Supportive and palliative care for adults dying from congenital heart defect.
Curr Opin Support Palliat Care
; 5(3): 291-6, 2011 Sep.
Article
em En
| MEDLINE
| ID: mdl-21734585
ABSTRACT
PURPOSE OF REVIEW Adult survivors with congenital heart disease (CHD) are a novel group of adults with chronic disease. Due to the nature of their surgical repair, the majority is not cured. This review focuses on changing demographics and mortality of adults with CHD, available knowledge and data on end-of-life (EOL) and palliative care in this patient group and outlines needs for future clinical practice and research. RECENT FINDINGS:
Recent findings underscore that survival to adulthood has become the rule for the majority of patients born with CHD. Many remain at increased risk of premature death from their disease. Chronic circulatory failure has been identified as one of the leading causes of death and, thus, patients may benefit from incorporation of palliative care principles in their management. Recent studies show that this practice has not yet been widely adopted. Nonetheless a survey of adult outpatients has shown that many patients prefer to be involved in EOL decisions early in the course of their disease.SUMMARY:
More research is needed to learn how we can best implement principles of palliative care in the growing population of adult survivors with CHD. This includes improved communication about EOL issues and a more comprehensive approach for symptom control.
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Cuidados Paliativos
/
Atitude Frente a Morte
/
Cardiopatias Congênitas
/
Insuficiência Cardíaca
Tipo de estudo:
Prognostic_studies
/
Qualitative_research
Limite:
Adult
/
Child
/
Humans
País/Região como assunto:
Europa
Idioma:
En
Revista:
Curr Opin Support Palliat Care
Ano de publicação:
2011
Tipo de documento:
Article
País de afiliação:
Suíça