Coming Full Circle: Reflections and Inspirations from a Cystic Fibrosis Patient Scientist Panel.
Inquiry
; 59: 469580221086921, 2022.
Article
em En
| MEDLINE
| ID: mdl-35420504
Care for many progressive chronic diseases continues to improve, allowing patients to survive and thrive for longer periods of time1. People living with such conditions may now find themselves able to achieve long-term goals in education and career development2. Many people now occupy the dual roles of scientist and patient3. This commentary article synthesizes experiences of scientists and advocates with the progressive genetic disease cystic fibrosis (CF) who collaborated on a career development session for the Cystic Fibrosis Foundation's inaugural ResearchCon event in 2019. It explores how such collaborations affirm and transform individual perspectives on patient science and its importance in broader scientific research agenda setting. We first share our own individual insights about the experience and impact of the ResearchCon panel session before progressing to discussion and future directions centering the shared insights from one another's reflections.
Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Médicos
/
Fibrose Cística
Limite:
Humans
Idioma:
En
Revista:
Inquiry
Ano de publicação:
2022
Tipo de documento:
Article
País de afiliação:
Estados Unidos