Implementing Qualitative Data Management Plans to Ensure Ethical Standards in Multi-Partner Centers.
J Empir Res Hum Res Ethics
; 11(2): 191-8, 2016 04.
Article
em En
| MEDLINE
| ID: mdl-27074911
Thorough data management is crucial for the protection of people who participate in research and the ability for researchers to share results with the public. The impact of inadequate adherence to data management is particularly evident in small field sites and among vulnerable populations partoicipating in Community-Based Participatory Research (CBPR). CBPR presents exciting opportunities for multimedia and multi-sectoral dissemination of research results and policy change, especially concerning the impact of research on health equity for underrepresented populations. In this article, we discuss how we defined data boundaries and protections to adhere to ethical standards while also prioritizing data dissemination while using CBPR with American Indians in Arizona. Although complex partnerships can introduce additional risks to data oversight, data management practices can also increase opportunities for wide-reaching dissemination. We hope to contribute to the literature on data sharing in multi-partnership projects to bolster the impact of dissemination while also protecting participants and populations who chose to collaborate in research and policy practices.
Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Indígenas Norte-Americanos
/
Coleta de Dados
/
Relações Comunidade-Instituição
/
Confidencialidade
/
Comportamento Cooperativo
/
Disseminação de Informação
/
Pesquisa Participativa Baseada na Comunidade
Tipo de estudo:
Guideline
/
Qualitative_research
Limite:
Humans
País/Região como assunto:
America do norte
Idioma:
En
Revista:
J Empir Res Hum Res Ethics
Assunto da revista:
ETICA
Ano de publicação:
2016
Tipo de documento:
Article
País de afiliação:
Estados Unidos