Transcultural adaptation and validation of the Mexican version of the kidney disease questionnaire KDQOL-SF36 version 1.3.

PURPOSE: To translate the Kidney Disease Quality of Life Short Form 36 (KDQOL-SF36) v1.3 questionnaire into the Spanish language, adapt it culturally, and validate it in the Mexican population. METHODS: The translation and transcultural adaptation were performed according to the recommendations of RAND Health (translation/pilot test/back-translation). We used coefficient alpha to determine the internal consistency, intra- and interobserver intraclass correlation coefficients (ICCs) to determine the test-retest reliability, and Pearson correlation coefficients to confirm the construct validity. RESULTS: The questionnaires were applied to 194 Mexican on haemodialysis. In total, 37.6 % lived in the northern region of Mexico, 28.9 % lived in the southern region, and 33.5 % lived in the central region. The average age was 54 ± 16 years, and 54.6 % were male. The intra- and interobserver ICCs were ≥0.7 for most dimensions evaluated (range 0.5-0.9). The internal consistency was acceptable, with coefficient alpha values ≥0.7 for 12 of the 18 dimensions (range 0.4-0.9). The construct validity was acceptable, especially in the generic component SF36, with correlation coefficients >0.5 for most dimensions. CONCLUSIONS: Psychometric testing indicated that the Mexican version of the KDQOL-SF36 provided valid and reliable scores that were similar to the results obtained with the original English version.

Differences in quality of life between Jewish and Arab patients on hemodialysis.

PURPOSE: Higher health-related quality of life (HRQOL) in dialysis patients has been associated with fewer hospitalizations and lower mortality. Since Arab patients on dialysis have better survival rates than Jewish patients, we hypothesized that they would have higher HRQOL. We also studied the impact of several risk factors on HRQOL in each population. METHODS: Based on a national dialysis registry, patients from 64 hemodialysis units were recruited to participate. Patients who consented were interviewed face-to-face, using the Kidney Disease Quality of Life Short Form (KDQOL-SF36) questionnaire. RESULTS: Five hundred and fifty-eight (50.6%) Jewish and 544 (49.4%) Arab patients participated in the study. For Arab patients mean crude scores for the "mental component summary" and KDQOL scores were significantly lower than for Jewish patients [31.6 (95% Cl 30.0-33.3) vs. 38.0 (95% Cl 36.1-39.9), p < 0.0001 and 55.6 (95% Cl 54.5-56.7) vs. 59.8 (95% Cl 58.6-60.9), p < 0.0001, respectively]. Much lower scores were observed for Arabs in the "emotional role" and "work status" subscales. The two populations had similar general health assessments and albumin level. For both, HRQOL was positively associated with higher educational level, higher albumin level, and dialysis connection by fistula or graft; and negatively associated with low income and diabetes. HRQOL was negatively associated with previous cerebrovascular accident among Arabs and with female gender among Jews. CONCLUSIONS: Differences between Jews and Arabs in subscales related to psychosocial factors suggest that cultural differences in the perceptions of sickness and health may be relevant here. Future studies should explore such possibility and focus on the large gap in the "work status" subscale.

Adaptación tranccultural del cuestionario kdqolsf 36 para evaluar calidad de vvida en pacientes con enfermedad renal crónica en Colombia / Adaptaton transccultura kdqol questionnaire sf 36 to assess quality off life in patients with chronic kidney disease in Colombia / Adaptaço transcuultural do questionário kdqol sf 36 para avaliar qualidade de vida em pacientes com doença renal crônica na Colômbia

El objetivo de este trabajo es adaptar transculturalmente, para el uso en Colombia, el cuestionario para calidad de vida en pacientes con enfermedad renal crónica terminal, KDQOL-SF-36 Kidney Disease Quality of Life (instrumento mixto). Al realizar esta adaptación, se busca que el significado y semántica de las preguntas sean consistentes para ser aplicados en población Colombiana. Método: para la realización de todo el proceso de adaptación se tomaron en cuenta las recomendaciones dadas por la Organización Europea para la Investigación y el Tratamiento del Cáncer (EORTC), la aplicación del cuestionario en los grupos pilotos se llevo a cabo mediante entrevista, autoadministración y entrevista en grupos focales. Resultados: durante el proceso de adaptación se realizaron diversos cambios en el cuestionario, la mayoría de ellos en la fase de traducción desde los lineamientos seguidos en la metodología. Conclusiones: en este momento en Colombia se cuenta con la versión adaptada de la escala KDQOL-SF-36, para pacientes con enfermedad renal crónica terminal.

The aim of this work is to obtain a Colombian transcultural adaptation version of the instrument 'kidney disease quality of life' KDQOL - SF - 36 (mixed instrument) in subjects with end stage renal disease. By doing this work it is intended that the meaning and context of the questions be consistent to be applied in Colombian population. Method: For the accomplishment of the whole process of adjustment, the recommendations given by the European Organization for Research and Treatment of Cancer (EORTC) were taken in account; the application of the questionnaire in the pilot groups was carried out by interview, self administration and focal group interviews. Results: during the process of adjustment, several changes were made to the questionnaire, most of them in the translation phase from the standards followed in the methodology. Conclusions: Currently in Colombia the adapted version of the KDQOL-SF-36 scale is being used for subjects with end stage renal disease.

O objetivo destetrabalho é adaptar transculturalmente para o uso na Colômbia o questionário para qualidade de vida em pacientes com doença renal crônica terminal KDQOL-SF-36 KidneyDisease- QualityofLife (instrumento misto). Ao realizar esta adaptação procura-se que o significado e semântica das perguntas sejam consistentes para ser aplicados em população Colombiana. Método: para a realização de todo o processo de adaptação se tiveram em conta as recomendações dadas pela Organização Europeia para a Pesquisae o Tratamento do Câncer (EORTC), a aplicação do questionário nos grupos pilotos, se levou a cabo mediante entrevista, autoadministração e entrevista em grupos focais. Resultados: durante o processo de adaptação se realizaram diversos câmbios ao questionário a maioria de eles na fase de tradução desde os lineamentos seguidos na metodologia. Conclusões: em este momento na Colômbia se conta com a versão adaptada da escala KDQOL-SF-36 para pacientes com doença renal crônica terminal.

Avaliação da qualidade de vida dos pacientes submetidos à hemodiálise / Assessment of quality of life in patients undergoing hemodialysis

JUSTIFICATIVA E OBJETIVOS: A insuficiência renal crônica (IRC) é uma doença que acomete grande parcela da população, provoca graves consequências na vida do paciente, inclusive quando este precisa ser submetido ao tratamento, que, por sua vez, também compromete as dimensões física, psíquica e social, as quais podem influenciar diretamente na qualidade de vida (QV). Portanto, o objetivo deste estudo foi avaliar a QV dos pacientes submetidos à hemodiálise. MÉTODO: Estudo descritivo transversal, realizado com uma amostra de conveniência. Foi utilizado o Kidney Disease and Quality of Life Short Form (KDQOL SF-36). Os voluntários eram portadores de IRC, submetidos ao tratamento de hemodiálise em uma clínica de terapia renal substitutiva, no período de junho a julho de 2006. Para análise dos dados, foi aplicada estatística descritiva. RESULTADOS: Dos 62 pacientes que atendiam aos critérios de inclusão e exclusão, apenas 37 responderam ao questionário. Destes, 16 eram homens (43,24%) e 21 mulheres (56,76%). Das dimensões analisadas, a de papel profissional e função física foram as que apresentaram menor média de escore, enquanto que a maior média foi observada no estímulo por parte da equipe de diálise. CONCLUSÃO: A pontuação média encontrada nas diferentes dimensões indicou boa QV nesta população, uma vez quea maioria das dimensões avaliadas apresentaram escores nas 4ª e 5ª faixas. A identificação desses indicadores qualitativos poderá auxiliar na terapêutica, bem como influenciar na perspectiva de vida desses pacientes.

BACKGROUND AND OBJECTIVES: Chronic renal failure (CRF) is a disease which affects a large part of the population, causes serious consequences in the patient's life, inclusively when he/she needs to undergo a treatment that, in turn, also compromises the physical, mental and social dimensions, which can directly influence these patient's quality of life (QOL). Therefore, the aim of this study was to evaluated the quality of life of patients undergo hemodialysis. METHOD: This is a descriptive cross-sectional study, conducted with a convenience sample, which used the questionnaire of Kidney Disease and Quality of Life - Short Form (KDQOL SF-36). The volunteers were patients diagnosed with CRF and undergoing a hemodialysis treatment at a clinic for renal replacement therapy in the period from June to July 2006. For data analysis, was applied descriptive statistics. RESULTS: From the 62 patients who met the inclusion and exclusion criteria, only 37 answered the questionaire. From these, 16 men (43.24%) and 21 women (56.76%). Among the analyzed dimensions, those of professional role and physical function were the ones with the lower score average, whereas the highest average was observed in the incentive on the part of the dialysis team. CONCLUSION: The average score found in the different dimensions indicates a good quality of life in this population, since most of the assessed dimensions presented score in the 4th and 5th ranges. The identification of these qualitative indicators may help in the treatment, as well how influencing in life expectancy of these patients.