A longitudinal qualitative study to explore and optimize self-management in mild to end stage chronic kidney disease patients with limited health literacy: Perspectives of patients and health care professionals.
Patient Educ Couns
; 105(1): 88-104, 2022 01.
Article
em En
| MEDLINE
| ID: mdl-34024670
ABSTRACT
OBJECTIVES:
Limited health literacy (LHL) is associated with faster kidney deterioration. Health care professionals (HCPs) promote self-management to maintain kidney function, which is difficult for patients with LHL. Evidence lacks on perceived barriers and best strategies to optimize their self-management. Our study aims to explore experiences with and barriers for self-management from the perspectives of LHL patients and HCPs to identify strategies to optimize self-management.METHODS:
We performed a longitudinal qualitative study with semi-structured in-depth interviews and focus group discussions among CKD patients and LHL (n = 24) and HCPs (n = 37) from general practices and hospitals.RESULTS:
Four themes arose among patients (1) CKD elusiveness, (2) suboptimal intake of knowledge (3) not taking a front-seat role, and (4) maintaining change. Among HCPs, three themes emerged (1) not recognizing HL problems, (2) lacking effective strategies, and (3) health care barriers.CONCLUSION:
We suggest three routes to optimize self-management providing earlier information, applying person-centered strategies to maintain changes, and improving competencies of HCPs. PRACTICE IMPLICATIONS HCPs need to explain CKD self-management better to prevent kidney deterioration. New interventions, based on behavioral approaches, are needed to optimize self-management. HCPs need training to improve recognition and support of LHL patients.Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Insuficiência Renal Crônica
/
Letramento em Saúde
/
Autogestão
Tipo de estudo:
Qualitative_research
/
Risk_factors_studies
Limite:
Humans
Idioma:
En
Revista:
Patient Educ Couns
Ano de publicação:
2022
Tipo de documento:
Article