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"I'm Doing My Part, I Just Need Help From the Community": Intervention Implications of Foster and Adoptive Parents' Experiences Raising Children and Young Adults With FASD.
Petrenko, Christie L M; Alto, Michelle E; Hart, Andrea R; Freeze, Sarah M; Cole, Lynn L.
Afiliação
  • Petrenko CLM; 1 University of Rochester, NY, USA.
  • Alto ME; 1 University of Rochester, NY, USA.
  • Hart AR; 2 University of Rochester Medical Center, NY, USA.
  • Freeze SM; 3 Psychotherapist, Huntington, NY, USA.
  • Cole LL; 2 University of Rochester Medical Center, NY, USA.
J Fam Nurs ; 25(2): 314-347, 2019 05.
Article em En | MEDLINE | ID: mdl-31079560
Individuals with fetal alcohol spectrum disorders (FASD) have high rates of health care service utilization. It is vital that health care professionals understand FASD and associated family experiences to strengthen their ability to respond to family needs and tailor family-focused interventions. This study included 24 foster and adoptive parents of children and adults (aged 3-33 years) with FASD. Data were collected via individual interviews and focus groups and analyzed thematically. Consistent with a developmental psychopathology perspective, parents' experiences interacted with the individual (with FASD), family, and broader systems ecological levels. Parents undertook protective actions in an attempt to prevent secondary conditions, support their child and family, and mitigate systems barriers. They also experienced stressors at each level, and stress was increased by protective actions. The overall parenting experience was fueled by a protective parenting attitude. Findings can strengthen family-focused care practices with individuals with FASD and their families and inform novel family interventions.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Apoio Social / Poder Familiar / Cuidadores / Redes Comunitárias / Transtornos do Espectro Alcoólico Fetal / Criança Adotada / Criança Acolhida Tipo de estudo: Qualitative_research Limite: Adolescent / Adult / Child / Child, preschool / Female / Humans / Male Idioma: En Revista: J Fam Nurs Ano de publicação: 2019 Tipo de documento: Article País de afiliação: Estados Unidos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Apoio Social / Poder Familiar / Cuidadores / Redes Comunitárias / Transtornos do Espectro Alcoólico Fetal / Criança Adotada / Criança Acolhida Tipo de estudo: Qualitative_research Limite: Adolescent / Adult / Child / Child, preschool / Female / Humans / Male Idioma: En Revista: J Fam Nurs Ano de publicação: 2019 Tipo de documento: Article País de afiliação: Estados Unidos