method studies. Primary studies, systematic reviews, dissertations, opinion texts and gray literature were considered according to the three steps that the JBI has defined for scoping reviews. CONCLUSIONS: This scoping review synthesized knowledge that could help advance new scientific developments and find significant and valuable outcomes for patients, caregivers and leaders in decision making. This review was also intended to encourage the development of research lines that may be useful for the development of AI tools for decision making.

7.
PLoS One ; 18(5): e0285317, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37141328

RESUMO

Throughout the pandemic of COVID-19 caused by SARS-CoV-2, university students were considered a vulnerable risk group for mental health impairment and wellbeing deterioration. This study aimed at evaluating the pandemic's impact on the physical and mental health and wellbeing among students of a Portuguese university. This cross-sectional study included 913 participants and ran from June to October 2020. Data collected included sociodemographics, three mental health self-report questionnaires (Depression Anxiety Stress Scale, Eating Disorder Examination Questionnaire and Brief COPE) and lifestyle practices (eating and sleeping patterns, media, and entertainment habits) during the first months of the pandemic, which included a 72-day full national lockdown. Descriptive and correlational statistical analysis were conducted. Students' food habits changed during the pandemic, namely on the consumption of snacks and fast food and, overall, less balanced meals became more prevalent. Additionally, almost 70% of the students reported Body Mass Index changes, while 59% went through sleep pattern changes-these were more pronounced in women and younger students. Over half (67%) of the inquirees exhibited an increase in their stress, depression, and generalized anxiety symptoms. Also, the study demonstrates that students' lifestyles trended negatively during the pandemic and highlights how important regular psychological, health monitoring and emotional support is, amongst this somehow overlooked population throughout the pandemic. Universities should provide support to overcome challenges in future stressful situations. This study might have an impact on how universities and higher education systems approach their students in terms of mental and physical health monitoring and promotion in future situations, non-related with COVID. Moreover, it has a large sample of students well characterized in terms of mental and physical health, which might be of interest for future comparison with other worldwide group of students throughout stressful situations, such as tragic events, wars, pandemics.


Assuntos
COVID-19 , Humanos , Feminino , COVID-19/epidemiologia , COVID-19/psicologia , Pandemias , Portugal/epidemiologia , SARS-CoV-2 , Estudos Transversais , Universidades , Depressão/epidemiologia , Estresse Psicológico/psicologia , Controle de Doenças Transmissíveis , Ansiedade/psicologia , Estudantes/psicologia
8.
Rev Bras Enferm ; 75Suppl 4(Suppl 4): e20210232, 2022.
Artigo em Inglês, Português | MEDLINE | ID: mdl-35442296

RESUMO

OBJECTIVE: To validate a questionnaire to assess the impact of dementia on one of the household members. METHODS: Methodological study. The instrument was designed based on literature review, expert opinion, and researchers' experience and then applied to a non-probability convenience sample consisting of 262 family members who live daily with a person with dementia. The construct validity was studied by exploratory factor analysis, principal components method, with varimax rotation of the items. RESULTS: An instrument with 30 items was obtained, distributed in four dimensions: "Emotional dimension," "Economic dimension," "Family relations dimension," and "Support-seeking dimension." Factor analysis revealed a total explained variance of 54.96% and a total Cronbach's alpha of .899. CONCLUSIONS: The instrument presents high internal consistency, grouped into four dimensions, all closely related to the family's adaptation to the onset of dementia in one of its members.


Assuntos
Demência , Família , Demência/complicações , Análise Fatorial , Humanos , Psicometria/métodos , Reprodutibilidade dos Testes , Inquéritos e Questionários
9.
J Health Econ ; 80: 102529, 2021 12.
Artigo em Inglês | MEDLINE | ID: mdl-34563831

RESUMO

Switching costs and persistent preferences generate demand inertia and link current and future choices of hospital. Using a model of hospital competition with demand inertia, we investigate the effect of patient expectations on quality. We consider three types of expectations. Myopic patients choose a hospital based on current variables alone, forward-looking but naïve patients consider the future but assume that quality remains constant, and forward-looking and rational patients foresee the evolution of quality. We rank quality provision and show that it is higher under naïve than myopic expectations, while quality under rational expectations may be highest or lowest. This result also holds for patients' health gains, suggesting that rationality may hurt patients. Additionally, policies to reduce switching costs lead to lower quality, possibly unless patients are rational and cost substitutability between output and quality is sufficiently strong. Finally, we show how optimal price regulation depends on expectations and switching costs.


Assuntos
Hospitais , Motivação , Humanos
10.
Arq Bras Oftalmol ; 84(6): 561-568, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34431876

RESUMO

PURPOSE: To provide guidance on the frequency and components of eye examinations for healthy children aged 0 to 5 years. METHODS: These guidelines were developed based on the medical literature and clinical experience of an expert committee. PubMed/Medline searches were performed, with selected publications not restricted to systematic reviews, randomized controlled trials, or observational studies. The Grading of Recommendations Assessment, Development, and Evaluation profile was applied when suitable, and for issues without scientific evidence, recommendations were based on expert consensus. Recommendations by the American Academy of Pediatrics, American Association of Pediatric Ophthalmology and Strabismus, American Academy of Ophthalmology, Royal College of Ophthalmologists, and Canadian Ophthalmological Society were also reviewed. The final guideline document was approved by the Brazilian Pediatric Ophthalmology Society and by the Brazilian Pediatric Society. RESULTS: Newborns must undergo the red reflex test and inspection of the eyes and adnexa by a pediatrician within 72 hours of life. The red reflex test should be repeated by the pediatrician during childcare consultations at least three times per year during the first 3 years of life. If feasible, a comprehensive ophthalmologic examination may be performed between 6 and 12 months of age. Until 36 months of age, the pediatrician should assess the infant's visual development milestones, age-appropriate assessment of visual function, ocular fixation, and eye alignment. At least one comprehensive ophthalmologic examination should be performed at 3 to 5 years of age. The examination should minimally include inspection of the eyes and adnexa, age-appropriate visual function assessment, evaluations of ocular motility and alignment (cover tests), cycloplegic refraction, and dilated fundus. CONCLUSIONS: Guidelines concerning the frequency of ophthalmic assessment are important tools for directing physicians regarding best practices that avoid treatable vision problems that affect children's development, school, and social performance and cause unnecessary permanent vision loss.


Assuntos
Estrabismo , Testes Visuais , Canadá , Criança , Humanos , Lactente , Recém-Nascido , Estrabismo/diagnóstico , Estados Unidos , Transtornos da Visão , Visão Ocular
11.
Rev Gaucha Enferm ; 41: e20190370, 2020.
Artigo em Inglês, Português | MEDLINE | ID: mdl-33237220

RESUMO

OBJECTIVE: To analyze the nursing diagnosis NANDA-I - Caregiver Role Strain validation studies. METHODS: Integrative literature review. Research of studies carried out between 2000 and 2018 with the descriptors: caregivers, nursing diagnosis and validation study in the following databases: Web of Science, EBESCOhost, Scielo Brasil and Portugal, LILACS, RCAAP, CAPES, NANDA-I website, and in the bibliographic references of the articles. Articles in Portuguese, English or Spanish were included. RESULTS: The sample consisted of seven validation studies, with heterogeneity in the methodologies used. The populations where the diagnosis was clinically validated focused on caregivers for the elderly and people with chronic illness. The most prevalent defining characteristics were Stress and Apprehension related to the future. CONCLUSIONS: This diagnosis requires further validation studies among different populations in search of greater accuracy and a reduction in the number of defining characteristics, facilitating the use of taxonomy.


Assuntos
Diagnóstico de Enfermagem , Terminologia Padronizada em Enfermagem , Idoso , Brasil , Cuidadores , Humanos , Estudos de Validação como Assunto
12.
J Health Econ ; 66: 260-282, 2019 07.
Artigo em Inglês | MEDLINE | ID: mdl-31306867

RESUMO

We develop a dynamic model of hospital competition where (i) waiting times increase if demand exceeds supply; (ii) patients choose a hospital based in part on waiting times; and (iii) hospitals incur waiting time penalties. We show that, whereas policies based on penalties will lead to lower waiting times, policies that promote patient choice will instead lead to higher waiting times. These results are robust to different game-theoretic solution concepts, designs of the hospital penalty structure, and patient utility specifications. Furthermore, waiting time penalties are likely to be more effective in reducing waiting times if they are designed with a linear penalty structure, but the counterproductive effect of patient choice policies is smaller when penalties are convex. These conclusions are partly derived by calibration of our model based on waiting times and elasticities observed in the English NHS for a common treatment (cataract surgery).


Assuntos
Competição Econômica/estatística & dados numéricos , Hospitais/estatística & dados numéricos , Listas de Espera , Economia Hospitalar , Administração Hospitalar , Humanos , Modelos Estatísticos , Preferência do Paciente/economia , Preferência do Paciente/estatística & dados numéricos , Medicina Estatal/economia , Medicina Estatal/organização & administração , Medicina Estatal/estatística & dados numéricos , Reino Unido
13.
F1000Res ; 8: 1630, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31807285

RESUMO

Ovarian borderline serous tumors present with peritoneal involvement in 20% of cases, either as non-invasive or invasive implants, also known as extraovarian low-grade serous carcinoma. The coexistence of high-grade serous carcinoma is rare, suggesting a synchronous neoplasia with a distinct and independent tumor biology and behavior. We aim to describe a case of a synchronous ovary-peritoneum neoplasia: serous borderline tumor and primary peritoneal high-grade serous carcinoma. A discussion and literature review concerning the optimal diagnostic and therapeutic approach is provided.


Assuntos
Cistadenocarcinoma Seroso , Neoplasias Ovarianas , Neoplasias Peritoneais , Cistadenocarcinoma Seroso/diagnóstico , Feminino , Humanos , Pessoa de Meia-Idade , Neoplasias Ovarianas/diagnóstico , Neoplasias Peritoneais/diagnóstico
14.
Issues Ment Health Nurs ; 29(4): 411-26, 2008 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-18382918

RESUMO

Bullying is a concept commonly used to describe situations in which an individual is persistently treated in an abusive manner over a period of time, with a feeling of not being able to counterattack or defend him-or herself against the abuse. In this study we investigated both the prevalence of bullying in Portuguese nurses and the relationship between the symptoms of burnout and mental health in nurses who report being bullied. Participants were 107 nurses of the Portuguese Public Health System. We concluded that one out of six (13%) nurses had experienced bullying in the past six months. The three most common types of bullying behaviour experienced by the nurses were doing tasks below their level of competence, having areas of responsibility removed or replaced with more trivial or unpleasant tasks, and being exposed to unmanageable levels of workload. Bullied nurses had significantly higher levels of emotional exhaustion and lowered levels of mental health compared with non-bullied colleagues.


Assuntos
Esgotamento Profissional/psicologia , Transtornos Mentais/epidemiologia , Transtornos Mentais/psicologia , Enfermeiras e Enfermeiros/psicologia , Enfermeiras e Enfermeiros/estatística & dados numéricos , Violência/psicologia , Violência/estatística & dados numéricos , Adulto , Feminino , Humanos , Masculino , Transtornos Mentais/diagnóstico , Portugal/epidemiologia , Inquéritos e Questionários
15.
Rev Bras Enferm ; 71(4): 1992-1997, 2018.
Artigo em Inglês, Português | MEDLINE | ID: mdl-30156688

RESUMO

OBJECTIVE: The objective is to identify the variables that influence the impact of cancer on healthy siblings. METHOD: This is a quantitative, descriptive and correlational study with 83 families of children with cancer. We used the "Questionnaire to Assess the Impact of the Children's Cancer on the Family", "Social Support Satisfaction Scale", "Graffar Scale" and "Apgar Scale". RESULTS: The results show a relation between social support (X²=5.031, gl=1, p=0.025), expenses (t=-2.009, gl=81, p=0.048), disease impact on family structure (t=-3.210, gl=81, p=0.002) and the impact of the disease on healthy siblings. CONCLUSION: Social support plays an important role in these families, especially in the impact of the disease on healthy siblings. Nurses should identify the support systems that families have available, as well as their family functionality and the implications for healthy siblings.


Assuntos
Relações Familiares/psicologia , Neoplasias/psicologia , Irmãos/psicologia , Adaptação Psicológica , Adolescente , Adulto , Criança , Correlação de Dados , Efeitos Psicossociais da Doença , Feminino , Humanos , Masculino , Neoplasias/complicações , Apoio Social , Inquéritos e Questionários
16.
Sci Total Environ ; 645: 1029-1039, 2018 Dec 15.
Artigo em Inglês | MEDLINE | ID: mdl-30248828

RESUMO

The effects of microplastics (MP) on aquatic organisms are currently the subject of intense research. Here, we provide a critical perspective on published studies of MP ingestion by aquatic biota. We summarize the available research on MP presence, behaviour and effects on aquatic organisms monitored in the field and on laboratory studies of the ecotoxicological consequences of MP ingestion. We consider MP polymer type, shape, size as well as group of organisms studied and type of effect reported. Specifically, we evaluate whether or not the available laboratory studies of MP are representative of the types of MPs found in the environment and whether or not they have reported on relevant groups or organisms. Analysis of the available data revealed that 1) despite their widespread detection in field-based studies, polypropylene, polyester and polyamide particles were under-represented in laboratory studies; 2) fibres and fragments (800-1600 µm) are the most common form of MPs reported in animals collected from the field; 3) to date, most studies have been conducted on fish; knowledge is needed about the effects of MPs on other groups of organisms, especially invertebrates. Furthermore, there are significant mismatches between the types of MP most commonly found in the environment or reported in field studies and those used in laboratory experiments. Finally, there is an overarching need to understand the mechanism of action and ecotoxicological effects of environmentally relevant concentrations of MPs on aquatic organism health.


Assuntos
Organismos Aquáticos/fisiologia , Plásticos/análise , Poluentes Químicos da Água/análise , Animais , Ecotoxicologia , Monitoramento Ambiental , Plásticos/toxicidade , Poluentes Químicos da Água/toxicidade
17.
Clin Pract ; 7(2): 918, 2017 Apr 06.
Artigo em Inglês | MEDLINE | ID: mdl-28484583

RESUMO

Neuroendocrine tumours are rare in the gynaecologic tract, comprising approximately 2% of all gynaecological tumours. They have an aggressive behaviour and are a diagnostic and clinical challenge, due to their rarity and the lack of standardized therapeutic approaches. There are a few case reports. It is defined as a high-grade carcinoma exhibiting neuroendocrine differentiation. The authors describe the case of a 70-year-old woman, with vulvar neuroendocrine small cell carcinoma after superficial vulvectomy. The patient was submitted to a surgery with wide local excision and adjuvant radiation therapy. A review of the literature on this topic is also presented.

18.
Referência ; serVI(1): e21122, dez. 2022. tab
Artigo em Português | LILACS-Express | BDENF | ID: biblio-1431173

RESUMO

Resumo Enquadramento: A família é o principal recurso da pessoa que adoece, assumindo-se, os seus constituintes, como cuidadores familiares. Objetivo: Identificar as variáveis que influenciam o impacto da perturbação neurocognitiva nos familiares e caracterizar os cuidadores de pessoas com PNC. Metodologia: Estudo quantitativo, descritivo e correlacional, com 262 familiares de pessoas com perturbação neurocognitiva. Resultados: Os cuidadores evidenciam uma associação entre as dimensões impacto emocional (r = 0,526; n = 102; p < 0,01), económica (r = 0,292; n = 102; p < 0,01), procura de suporte (r = 0,279; n = 102; p < 0,01), prestação de cuidados (r = 0,375; n = 102; p < 0,01) com maior sobrecarga percecionada. Entre os membros da família, quanto maior o impacto das relações familiares percebidas, maior o suporte social percebido (r = 0,219; n = 104; p < 0,05); quanto maior o impacto emocional, maior a necessidade de procura de suporte (r = 0,303; n = 104; p < 0,01); e quanto maior o impacto percebido na dimensão económica, maior a necessidade de procura de suporte (r = 0,319; n = 104; p < 0,01). Conclusão: O grau de funcionalidade da família, a dependência da pessoa cuidada, a escolaridade, o género e o grau de parentesco parecem ter influência na adaptação das famílias.


Abstract Background: The family is the main resource of patients, and family members take on the role of family caregivers. Objective: To identify the variables influencing the impact of a neurocognitive disorder (NCD) on family members and characterize the caregivers of people living with a NCD. Methodology: Quantitative, descriptive, and correlational study with a sample of 262 family members of people living with a NCD. Results: Caregivers revealed an association between the emotional dimension (r = 0.526; n = 102; p < 0.01), economic dimension (r = 0.292; n = 102; p < 0.01), support-seeking (r = 0.279; n = 102; p < 0.01), the healthcare-seeking dimension (r = 0.375; n = 102; p < 0.01) and a higher perceived burden. Among family members, the greater the impact of perceived family relations, the greater the perceived social support (r = 0.219; n = 104; p < 0.05); the greater the emotional impact, the greater the need to seek support (r = 0.303; n = 104; p < 0.01); and the greater the perceived impact on the economic dimension, the greater the need to seek support (r = 0.319; n = 104; p < 0.01). Conclusion: The family's functioning, the patient's level of dependence, the education level, the gender, and the degree of kinship seem to influence family adaptation.


Resumen Marco contextual: La familia es el principal recurso de la persona que cae enferma y sus miembros se consideran cuidadores familiares. Objetivo: Identificar las variables que influyen en el impacto del trastorno neurocognitivo en los familiares y caracterizar a los cuidadores de personas con PNC. Metodología: Estudio cuantitativo, descriptivo y correlacional, con 262 familiares de personas con trastorno neurocognitivo. Resultados: Los cuidadores observan una asociación entre las dimensiones impacto emocional (r = 0,526, n = 102, p < 0,01), económica (r = 0,292, n = 102, p < 0,01), búsqueda de apoyo (r = 0,279, n = 102, p < 0,01), prestación de cuidados (r = 0,375, n = 102, p < 0,01) con una mayor carga percibida. Entre los miembros de la familia, cuanto mayor es el impacto de las relaciones familiares percibidas, mayor es el apoyo social percibido (r = 0,219, n = 104, p < 0,05); cuanto mayor es el impacto emocional, mayor es la necesidad de buscar apoyo (r = 0,303, n = 104, p < 0,01), y cuanto mayor es el impacto percibido en la dimensión económica, mayor es la necesidad de buscar apoyo (r = 0,319, n = 104, p < 0,01). Conclusión: El grado de funcionalidad de la familia, la dependencia de la persona cuidada, la educación, el género y el grado de parentesco parecen influir en la adaptación de las familias.

20.
Rev. bras. enferm ; 75(supl.4): e20210232, 2022. tab
Artigo em Inglês | LILACS-Express | LILACS, BDENF | ID: biblio-1376623

RESUMO

ABSTRACT Objective: To validate a questionnaire to assess the impact of dementia on one of the household members. Methods: Methodological study. The instrument was designed based on literature review, expert opinion, and researchers' experience and then applied to a non-probability convenience sample consisting of 262 family members who live daily with a person with dementia. The construct validity was studied by exploratory factor analysis, principal components method, with varimax rotation of the items. Results: An instrument with 30 items was obtained, distributed in four dimensions: "Emotional dimension," "Economic dimension," "Family relations dimension," and "Support-seeking dimension." Factor analysis revealed a total explained variance of 54.96% and a total Cronbach's alpha of .899. Conclusions: The instrument presents high internal consistency, grouped into four dimensions, all closely related to the family's adaptation to the onset of dementia in one of its members.


RESUMEN Objetivo: Validar encuesta de evaluación del impacto de la demencia en uno de los miembros del agregado familiar. Métodos: Estudio metodológico. El instrumento fue construido basado en la revisión de la literatura, opinión de peritos y experiencia de los investigadores y, en seguida, aplicado a una muestra no probabilística de conveniencia constituida por 262 familiares que cohabitan diariamente con una persona con demencia. La validez de constructo fue estudiada por análisis factorial exploratorio, método de los componentes principales, con rotación varimax de los ítems. Resultados: Obtuvo un instrumento con 30 ítems, distribuidos en cuatro dimensiones: "Emocional", "Económica", "Relaciones familiares" y "Búsqueda de soporte". El análisis factorial reveló variancia explicada total de 54.96% y alfa de Cronbach total de .899. Conclusiones: El instrumento presenta consistencia interna elevada agrupándose en cuatro dimensiones, todas íntimamente relacionadas a la adaptación de la familia delante el aparecimiento de la demencia en uno de sus miembros.


RESUMO Objetivo: Validar um questionário de avaliação do impacto da demência num dos membros do agregado familiar. Métodos: Estudo metodológico. O instrumento foi construído, com base na revisão da literatura, na opinião de peritos e na experiência dos investigadores. Foi aplicado a uma amostra não probabilística de conveniência constituída por 262 familiares de pessoas que coabitam diariamente com a pessoa com demência. A validade de constructo foi estudada pela análise fatorial exploratória, método dos componentes principais, com rotação varimax dos itens. Resultados: Obteve-se um instrumento com 30 itens distribuídos por quatro dimensões "Dimensão emocional", "Dimensão económica", "Dimensão relações familiares" e "Dimensão procura de suporte". A análise fatorial revelou uma variância explicada total de 54,96% e um alfa de Cronbach total de ,899. Conclusões: O instrumento apresenta uma consistência interna elevada agrupando-se em quatro dimensões, todas elas intimamente ligadas à adaptação da família ao aparecimento da demência num dos seus membros.

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