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Establishing core outcome sets for phenylketonuria (PKU) and medium-chain Acyl-CoA dehydrogenase (MCAD) deficiency in children: study protocol for systematic reviews and Delphi surveys.
Potter, Beth K; Hutton, Brian; Clifford, Tammy J; Pallone, Nicole; Smith, Maureen; Stockler, Sylvia; Chakraborty, Pranesh; Barbeau, Pauline; Garritty, Chantelle M; Pugliese, Michael; Rahman, Alvi; Skidmore, Becky; Tessier, Laure; Tingley, Kylie; Coyle, Doug; Greenberg, Cheryl R; Korngut, Lawrence; MacKenzie, Alex; Mitchell, John J; Nicholls, Stuart; Offringa, Martin; Schulze, Andreas; Taljaard, Monica.
Afiliação
  • Potter BK; School of Epidemiology and Public Health, University of Ottawa, 600 Peter Morand Drive, Ottawa, ON, K1G 5Z3, Canada. bpotter@uottawa.ca.
  • Hutton B; School of Epidemiology and Public Health, University of Ottawa, 600 Peter Morand Drive, Ottawa, ON, K1G 5Z3, Canada.
  • Clifford TJ; Ottawa Hospital Research Institute, Ottawa, ON, Canada.
  • Pallone N; School of Epidemiology and Public Health, University of Ottawa, 600 Peter Morand Drive, Ottawa, ON, K1G 5Z3, Canada.
  • Smith M; Canadian Agency for Drugs and Technologies in Health, Ottawa, ON, Canada.
  • Stockler S; Patient/family partner and Canadian PKU & Allied Disorders Inc, Sparwood, BC, Canada.
  • Chakraborty P; Patient/family partner and Canadian Organization for Rare Disorders, Ottawa, ON, Canada.
  • Barbeau P; BC Children's Hospital and University of British Columbia, Vancouver, BC, Canada.
  • Garritty CM; Children's Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada.
  • Pugliese M; Ottawa Hospital Research Institute, Ottawa, ON, Canada.
  • Rahman A; Ottawa Hospital Research Institute, Ottawa, ON, Canada.
  • Skidmore B; School of Epidemiology and Public Health, University of Ottawa, 600 Peter Morand Drive, Ottawa, ON, K1G 5Z3, Canada.
  • Tessier L; School of Epidemiology and Public Health, University of Ottawa, 600 Peter Morand Drive, Ottawa, ON, K1G 5Z3, Canada.
  • Tingley K; Ottawa Hospital Research Institute, Ottawa, ON, Canada.
  • Coyle D; Children's Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada.
  • Greenberg CR; School of Epidemiology and Public Health, University of Ottawa, 600 Peter Morand Drive, Ottawa, ON, K1G 5Z3, Canada.
  • Korngut L; School of Epidemiology and Public Health, University of Ottawa, 600 Peter Morand Drive, Ottawa, ON, K1G 5Z3, Canada.
  • MacKenzie A; University of Manitoba, Winnipeg, MB, Canada.
  • Mitchell JJ; Department of Clinical Neurosciences, University of Calgary, Calgary, AB, Canada.
  • Nicholls S; Children's Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada.
  • Offringa M; McGill University Health Centre, Montreal, QC, Canada.
  • Schulze A; Clinical Research Unit, Children's Hospital of Eastern Ontario, Ottawa, ON, Canada.
  • Taljaard M; Ontario Child Health SUPPORT Unit (OCHSU), Ottawa, ON, Canada.
Trials ; 18(1): 603, 2017 Dec 19.
Article em En | MEDLINE | ID: mdl-29258568
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Fenilcetonúrias / Projetos de Pesquisa / Ensaios Clínicos Controlados Aleatórios como Assunto / Técnica Delphi / Determinação de Ponto Final / Acil-CoA Desidrogenase / Erros Inatos do Metabolismo Lipídico Tipo de estudo: Clinical_trials / Diagnostic_studies / Guideline / Prognostic_studies Limite: Humans Idioma: En Revista: Trials Assunto da revista: MEDICINA / TERAPEUTICA Ano de publicação: 2017 Tipo de documento: Article País de afiliação: Canadá
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Fenilcetonúrias / Projetos de Pesquisa / Ensaios Clínicos Controlados Aleatórios como Assunto / Técnica Delphi / Determinação de Ponto Final / Acil-CoA Desidrogenase / Erros Inatos do Metabolismo Lipídico Tipo de estudo: Clinical_trials / Diagnostic_studies / Guideline / Prognostic_studies Limite: Humans Idioma: En Revista: Trials Assunto da revista: MEDICINA / TERAPEUTICA Ano de publicação: 2017 Tipo de documento: Article País de afiliação: Canadá