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Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.
Kraft, Stephanie A; McMullen, Carmit; Lindberg, Nangel M; Bui, David; Shipman, Kelly; Anderson, Katherine; Joseph, Galen; Duenas, Devan M; Porter, Kathryn M; Kauffman, Tia L; Koomas, Alyssa; Ransom, Chelese L; Jackson, Paige; Goddard, Katrina A B; Wilfond, Benjamin S; Lee, Sandra Soo-Jin.
Afiliação
  • Kraft SA; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital and Research Institute, Seattle, WA, USA. stephanie.kraft@seattlechildrens.org.
  • McMullen C; Department of Pediatrics, University of Washington School of Medicine, Seattle, WA, USA. stephanie.kraft@seattlechildrens.org.
  • Lindberg NM; Center for Health Research, Kaiser Permanente Northwest, Portland, OR, USA.
  • Bui D; Center for Health Research, Kaiser Permanente Northwest, Portland, OR, USA.
  • Shipman K; Center for Health Research, Kaiser Permanente Northwest, Portland, OR, USA.
  • Anderson K; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital and Research Institute, Seattle, WA, USA.
  • Joseph G; Denver Health Ambulatory Care Services, Denver, CO, USA.
  • Duenas DM; Department of Anthropology, History & Social Medicine, University of California-San Francisco, San Francisco, CA, USA.
  • Porter KM; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital and Research Institute, Seattle, WA, USA.
  • Kauffman TL; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital and Research Institute, Seattle, WA, USA.
  • Koomas A; Center for Health Research, Kaiser Permanente Northwest, Portland, OR, USA.
  • Ransom CL; Alliance for a Healthier Generation, Portland, OR, USA.
  • Jackson P; CHARM English-Speaking Patient Advisory Committee, Denver, CO, USA.
  • Goddard KAB; CHARM English-Speaking Patient Advisory Committee, Denver, CO, USA.
  • Wilfond BS; Center for Health Research, Kaiser Permanente Northwest, Portland, OR, USA.
  • Lee SS; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital and Research Institute, Seattle, WA, USA.
Genet Med ; 22(6): 1094-1101, 2020 06.
Article em En | MEDLINE | ID: mdl-32089547
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Genômica / Comitês de Ética em Pesquisa Tipo de estudo: Qualitative_research / Risk_factors_studies Limite: Humans Idioma: En Revista: Genet Med Assunto da revista: GENETICA MEDICA Ano de publicação: 2020 Tipo de documento: Article País de afiliação: Estados Unidos
Texto completo
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XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Genômica / Comitês de Ética em Pesquisa Tipo de estudo: Qualitative_research / Risk_factors_studies Limite: Humans Idioma: En Revista: Genet Med Assunto da revista: GENETICA MEDICA Ano de publicação: 2020 Tipo de documento: Article País de afiliação: Estados Unidos