Detalhe da pesquisa
1.
Time to diagnosis of Duchenne muscular dystrophy remains unchanged: Findings from the Muscular Dystrophy Surveillance, Tracking, and Research Network, 2000-2015.
Muscle Nerve
; 66(2): 193-197, 2022 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-35312090
2.
Health profile of a cohort of adults with Duchenne muscular dystrophy.
Muscle Nerve
; 58(2): 219-223, 2018 Aug.
Artigo
em Inglês
| MEDLINE | ID: mdl-29543994
3.
Genetic Patterns of Selected Muscular Dystrophies in the Muscular Dystrophy Surveillance, Tracking, and Research Network.
Neurol Genet
; 9(6): e200113, 2023 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-38045992
4.
Differentiation of Pediatric-Onset Duchenne and Becker Muscular Dystrophy Subphenotypes Using Data from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet).
J Neuromuscul Dis
; 9(1): 171-178, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-34776418
5.
Characterization of individuals with selected muscular dystrophies from the expanded pilot of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) in the United States.
Birth Defects Res
; 113(7): 560-569, 2021 04 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-32710484
6.
Delayed diagnosis in duchenne muscular dystrophy: data from the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet).
J Pediatr
; 155(3): 380-5, 2009 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-19394035
7.
A Pilot Survey Study of Adherence to Care Considerations for Duchenne Muscular Dystrophy.
PLoS Curr
; 102018 May 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-30254788
8.
Bone Health and Endocrine Care of Boys with Duchenne Muscular Dystrophy: Data from the MD STARnet.
J Neuromuscul Dis
; 5(4): 497-507, 2018.
Artigo
em Inglês
| MEDLINE | ID: mdl-30149461
9.
Diagnostic Accuracy of Phenotype Classification in Duchenne and Becker Muscular Dystrophy Using Medical Record Data1.
J Neuromuscul Dis
; 5(4): 481-495, 2018.
Artigo
em Inglês
| MEDLINE | ID: mdl-30320597
10.
Evaluating Implementation of the Updated Care Considerations for Duchenne Muscular Dystrophy.
Pediatrics
; 142(Suppl 2): S118-S128, 2018 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-30275256
11.
Muscular Dystrophy Surveillance, Tracking, and Research Network pilot: Population-based surveillance of major muscular dystrophies at four U.S. sites, 2007-2011.
Birth Defects Res
; 110(19): 1404-1411, 2018 11 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-30070776
12.
Implementation of Duchenne Muscular Dystrophy Care Considerations.
Pediatrics
; 142(1)2018 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-29925575
13.
Secondary Conditions Among Males With Duchenne or Becker Muscular Dystrophy.
J Child Neurol
; 32(7): 663-670, 2017 Jun.
Artigo
em Inglês
| MEDLINE | ID: mdl-28393671
14.
Respiratory Care Received by Individuals With Duchenne Muscular Dystrophy From 2000 to 2011.
Respir Care
; 61(10): 1349-59, 2016 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-27507176
15.
Age at onset of first signs or symptoms predicts age at loss of ambulation in Duchenne and Becker Muscular Dystrophy: Data from the MD STARnet.
J Pediatr Rehabil Med
; 9(1): 5-11, 2016.
Artigo
em Inglês
| MEDLINE | ID: mdl-26966795
16.
Noninvasive Respiratory Care Received by Individuals With Duchenne Muscular Dystrophy Since 1979-Reply.
Respir Care
; 62(8): 1121-1122, 2017 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-28733321