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Validation of the parent-proxy pediatric Charcot-Marie-Tooth disease quality of life outcome measure.
Wu, Tong Tong; Finkel, Richard S; Siskind, Carly E; Feely, Shawna M E; Burns, Joshua; Reilly, Mary M; Muntoni, Francesco; Estilow, Timothy; Shy, Michael E; Ramchandren, Sindhu.
Afiliação
  • Wu TT; Department of Biostatistics and Computational Biology, University of Rochester, Rochester, New York, USA.
  • Finkel RS; Center for Experimental Neurotherapeutics, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.
  • Siskind CE; Department of Neurology, Stanford University, Stanford, California, USA.
  • Feely SME; Department of Neurology, University of Iowa Hospitals and Clinics, Iowa City, Iowa, USA.
  • Burns J; Faculty of Medicine and Health; Pediatric Gait Analysis Service of New South Wales. Sydney Children's Hospitals Network, University of Sydney School of Health Sciences, Sydney, New South Wales, Australia.
  • Reilly MM; Centre for Neuromuscular Diseases, UCL Queen Square Institute of Neurology, London, UK.
  • Muntoni F; Centre for Neuromuscular Diseases, UCL Queen Square Institute of Neurology, London, UK.
  • Estilow T; Dubowitz Neuromuscular Centre, NIHR Great Ormond Street Hospital Biomedical Research Centre, UCL Great Ormond Street Institute of Child Health and Great Ormond Street Hospital, London, UK.
  • Shy ME; Department of Pediatrics, Division of Neurology, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
  • Ramchandren S; Department of Neurology, University of Iowa Hospitals and Clinics, Iowa City, Iowa, USA.
J Peripher Nerv Syst ; 28(2): 237-251, 2023 06.
Article em En | MEDLINE | ID: mdl-36748295
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Doença de Charcot-Marie-Tooth Tipo de estudo: Observational_studies / Prognostic_studies / Qualitative_research Limite: Adolescent / Child / Humans Idioma: En Revista: J Peripher Nerv Syst Assunto da revista: NEUROLOGIA Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos
Texto completo
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XML
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Doença de Charcot-Marie-Tooth Tipo de estudo: Observational_studies / Prognostic_studies / Qualitative_research Limite: Adolescent / Child / Humans Idioma: En Revista: J Peripher Nerv Syst Assunto da revista: NEUROLOGIA Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos