Parental knowledge regarding lifelong congenital cardiac care.
Pediatrics
; 128(6): e1489-95, 2011 Dec.
Article
em En
| MEDLINE
| ID: mdl-22123874
ABSTRACT
OBJECTIVE:
To assess parental knowledge regarding lifelong congenital cardiac care (LLCCC).BACKGROUND:
National guidelines recommend that nearly 50% of adult survivors with congenital heart disease (CHD) receive LLCCC; the number of adults who receive such care seems far less. Inadequate parental knowledge of LLCCC might contribute to care interruption.METHODS:
In this multicenter study, we administered a questionnaire to parents of children with moderate and complex CHD to assess knowledge of LLCCC.RESULTS:
A total of 500 parents participated; the median age of their children was 10 years (range 2-18 years). Most parents (81%) understood that their child would need LLCCC, but only 44% recognized that their child's cardiology care should be guided by an adult congenital heart specialist in adulthood. More than half (59%) of the parents stated that their current cardiology team had never spoken to them about LLCCC, but 96% wished to learn more. Variables associated with parental LLCCC knowledge included previous discussions regarding LLCCC, underlying cardiac surgical diagnosis, and level of parental education.CONCLUSIONS:
A substantial number of parents of children with moderate and complex CHD lack knowledge about LLCCC, but almost all of them have a desire to learn more about the care their child will need as an adult.
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Pais
/
Conhecimentos, Atitudes e Prática em Saúde
/
Assistência de Longa Duração
/
Cardiopatias Congênitas
Tipo de estudo:
Clinical_trials
/
Guideline
/
Observational_studies
/
Prevalence_studies
/
Qualitative_research
/
Risk_factors_studies
Limite:
Adolescent
/
Child
/
Child, preschool
/
Humans
Idioma:
En
Revista:
Pediatrics
Ano de publicação:
2011
Tipo de documento:
Article
País de afiliação:
Estados Unidos