[Psychosocial adjustment of young adult to hemophilia: living like a normal person].

ABSTRACT

PURPOSE: To explore how young adults in their 20s adjust to hemophilia. METHOD: Grounded theory method guided the data collection and analysis. A purposeful sample of 15 young adults with hemophilia participated during the period of 2000-2001. The data were collected by semi-structured individual interviews, focus group interviews, and participant observations. All interviews were audio taped and transcribed verbatim. Constant comparative analysis was employed to analyze the data. RESULT: "Living like a normal person" emerged as the basic social-psychological process. Two dimensions of the self were identified normal self and abnormal self. "Living like a normal person" means conscious effort to focus on normal self rather than abnormal self. Five subcategories were identified 1) pretending as if he is not hemophiliac; 2) relieving the burden; 3) maintaining best physical conditions; 4) becoming independent; and 5) reconciliating with their mothers. CONCLUSION: The results of this study indicate that young adults with hemophilia strive for living a life as a normal person. But there is a question whether it is good for their ultimate quality of life. The results indicate that our society needs to be more tolerant to differences that hemophiliacs have.