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Establishing a core outcome set for mucopolysaccharidoses (MPS) in children: study protocol for a rapid literature review, candidate outcomes survey, and Delphi surveys.
Howie, Alison H; Tingley, Kylie; Inbar-Feigenberg, Michal; Mitchell, John J; Butcher, Nancy J; Offringa, Martin; Smith, Maureen; Angel, Kim; Gentle, Jenifer; Wyatt, Alexandra; Campeau, Philippe M; Chan, Alicia; Chakraborty, Pranesh; El Turk, Farah; Mamak, Eva; Mhanni, Aizeddin; Skidmore, Becky; Sparkes, Rebecca; Stockler, Sylvia; Potter, Beth K.
Afiliação
  • Howie AH; School of Epidemiology and Public Health, University of Ottawa, Room 101, 600 Peter Morand Crescent, Ottawa ON, Canada, Ottawa, ON, K1G 5Z3, Canada.
  • Tingley K; School of Epidemiology and Public Health, University of Ottawa, Room 101, 600 Peter Morand Crescent, Ottawa ON, Canada, Ottawa, ON, K1G 5Z3, Canada.
  • Inbar-Feigenberg M; The Hospital for Sick Children, Toronto, ON, Canada.
  • Mitchell JJ; McGill University Health Centre, Montreal, QC, Canada.
  • Butcher NJ; Child Health Evaluative Sciences, The Hospital for Sick Children Research Institute, Toronto, ON, Canada.
  • Offringa M; Department of Psychiatry, University of Toronto, Toronto, ON, Canada.
  • Smith M; The Hospital for Sick Children, Toronto, ON, Canada.
  • Angel K; Child Health Evaluative Sciences, The Hospital for Sick Children Research Institute, Toronto, ON, Canada.
  • Gentle J; Department of Pediatrics, University of Toronto, Toronto, ON, Canada.
  • Wyatt A; Patient Partner, Canadian Organization for Rare Disorders, Ottawa, ON, Canada.
  • Campeau PM; Canadian MPS Society, Vancouver, BC, Canada.
  • Chan A; Patient/Family Partner, Vancouver, BC, Canada.
  • Chakraborty P; Canadian MPS Society, Vancouver, BC, Canada.
  • El Turk F; Department of Pediatrics, CHU Sainte-Justine and Université de Montréal, Montreal, QC, Canada.
  • Mamak E; Department of Medical Genetics, University of Alberta, Edmonton, AB, Canada.
  • Mhanni A; Children's Hospital of Eastern Ontario, Ottawa, ON, Canada.
  • Skidmore B; Department of Pediatrics, University of Ottawa, Ottawa, ON, Canada.
  • Sparkes R; McGill University Health Centre, Montreal, QC, Canada.
  • Stockler S; Department of Pediatrics, CHU Sainte-Justine and Université de Montréal, Montreal, QC, Canada.
  • Potter BK; Department of Psychology, The Hospital for Sick Children, Toronto, ON, Canada.
Trials ; 22(1): 816, 2021 Nov 17.
Article em En | MEDLINE | ID: mdl-34789302
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Avaliação de Resultados em Cuidados de Saúde / Mucopolissacaridoses Tipo de estudo: Clinical_trials / Diagnostic_studies / Prognostic_studies / Systematic_reviews Limite: Child / Humans País/Região como assunto: America do norte Idioma: En Revista: Trials Assunto da revista: MEDICINA / TERAPEUTICA Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Canadá
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Avaliação de Resultados em Cuidados de Saúde / Mucopolissacaridoses Tipo de estudo: Clinical_trials / Diagnostic_studies / Prognostic_studies / Systematic_reviews Limite: Child / Humans País/Região como assunto: America do norte Idioma: En Revista: Trials Assunto da revista: MEDICINA / TERAPEUTICA Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Canadá