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'Sadly I think we are sort of still quite white, middle-class really' - Inequities in access to bereavement support: Findings from a mixed methods study.
Selman, Lucy E; Sutton, Eileen; Medeiros Mirra, Renata; Stone, Tracey; Gilbert, Emma; Rolston, Yansie; Murray, Karl; Longo, Mirella; Seddon, Kathy; Penny, Alison; Mayland, Catriona R; Wakefield, Donna; Byrne, Anthony; Harrop, Emily.
Afiliação
  • Selman LE; Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, Bristol, UK.
  • Sutton E; Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, Bristol, UK.
  • Medeiros Mirra R; Cardiff School of Dentistry, Cardiff University, Cardiff, UK.
  • Stone T; Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, Bristol, UK.
  • Gilbert E; Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, Bristol, UK.
  • Rolston Y; Ubele Initiative, London, UK.
  • Murray K; Ubele Initiative, London, UK.
  • Longo M; Marie Curie Research Centre, Cardiff University, Cardiff, UK.
  • Seddon K; Wales Cancer Research Centre, Cardiff, UK.
  • Penny A; National Bereavement Alliance, London, UK.
  • Mayland CR; Department of Oncology and Metabolism, University of Sheffield, Sheffield, UK.
  • Wakefield D; North Tees and Hartlepool NHS Foundation Trust, Stockton-on-Tees, UK.
  • Byrne A; Marie Curie Research Centre, Cardiff University, Cardiff, UK.
  • Harrop E; Marie Curie Research Centre, Cardiff University, Cardiff, UK.
Palliat Med ; 37(4): 586-601, 2023 04.
Article em En | MEDLINE | ID: mdl-36337051
BACKGROUND: Voluntary and community sector bereavement services are central to bereavement support in the UK. AIM: To determine service providers' perspectives on access to their support before and during the COVID-19 pandemic. DESIGN: Mixed methods study using an explanatory sequential design: (1) Cross-sectional online survey of UK bereavement services; (2) Qualitative interviews with staff and volunteers at selected services. SETTINGS/PARTICIPANTS: 147 services participated in the survey; 24 interviews were conducted across 14 services. RESULTS: 67.3% of services reported there were groups with unmet needs not accessing their services before the pandemic; most frequently people from minoritised ethnic communities (49%), sexual minority groups (26.5%), deprived areas (24.5%) and men (23.8%). Compared with before the pandemic, 3.4% of services were seeing more people from minoritised ethnic groups, while 6.1% were seeing fewer. 25.2% of services did not collect ethnicity data. Qualitative findings demonstrated the disproportionate impact of the pandemic on minoritised ethnic communities, including disruption to care/mourning practices, and the need for culturally appropriate support. During the pandemic outreach activities were sometimes deprioritised; however, increased collaboration was also reported. Online provision improved access but excluded some. Positive interventions to increase equity included collecting client demographic data; improving outreach, language accessibility and staff representation; supporting other professionals to provide bereavement support; local collaboration and co-production. CONCLUSIONS: Service providers report inequities in access to bereavement support. Attention needs to be paid to identifying, assessing and meeting unmet needs for appropriate bereavement support. Identified positive interventions can inform service provision and research.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Luto / COVID-19 Tipo de estudo: Diagnostic_studies / Prognostic_studies / Qualitative_research Limite: Humans / Male Idioma: En Revista: Palliat Med Assunto da revista: SERVICOS DE SAUDE Ano de publicação: 2023 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Luto / COVID-19 Tipo de estudo: Diagnostic_studies / Prognostic_studies / Qualitative_research Limite: Humans / Male Idioma: En Revista: Palliat Med Assunto da revista: SERVICOS DE SAUDE Ano de publicação: 2023 Tipo de documento: Article