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Parents' perspectives on nusinersen treatment for children with spinal muscular atrophy.
van Kruijsbergen, Mette; Schröder, Carin D; Ketelaar, Marjolijn; van der Pol, W Ludo; Cuppen, Inge; van der Geest, Annette; Asselman, Fay-Lynn; Fischer, Maarten J; Visser-Meily, Johanna M A; Kars, Marijke C.
Afiliação
  • van Kruijsbergen M; Center of Excellence in Rehabilitation Medicine, UMC Utrecht Brain Center and De Hoogstraat Rehabilitation, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.
  • Schröder CD; Center of Excellence in Rehabilitation Medicine, UMC Utrecht Brain Center and De Hoogstraat Rehabilitation, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.
  • Ketelaar M; Ecare4you, Amersfoort, the Netherlands.
  • van der Pol WL; Center of Excellence in Rehabilitation Medicine, UMC Utrecht Brain Center and De Hoogstraat Rehabilitation, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.
  • Cuppen I; UMC Utrecht Brain Center, Department of Neurology, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.
  • van der Geest A; UMC Utrecht Brain Center, Department of Neurology, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.
  • Asselman FL; Center of Excellence in Rehabilitation Medicine, UMC Utrecht Brain Center and De Hoogstraat Rehabilitation, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.
  • Fischer MJ; Department of Rehabilitation, Physical Therapy Science & Sports, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.
  • Visser-Meily JMA; UMC Utrecht Brain Center, Department of Neurology, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.
  • Kars MC; Center of Excellence in Rehabilitation Medicine, UMC Utrecht Brain Center and De Hoogstraat Rehabilitation, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.
Dev Med Child Neurol ; 63(7): 816-823, 2021 07.
Article em En | MEDLINE | ID: mdl-33550591
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Oligonucleotídeos / Pais / Atrofia Muscular Espinal / Tomada de Decisões Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Child / Child, preschool / Female / Humans / Male Idioma: En Revista: Dev Med Child Neurol Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Holanda
Texto completo
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XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Oligonucleotídeos / Pais / Atrofia Muscular Espinal / Tomada de Decisões Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Child / Child, preschool / Female / Humans / Male Idioma: En Revista: Dev Med Child Neurol Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Holanda